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Jakafi side effects
Hi everyone, I’m 62, diagnosed w et about 12 years ago, pv a few years later. Terrible itching, esp in high temperatures, was driving me crazy. I got on Jakafi for the itching, and that’s been great. But my immune system has gone to hell—weird infections, bimonthly bronchitis, painful heel bursitis
Hi everyone, I’m 62, diagnosed w et about 12 years ago, pv a few years later. Terrible itching, esp in high temperatures, was driving me crazy. I got on Jakafi for the itching, and that’s been great. But my immune system has gone to hell—weird infections, bimonthly bronchitis, painful heel bursitis
Chicagopv
in
MPN Voice
6 years ago
PV and/or ET - JAK2+ - currently asymptomatic
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
This is my first posting with the support group. I was diagnosed with PV in March 2018 where at that point my hematocrit was 62 and of course the hemoglobin was also elevated. However, all other data within the CBC were normal to near normal at the time of diagnosis. After four (4) phlebotomies of the
Pat032018
in
MPN Voice
6 years ago
Prostap injections
Hi, i have stage 4 endometriosis. i had an ablation and excision surgery in june where they removed endometriosis around my ovaries ,womb , uterus, bladder, and my bowel system ever since i have been in so much pain. Iv also been trying to conceive for 5 years now so we were planning to go through ivf
Hi, i have stage 4 endometriosis. i had an ablation and excision surgery in june where they removed endometriosis around my ovaries ,womb , uterus, bladder, and my bowel system ever since i have been in so much pain. Iv also been trying to conceive for 5 years now so we were planning to go through ivf
Ishret87
in
Endometriosis UK
6 years ago
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15 yr old ADHD son w/Oppositional behaviors
Brand new here! My son was diagnosed just this year, after a few years of struggling w/school. Most pressing issues are his verbal outbursts and disrespect for mostly me, sometimes Dad & rules in general. He's on adderall XR 10-15 mg/day, tried Concerta & natural Fish Oil route to no avail. Getting
Brand new here! My son was diagnosed just this year, after a few years of struggling w/school. Most pressing issues are his verbal outbursts and disrespect for mostly me, sometimes Dad & rules in general. He's on adderall XR 10-15 mg/day, tried Concerta & natural Fish Oil route to no avail. Getting
ConcernedCaliMom
in
CHADD's ADHD Parents Together
6 years ago
Surgery after prostap injections
Hi ladies. So I had an appointment with consultant last week. He wants to operate again but said because I’ve had another course of prostap I have to wait 9 months to get fully out of my system ready for operation. Has anyone ever been told this? He said I can’t take anything such as the contraceptive
Hi ladies. So I had an appointment with consultant last week. He wants to operate again but said because I’ve had another course of prostap I have to wait 9 months to get fully out of my system ready for operation. Has anyone ever been told this? He said I can’t take anything such as the contraceptive
Laura_T
in
Endometriosis UK
6 years ago
Is the levodopa in sinement any different then the levodopa in mucuna?
This may be a stupid question but Is the levodopa in sinement any different then the levodopa in mucuna? one synthetic vs one natural? the levodopa crosses the blood brain barrier with inclusion of carbidopa and the levodopa in mucuna has nothing aiding this transfer thus less reaches the brain (unless
This may be a stupid question but Is the levodopa in sinement any different then the levodopa in mucuna? one synthetic vs one natural? the levodopa crosses the blood brain barrier with inclusion of carbidopa and the levodopa in mucuna has nothing aiding this transfer thus less reaches the brain (unless
pdslayer
in
Cure Parkinson's
6 years ago
Prostap
I had my laparoscopy a couple of months ago where Endometriosis was found. I only really had about 2 weeks of relief after surgery and I’m still in quite a lot of pain. I’ve been put on prostap. I had my first month injection and now I’m on my second which is a three month injection. I still haven’t
I had my laparoscopy a couple of months ago where Endometriosis was found. I only really had about 2 weeks of relief after surgery and I’m still in quite a lot of pain. I’ve been put on prostap. I had my first month injection and now I’m on my second which is a three month injection. I still haven’t
Jessica-Rae
in
Endometriosis UK
6 years ago
Good morning amazing women!!!
