Search
Search
About
Log in
Join
Experiences with
Venous ulcer compression system
Posts
Communities
937 public posts
Filter results
Cold Sores
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
I was diagnosed in 2010 with CLL and on W&W. I am now troubled with persistant cold sores on my nose or mouth. Tried the usual creams but still come back. Does any one have the same problem?
AdaYoung
in
CLL Support
5 years ago
27 days today
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Hallo! Just a quick catch up on the no smoking. It’s 27 days today and I’m doing okay. Something I have had which is getting better was a sore mouth after giving up .... sore gums, ulcers, sensitive teeth. I read that this is really normal and the blood flow coming back etc. It has got heaps better
Stacey48
9 Months Smoke Free
in
No Smoking Day
5 years ago
Stem cell webinar by MJF and 1 unanswered question
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
Just finished listening to the MJF stem cell seminar. It was not particularly educational neither it gave any reason for optimism. Well, judge for yourself: slides are available on MJF site. I asked the panel a question but didn't get an answer. The question was: " It was reported that people who
felixned
in
Cure Parkinson's
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Sores back of throat
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Sammymoat1986
in
LUPUS UK
5 years ago
A little (D)hazed and confused 🙂
It has been a busy week at work with an even busier weekend on call coming up but I still managed to get my 3 runs in this week - a short speed interval run on Monday, a (not so) easy coulee run with hubby on Wednesday (ah yes, I remember what running with hubby is like - one speed - but I ran behind
It has been a busy week at work with an even busier weekend on call coming up but I still managed to get my 3 runs in this week - a short speed interval run on Monday, a (not so) easy coulee run with hubby on Wednesday (ah yes, I remember what running with hubby is like - one speed - but I ran behind
SaskAlliecat
Graduate10
in
Bridge to 10K
5 years ago
living with lymphedema for 22 years - 62 years old
Hi everyone ! Im glad to have connected with this community. My lymphedema appeared 22 years ago, It might be primary- I had a couple of cellulitis episodes in my right leg in 1997, not sure if that was the cause or because of weakness in my lymphatics. I have struggled with being compliant - lymphedema
Hi everyone ! Im glad to have connected with this community. My lymphedema appeared 22 years ago, It might be primary- I had a couple of cellulitis episodes in my right leg in 1997, not sure if that was the cause or because of weakness in my lymphatics. I have struggled with being compliant - lymphedema
rexygirl
in
LSN
5 years ago
Stem Cell Transplant That didn’t put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
HOUSTON WE HAVE A PROBLEM
I have had RA since 2016. I was on Gollimumab for the last 9 months. I have had a dry mouth and eyes for a few years now but since January this year it has got progressively worse. By March it was intolerable with ulcers, a smooth tongue, loss of taste, unable to eat normal foods only soft diet and
I have had RA since 2016. I was on Gollimumab for the last 9 months. I have had a dry mouth and eyes for a few years now but since January this year it has got progressively worse. By March it was intolerable with ulcers, a smooth tongue, loss of taste, unable to eat normal foods only soft diet and
fantail
in
NRAS
5 years ago
Ulcers on tonsils killing my morale
Has anyone suffered with huge white ulcers on their lower tonsils? Went doctors and she took a quick look and said tonsillitis. Had what looked like lots of them now I am left with 1 on either tonsil. I can't work, eat, sleep and I'm feeling down. No energy, constant sharp shooting pains on both sides
Has anyone suffered with huge white ulcers on their lower tonsils? Went doctors and she took a quick look and said tonsillitis. Had what looked like lots of them now I am left with 1 on either tonsil. I can't work, eat, sleep and I'm feeling down. No energy, constant sharp shooting pains on both sides
atkinsd
in
Behçet's UK
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
I think my husband has Behcet's
I think my husband has Behcet's. He has had recurring mouth ulcers since September 2017 (when we got back from our honeymoon). He probably has new a mouth ulcer every other week. He is from Middle eastern decent. Other symptom he has are skin lesions - had them before I met him, headaches which started
I think my husband has Behcet's. He has had recurring mouth ulcers since September 2017 (when we got back from our honeymoon). He probably has new a mouth ulcer every other week. He is from Middle eastern decent. Other symptom he has are skin lesions - had them before I met him, headaches which started
fatimaamir
in
Behçet's UK
5 years ago
ED after Leukaemia (CML)
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
Transplant birthday/Mental Health Awareness Week/Lung Transplant Consultation
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 years ago
1
...
18
19
20
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
MPN Voice
137 results
CLL Support
125 results
LUPUS UK
69 results
View top 10 communities
Sort by
Most Relevant
Newest