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My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
Having a cold whilst stimming
Hi everyone, hope you're all well. I'm on day 10 of stims and just getting over a cold. Has anyone been ill during it and still gone on to have a good number of eggs collected and the quality being good too? Does being ill have an affect? Thanks.
Hi everyone, hope you're all well. I'm on day 10 of stims and just getting over a cold. Has anyone been ill during it and still gone on to have a good number of eggs collected and the quality being good too? Does being ill have an affect? Thanks.
Soapqueen87
in
Fertility Network UK
6 months ago
Treatment plan day for me today at 10am. Wish me luck I'm so so scared 🙏🤞
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
I was poorly all over November and December with a terrible cough and flu like symptoms. Contacted the Dr's numerous times x rays show pneumonia. A and e visit as in agony on right side, 2nd xray was worse antibiotics not working. CT scan the following day to be told 28th Dec I have a large mass lung
Rubyjean28
in
The Roy Castle Lung Cancer Foundation
6 months ago
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Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
10 months ago
COVID
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
oznaf
in
PMRGCAuk
9 months ago
New Hepatitis C page - British Liver Trust website
The
NEW
hepatitis C page is now live on the website. We're delighted to say that this came about with the involvement of one of our forum members, for which we're very grateful. Here's the link: https://britishlivertrust.org.uk/information-and-support/living-with-a-liver-condition/liver-conditions
The
NEW
hepatitis C page is now live on the website. We're delighted to say that this came about with the involvement of one of our forum members, for which we're very grateful. Here's the link: https://britishlivertrust.org.uk/information-and-support/living-with-a-liver-condition/liver-conditions
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Anyone more sore with this cold weather?
I am struggling lately, its a bad flare thats effecting everywhere, could the cold weather be making me worse?
I am struggling lately, its a bad flare thats effecting everywhere, could the cold weather be making me worse?
VeronicaF
in
NRAS
6 months ago
Covid vaccine
I've been offered a covid jab as I work with vulnerable people but I'm currently experiencing a real flare up of my asthma. Has anyone else had this situation and gone ahead with the jab? Did it make it worse? I'm thinking to postpone the vaccination.
I've been offered a covid jab as I work with vulnerable people but I'm currently experiencing a real flare up of my asthma. Has anyone else had this situation and gone ahead with the jab? Did it make it worse? I'm thinking to postpone the vaccination.
Jayarc
in
Asthma Community Forum
9 months ago
hospitalised with suspected pneumonia
I’m in hospital I’m very sick. Just a qq is it likely my thyroid treatment isn’t right whilst I’m unwell and should I ssk to see an endo. As I write this I know it will be pointless. thanks 🤣🤣
I’m in hospital I’m very sick. Just a qq is it likely my thyroid treatment isn’t right whilst I’m unwell and should I ssk to see an endo. As I write this I know it will be pointless. thanks 🤣🤣
jsy_girl
in
Thyroid UK
6 months ago
Covid vaccine - symptoms worsening?
Good evening. Wondering if anyone has experienced AF symptoms worsening after a covid vaccine? I have paroxysmal AF and am in day 6 of AF…usual symptoms so far (palpitations, high heart rate, breathlessness when active, occasional lightheadedness) so nothing out of the ordinary. However I had the covid
Good evening. Wondering if anyone has experienced AF symptoms worsening after a covid vaccine? I have paroxysmal AF and am in day 6 of AF…usual symptoms so far (palpitations, high heart rate, breathlessness when active, occasional lightheadedness) so nothing out of the ordinary. However I had the covid
Delwynnie
in
AF Association
9 months ago
FeNO result of 39
I have not got an asthma diagnosis, but had inhalers (salbutamol, Clenil, Fostair) for 18 months after suspected Covid in March 2020. I stopped using them after I stopped noticing a benefit, and by then I had a breast cancer diagnosis so I had more to worry about. My breathing seemed fine other than
I have not got an asthma diagnosis, but had inhalers (salbutamol, Clenil, Fostair) for 18 months after suspected Covid in March 2020. I stopped using them after I stopped noticing a benefit, and by then I had a breast cancer diagnosis so I had more to worry about. My breathing seemed fine other than
AirIsUnderrated
in
Asthma Community Forum
9 months ago
Should I postpone Covid booster?