Hi, I had my major op done in 2005, had a mirena put in and taken out in 2009. After that was smooth sailing until last year (last year cos I had IVF on NHS and it completely messed my insides up!!!) Anyway, The mirena worked well for me but I changed my diet drastically cos of my bowel movements. Sometimes
Hi, I had my major op done in 2005, had a mirena put in and taken out in 2009. After that was smooth sailing until last year (last year cos I had IVF on NHS and it completely messed my insides up!!!) Anyway, The mirena worked well for me but I changed my diet drastically cos of my bowel movements. Sometimes
LovingVibes
in
Endometriosis UK
6 years ago
About fish oil
https://peoplespharmacy.us8.list-manage.com/track/click?u=d17faea85adc6e65b1022ef28&id=8b2b5029e0&e=53f00e2ba2
https://peoplespharmacy.us8.list-manage.com/track/click?u=d17faea85adc6e65b1022ef28&id=8b2b5029e0&e=53f00e2ba2
fairgo45
in
Atrial Fibrillation Support
6 years ago
Reposting of comments on depression and the gut. How to heal the gut naturally
The following has been copied from another thread and covers issues about the role of the gut in depression, and ACAC has such useful advice here about how to heal the gut that I have reposted it for people who missed that thread. My husband has had depression and anxiety for quite a few years prior
The following has been copied from another thread and covers issues about the role of the gut in depression, and ACAC has such useful advice here about how to heal the gut that I have reposted it for people who missed that thread. My husband has had depression and anxiety for quite a few years prior
LAJ12345
in
Cure Parkinson's
6 years ago
Food Reaction Tests
My early symptoms for what they were are in remission. I still have a swollen finger, but the generalised pain has gone. My ankles and knees are occasionally a bit achy, but my stiff hands in the morning have gone away. I can drive without discomfort and don't have to remove my shoes in the office.
My early symptoms for what they were are in remission. I still have a swollen finger, but the generalised pain has gone. My ankles and knees are occasionally a bit achy, but my stiff hands in the morning have gone away. I can drive without discomfort and don't have to remove my shoes in the office.
alexask
in
NRAS
6 years ago
Supplements for Hashi/Hypo
Hi All Can anybody please give me supplements I should be taking, Currently I take Iron, vitamin c, vitamin d, Cod liver oil and b complex vitamins, b12 lozenge. Should I maybe add magnesium and selenium? I don’t take them and wondered what ones are good to try and anything else to help me with energy
Hi All Can anybody please give me supplements I should be taking, Currently I take Iron, vitamin c, vitamin d, Cod liver oil and b complex vitamins, b12 lozenge. Should I maybe add magnesium and selenium? I don’t take them and wondered what ones are good to try and anything else to help me with energy
mistygrey
in
Thyroid UK
6 years ago
Fungal bite infection of scalp
In July 23 2016 @5pm a 2 fang roundish black bug sting me in my scalp on top right side of my head. Since that my hair roots always black when wash my hair it clog together like wet candy flossh and knots up like cheap sewing cotton and my hair feels like extra dry straw. When it grows my hair gets so
In July 23 2016 @5pm a 2 fang roundish black bug sting me in my scalp on top right side of my head. Since that my hair roots always black when wash my hair it clog together like wet candy flossh and knots up like cheap sewing cotton and my hair feels like extra dry straw. When it grows my hair gets so
Blobie
in
Fungal Infection Trust
6 years ago
Astha getting worse
2 weeks ago had a cough for a week was doing things that did not help like clearing out the attic that has od fiberglass insulation so thought that was the cough Spent a few nights sitting in a chair rather then lying down in a bed then woke up one morning coughing constantly al coughing out unable
2 weeks ago had a cough for a week was doing things that did not help like clearing out the attic that has od fiberglass insulation so thought that was the cough Spent a few nights sitting in a chair rather then lying down in a bed then woke up one morning coughing constantly al coughing out unable
