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Uva Ursi
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Should I take this Urso?
Went to gp today to ask about the itching I get on a night time. I have PBC/AIH crossover. Doc gave me some Urso to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC. My dilemma now is should I take them or not....I am
Went to gp today to ask about the itching I get on a night time. I have PBC/AIH crossover. Doc gave me some Urso to take at night, but I always read the information leaflet and it says "Do not take if you have any other liver condition than PBC. My dilemma now is should I take them or not....I am
Alley27
in
PBC Foundation
12 years ago
Itching and Ursodiol
Hi! I'm new to this group & was dx'd with PBC in April 12. I have been dealing with joint pain...fingers, knees etc. I don't have RA my Dr thinks its just the PBC. I have been taking 2 Ursodiol pills daily but my dr has bumped ne up to 3 500 mg pills a day. Dr thinks cause my alka phos is still in
Hi! I'm new to this group & was dx'd with PBC in April 12. I have been dealing with joint pain...fingers, knees etc. I don't have RA my Dr thinks its just the PBC. I have been taking 2 Ursodiol pills daily but my dr has bumped ne up to 3 500 mg pills a day. Dr thinks cause my alka phos is still in
general1
in
PBC Foundation
12 years ago
Increased sensitivity to sunlight?
Firstly I'd like to say "hi" - I am new to the site today. I was wondering if anyone else seems to be having any issues with sensitivity to sunlight? I was diagnosed with PBC last year and have been on urso since September. I am also currently taking an antibiotic (erythromycin) for a skin condition
Firstly I'd like to say "hi" - I am new to the site today. I was wondering if anyone else seems to be having any issues with sensitivity to sunlight? I was diagnosed with PBC last year and have been on urso since September. I am also currently taking an antibiotic (erythromycin) for a skin condition
RockPrincess
in
PBC Foundation
12 years ago
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Anyone suffer from headaches as a side effect to the Urso????
Judy48
in
PBC Foundation
12 years ago
Does anyone else out there have difficulty in getting specialists to talk openly about blood results?
My previous consultant used to flip up a table onto the screen and then immediately flick on to the lft's which were showing to improve. I saw two lines of red figures and when I asked what they were he said it was because of the steroids and not to worry. Now I have been taken off the steroids and put
My previous consultant used to flip up a table onto the screen and then immediately flick on to the lft's which were showing to improve. I saw two lines of red figures and when I asked what they were he said it was because of the steroids and not to worry. Now I have been taken off the steroids and put
SamT
in
PBC Foundation
12 years ago
Anyone take generic URSO? There is a huge price difference from brand name.
pomice
in
PBC Foundation
12 years ago
Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
SNOOZY
in
PBC Foundation
12 years ago
Does anyone have problems taking Urso, I am having mega problems with diarrohea and stomach pain,
I stopped taking the tablets and within 2 days I started to improve, I decided to retake them after a week and within 2 hours the problems returned, now I don't know what to do, any advice out there?
I stopped taking the tablets and within 2 days I started to improve, I decided to retake them after a week and within 2 hours the problems returned, now I don't know what to do, any advice out there?
Jaycee
in
PBC Foundation
12 years ago
AHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!
I recently after being diagnosed with pbc, underwent an enoscopy. They discovered that i also had a hiatus hernia, and a tear in my oesophagus. I therefore had a very bad infection in my stomach. so, i go to the doctor on friday, expecting to start Urso medication, to get asked why i wanted to start
I recently after being diagnosed with pbc, underwent an enoscopy. They discovered that i also had a hiatus hernia, and a tear in my oesophagus. I therefore had a very bad infection in my stomach. so, i go to the doctor on friday, expecting to start Urso medication, to get asked why i wanted to start
posh
in
PBC Foundation
12 years ago
Jaundice
Hi all Just wondered if anyone has had of got Jaundice and if so if anyone knows if taking the urso will clear it up? thank you x
Hi all Just wondered if anyone has had of got Jaundice and if so if anyone knows if taking the urso will clear it up? thank you x
chardan
in
PBC Foundation
12 years ago
What is the timescale for you for the review of the urso meds?