Apologies this question was asked recently but can’t find it now! Do you think I should postpone my covid jab tomorrow? Have been fibrillating for 9 days. Felt fairly weary to start with though pulse rate not above 100. Still out of rhythm but feel I am getting better every day and don't want it to
Apologies this question was asked recently but can’t find it now! Do you think I should postpone my covid jab tomorrow? Have been fibrillating for 9 days. Felt fairly weary to start with though pulse rate not above 100. Still out of rhythm but feel I am getting better every day and don't want it to
Gloriousgarden
in
AF Association
9 months ago
autumn covid booster and prednisalone
Hi does anyone know if you can have the covid booster whilst taking prednisolone? what is the lowest dose of prednisolone that the covid booster will work with ? I am worried that prednisolone will stop the covid booster from working .. please advise asap many thanks
Hi does anyone know if you can have the covid booster whilst taking prednisolone? what is the lowest dose of prednisolone that the covid booster will work with ? I am worried that prednisolone will stop the covid booster from working .. please advise asap many thanks
lindyloo2018
in
NRAS
9 months ago
Does RA exist in the hips?
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
I've had fibromyalgia for around 20 years so am familiar with the symptoms. RA was diagnosed 4 years ago and I am now on Sarilumab jabs. I had a terrible flare around 4 weeks ago and couldn't get through to Rheumatology by any means. The pain in my hips was like fire and I had no real sleep for 2
tazman3
in
NRAS
9 months ago
Allergy to prednisolone?
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
ccccc
in
Asthma Community Forum
9 months ago
NEIGHBOUR JUST GOT COVID VAX
Quick one - I think. My neighbour, who helps me during these back issues, just got a Covid booster and Flu vax yesterday. Is it possible for her to transmit the virus to me? Is "immune compromised" the correct term for us PMR folk? Am I being paranoid? TIA
Quick one - I think. My neighbour, who helps me during these back issues, just got a Covid booster and Flu vax yesterday. Is it possible for her to transmit the virus to me? Is "immune compromised" the correct term for us PMR folk? Am I being paranoid? TIA
Missus835
in
PMRGCAuk
9 months ago
Covid - Beware Getting Treatment - An Update
So you will have all read about my ordeal regarding the acquisition of Anti Virals and my last post on Monday the 9th was that I had been contacted by a NHS Nurse who advised me that a Doctor would be calling me by 2.30pm that day. Well he did at 4.45pm went through the checks and advised me the local
So you will have all read about my ordeal regarding the acquisition of Anti Virals and my last post on Monday the 9th was that I had been contacted by a NHS Nurse who advised me that a Doctor would be calling me by 2.30pm that day. Well he did at 4.45pm went through the checks and advised me the local
Investigator1
in
Vasculitis UK
9 months ago
Scientists Offer a New Explanation for Long Covid
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
LAJ12345
in
Cure Parkinson's
9 months ago
COVID vaccine - old stock in use in the UK
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
flamboyant_hawking
in
MPN Voice
9 months ago
Better after covid
I've had PMR for more that two years, am now down to 2.5 mg. A month ago I also had covid, like a very bad cold plus diarrhea. It lasted two weeks. Now I'm recovered from the covid I feel better than I have in more than a year. That dragging feeling of weakness and fatigue I've had for months has gone
I've had PMR for more that two years, am now down to 2.5 mg. A month ago I also had covid, like a very bad cold plus diarrhea. It lasted two weeks. Now I'm recovered from the covid I feel better than I have in more than a year. That dragging feeling of weakness and fatigue I've had for months has gone
Janbay46
in
PMRGCAuk
9 months ago
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