Gerl
in
Asthma Community Forum
6 years ago
Supplement list
Sorry I've just realised a couple of people asked what supplements I take and I forgot to post! Basically to reiterate previous advice if you decide to take any supplements, you should really check with your Doc/Onc team especially if you are on any meds before taking supplements in case of a side effect
Sorry I've just realised a couple of people asked what supplements I take and I forgot to post! Basically to reiterate previous advice if you decide to take any supplements, you should really check with your Doc/Onc team especially if you are on any meds before taking supplements in case of a side effect
Emsymits
in
My Ovacome
6 years ago
All I need is some honest advise
Im 28, overweight (put 2 stone on this year due to drinking energy drinks and esting take away) and up until about 3 months ago hadn't seen a DR in about 6 years other than when my partner gave birth. My apologies for the length but please read. I was short of breath and had some weird pain in my
Im 28, overweight (put 2 stone on this year due to drinking energy drinks and esting take away) and up until about 3 months ago hadn't seen a DR in about 6 years other than when my partner gave birth. My apologies for the length but please read. I was short of breath and had some weird pain in my
Turtle90
in
British Heart Foundation
6 years ago
DHEA Update
Well had a scan at 8+5w the sac was abnormal the worse out of the 3 pregnancies I really thought taking these supplements had worked as I got pregnant quickly. So obviously we’re devastated but maybe abit desensitised as we tried not to attach ourselves emotionally to this pregnancy. 😢 I've read through
Well had a scan at 8+5w the sac was abnormal the worse out of the 3 pregnancies I really thought taking these supplements had worked as I got pregnant quickly. So obviously we’re devastated but maybe abit desensitised as we tried not to attach ourselves emotionally to this pregnancy. 😢 I've read through
Hidden
in
Fertility Network UK
6 years ago
Vitamin D And Fish Oil Supplements Disappoint In Long-Awaited Study Results
"The trials involved nearly 26,000 healthy adults age 50 and older with no history of cancer or heart disease who took part in the VITAL research project. Twenty percent of the participants were African-American." Vitamin D And Fish Oil Supplements Disappoint In Long-Awaited Study Results Https://www.npr.org
"The trials involved nearly 26,000 healthy adults age 50 and older with no history of cancer or heart disease who took part in the VITAL research project. Twenty percent of the participants were African-American." Vitamin D And Fish Oil Supplements Disappoint In Long-Awaited Study Results Https://www.npr.org
cesanon
in
Advanced Prostate Cancer
6 years ago
Taking cod liver oil and fish oil
Hi, my name is Scott Hughes. I was hoping someone could help me answer a question that is bugging me. I have ordered a packet of omega-3 fish oil capsules and a packet of cod liver oil. Now, I know that you are not supposed to take both capsules together, but is there any harm, for example, taking 1
Hi, my name is Scott Hughes. I was hoping someone could help me answer a question that is bugging me. I have ordered a packet of omega-3 fish oil capsules and a packet of cod liver oil. Now, I know that you are not supposed to take both capsules together, but is there any harm, for example, taking 1
scottyhighstyle
in
British Heart Foundation
6 years ago
Prostap and periods
I had a monthly injection from February until end of June, 6 in total. I’ve not yet lost the weight I gained, but thankfully I only went up about a size and a half in clothes. My skin got better toward the last injection and is miles better since, although I get spotty on my chest now and I never used
I had a monthly injection from February until end of June, 6 in total. I’ve not yet lost the weight I gained, but thankfully I only went up about a size and a half in clothes. My skin got better toward the last injection and is miles better since, although I get spotty on my chest now and I never used
Hidden
in
Endometriosis UK
6 years ago
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