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EBMT Transplant Patient and Family Day
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
Mazcd
MPNVoice
in
MPN Voice
11 years ago
Brilliant News
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Jennie_Barnes
in
MPN Voice
11 years ago
Not really a question but a late report back on alternative treatment for dry mouth
Before Christmas, in answer to someone's question (think it was danacetz (don't think I've spelled that correctly, sorry) I said that I'd been advised to try Thayers dry mouth lozenges as an alternative to Glandosane etc. They are sugar free, diabetic safe, contain no preservatives or animal products
Before Christmas, in answer to someone's question (think it was danacetz (don't think I've spelled that correctly, sorry) I said that I'd been advised to try Thayers dry mouth lozenges as an alternative to Glandosane etc. They are sugar free, diabetic safe, contain no preservatives or animal products
BarbJ
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
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Do all Behcets sufferers mouth ulcers leave scars?
Hi I'm new and trying to get a diagnosis after suffering many painful symptoms for years. I attended the Liverpool Behcets clinic and was told its not Behcets as my mouth ulcers haven't left scars. Do all Behcets sufferers mouth ulcers leave scars? Is there anybody who doesn't have scars from mouth ulcers
Hi I'm new and trying to get a diagnosis after suffering many painful symptoms for years. I attended the Liverpool Behcets clinic and was told its not Behcets as my mouth ulcers haven't left scars. Do all Behcets sufferers mouth ulcers leave scars? Is there anybody who doesn't have scars from mouth ulcers
Freebird
in
Behçet's UK
12 years ago
I was diagnosed with Lupus in March 2012.... Mouth ulcers seem to be a problem.
I also gave up smoking 3 months ago and I now seem to be getting more mouth ulcers and salivating alot more, my gums also seem to be bleeding more too! is this to do with the lupus or not smoking? I really need more information on Lupus, not even the rheumatologist seems to be able to answer my questions
I also gave up smoking 3 months ago and I now seem to be getting more mouth ulcers and salivating alot more, my gums also seem to be bleeding more too! is this to do with the lupus or not smoking? I really need more information on Lupus, not even the rheumatologist seems to be able to answer my questions
mishagirl
in
LUPUS UK
12 years ago
New-latest- updated-exercise-guidelines-for-cancer-survivors
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Robertlowe
in
The Roy Castle Lung Cancer Foundation
12 years ago
Does anyone else have a persistent sore mouth that they think is associated with reflux?
Having developed reflux since my gastroscopy, I am plagued with a sore mouth - red tongue and roof of mouth. Lansoprazole and omeprazole have both made this worse, so I feel I can't medicate for the reflux. Any ideas out there? Thanks.
Having developed reflux since my gastroscopy, I am plagued with a sore mouth - red tongue and roof of mouth. Lansoprazole and omeprazole have both made this worse, so I feel I can't medicate for the reflux. Any ideas out there? Thanks.
Hidden
in
Gluten Free Guerrillas
12 years ago
why won't my doctor give me anything for the mouth ulcers
been to out of hours doctors as I've have ulcers in my throat he told me to take morphine and wait to see the doctor at the hospital
been to out of hours doctors as I've have ulcers in my throat he told me to take morphine and wait to see the doctor at the hospital
samhawks
in
Behçet's UK
12 years ago
talking
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Hidden
in
Anxiety Support
12 years ago
Very sore mouth and prone to ulcers!
Hi I have COPD, and have enjoyed the content and picking up nuggets of information from the site. I posted earlier, but my question doesn't appear anywhere! Does anyone else suffer a very sore mouth, tender and prone to ulcers? Any one can give some ideas would be good. I use 3 inhalers one of those
Hi I have COPD, and have enjoyed the content and picking up nuggets of information from the site. I posted earlier, but my question doesn't appear anywhere! Does anyone else suffer a very sore mouth, tender and prone to ulcers? Any one can give some ideas would be good. I use 3 inhalers one of those
KatieTrin
in
Lung Conditions Community Forum
12 years ago
Has anyone here had bone marrow transplant for lupus?
fragorosvar
in
LUPUS UK
12 years ago
New and in the diagnosis process
Hi everyone! I am so grateful to have found this site!! I hope you don't mind me being here even though I am in the US. I don't have my diagnosis yet, but we are in the process. My name is Wendy, I'm 30 yrs old, mom of 3 kids (3, 5, and almost 12). I stay home with them now which is a blessing
Hi everyone! I am so grateful to have found this site!! I hope you don't mind me being here even though I am in the US. I don't have my diagnosis yet, but we are in the process. My name is Wendy, I'm 30 yrs old, mom of 3 kids (3, 5, and almost 12). I stay home with them now which is a blessing
wendya432
in
Behçet's UK
12 years ago
Happy birthday to me
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
sulka
in
Cure Parkinson's
12 years ago
People experiences.
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
HAIRBEAR_UK
Administrator
in
CLL Support
12 years ago
So what is a Neutropenic Diet? Why should we follow it post treatment?
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
Cllcanada
Top Poster CURE Hero
in
CLL Support
12 years ago
Is there anyone who'se had a stem cell transplant prepared to help me?
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
honeycombe3
in
Cure Parkinson's
12 years ago
Blood
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
alyj
in
LUPUS UK
12 years ago
Dentists !!!!!!!....... I was looking for answers and some advice; however I left the surgery non the wiser !!!!!....Need to rant !!!!
I'm fortunate that my lips are still quite full,...... but I have noticed that my mouth seems to be getting smaller and I can't open it as wide.....Today I felt like the dentist was going rip my mouth apart; and he was repeatedly asking me to... OPEN MY MOUTH WIDER !!!!!!!..When he finally took his
I'm fortunate that my lips are still quite full,...... but I have noticed that my mouth seems to be getting smaller and I can't open it as wide.....Today I felt like the dentist was going rip my mouth apart; and he was repeatedly asking me to... OPEN MY MOUTH WIDER !!!!!!!..When he finally took his
wartsandall
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Help with thrush!
Hi. I take symbicort twice daily and use bricanyl as and when and generally things are well controlled at the moment. However, I've had a problem with my throat/voice for about 6 months now. It started with a throat infection that wouldn't go and after 7(!!!!) weeks of antibiotics I had thrush in
Hi. I take symbicort twice daily and use bricanyl as and when and generally things are well controlled at the moment. However, I've had a problem with my throat/voice for about 6 months now. It started with a throat infection that wouldn't go and after 7(!!!!) weeks of antibiotics I had thrush in
Hidden
in
Asthma Community Forum
12 years ago
Cold Sores
Hi all. Have had a rotten cold sore for 2 weeks. Slowly getting better. Have noticed I am getting them more often. Got to be Lupus related me thinks. Has anyone else suffered from these horrible sores? there always in the same area of the mouth and very painful and unsightly. Anyone got any ideas as
Hi all. Have had a rotten cold sore for 2 weeks. Slowly getting better. Have noticed I am getting them more often. Got to be Lupus related me thinks. Has anyone else suffered from these horrible sores? there always in the same area of the mouth and very painful and unsightly. Anyone got any ideas as
caz59
in
LUPUS UK
12 years ago
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