Hi everyone ! Im glad to have connected with this community. My lymphedema appeared 22 years ago, It might be primary- I had a couple of cellulitis episodes in my right leg in 1997, not sure if that was the cause or because of weakness in my lymphatics. I have struggled with being compliant - lymphedema keeps taking over more of my life. I've gone from knee high compression over the counter, to custom elvarex, to thigh highs, shorts, night garments and flexitouch pumping. I was lucky enough to just use compression during the week while I was working, but now i need to wear it on the weekends also. It feels like a prison sentence. I know i shouldn't complain, my condition is mild compared to what many others are suffering with- but I long to use compression less. I am to the point of considering surgery. That's my story.
living with lymphedema for 22 years - 62 years old - LSN
living with lymphedema for 22 years - 62 years old
Hi rexygirl - where are you in the world? This site is based in London. There are people here from all over the world.
Have you looked into criteria, costs etc for surgery in US? Also there are some good sites/forums etc. In the States, I think one is Lymphoedema Education Research and Development.
Hello ! I have started looking into the costs and the various surgeons in the US. Unfortunately, my insurance may pick up some of the costs of formal testing (which i have never had) after my high deductible and out of network costs! I'm guessing that I could be spending $50,000 out of pocket. I feel that I have to try to do something more than MLD twice a month and compression day and night. I"m afraid of what will happen to my leg in the next 20 years of my life.
open toe or closed toe Compression Stocking for Lymphedema?
Does anyone with lymphedema suffer from severe ankle and foot pain?
Born with Lymphedema
Years with no treatment.
Lymphedema out of control after injury