Just wondered as apparently I've been informed it is every 6mths. First I had heard of these when I was diagnosed with PBC Dec 2010 as prior had kept away from doctors and urso was the first repeat script I had ever really had. I think 6mths is a bit much in my case as I have bloods currently at a
Just wondered as apparently I've been informed it is every 6mths. First I had heard of these when I was diagnosed with PBC Dec 2010 as prior had kept away from doctors and urso was the first repeat script I had ever really had. I think 6mths is a bit much in my case as I have bloods currently at a
Hidden
in
PBC Foundation
12 years ago
Did everyone have as much trouble getting a definitive diagnosis as I am having?
I've had two biopsies. The first was inconclusive and the second stated AIH, with features of PBC and sclerosing cholangitis. My consultant retired and have just seen my new one (gastro). Blood tests (yet again) because "something else might be causing tiredness." Arghhh!!! The first biopsy evidently
I've had two biopsies. The first was inconclusive and the second stated AIH, with features of PBC and sclerosing cholangitis. My consultant retired and have just seen my new one (gastro). Blood tests (yet again) because "something else might be causing tiredness." Arghhh!!! The first biopsy evidently
SamT
in
PBC Foundation
12 years ago
How many days supply of urso do you get prescribed?
I had to argue my case with my GP over urso as originally he was going to just give me a prescription for 30 days (that is the denomination apparently). I managed to get 90 days but couldn't get more.
I had to argue my case with my GP over urso as originally he was going to just give me a prescription for 30 days (that is the denomination apparently). I managed to get 90 days but couldn't get more.
Hidden
in
PBC Foundation
12 years ago
im confused! specialist confused
hi h ave just been diagnosed with pbc have had a liver biopsy which showed no scarring,but as well as ama antibodies ive got ana antibodies which my doc said are really high so he going to get a second opinion off a liver specialist at newcastle hospital.anyone out there with the anti nuclear antibody
hi h ave just been diagnosed with pbc have had a liver biopsy which showed no scarring,but as well as ama antibodies ive got ana antibodies which my doc said are really high so he going to get a second opinion off a liver specialist at newcastle hospital.anyone out there with the anti nuclear antibody
liverj
in
PBC Foundation
12 years ago
PBC Diagnosed in 2004. Now the itching has started. Advice needed.
My PbC was diagnoswd in 2004. Not many symptoms since except for the tiredness. Told in hospital that my blood results were in "normal limits" although I am now seen every 6 months, have an AFP test and an ultrasound every 6 months too. First went to Gp with complaints about my legs, discloured,
My PbC was diagnoswd in 2004. Not many symptoms since except for the tiredness. Told in hospital that my blood results were in "normal limits" although I am now seen every 6 months, have an AFP test and an ultrasound every 6 months too. First went to Gp with complaints about my legs, discloured,
cazzi
in
PBC Foundation
12 years ago
New to this group.
Hi! All - Found this group thru another forum that I joined 4 1/2 yrs ago (Aug. 2007) when I was diagnosed with AIH/PBC overlap syndrome stage 3. I am now 70 yrs old and hoping to have several more years but if I can do anything to help all you "youngn's" I will be satisfied. -:) I was
Hi! All - Found this group thru another forum that I joined 4 1/2 yrs ago (Aug. 2007) when I was diagnosed with AIH/PBC overlap syndrome stage 3. I am now 70 yrs old and hoping to have several more years but if I can do anything to help all you "youngn's" I will be satisfied. -:) I was
Tumbleweed41
in
PBC Foundation
12 years ago
Gastroenterologist or Hepatologist
Could anyone explain the difference between a Gastroenterologist and a Hepatologist and which one I should see for my PBC if there is a difference. I saw a Gastroenterologist for my diagnosis. He told me I had PBC, told me that the tiredness was nothing to do with the PBC because my liver is not to
Could anyone explain the difference between a Gastroenterologist and a Hepatologist and which one I should see for my PBC if there is a difference. I saw a Gastroenterologist for my diagnosis. He told me I had PBC, told me that the tiredness was nothing to do with the PBC because my liver is not to
Tracy-L
in
PBC Foundation
12 years ago
What is the brand name of your URSO if you had the itch upon starting and how is your prescription for it written.
I can't help wondering what others are on for PBC medication-wise with regards to the URSO. I have the URDOX brand and my GP gives me a prescription with just Ursodeoxycholic Acid and the mgs/tabs per day. Have heard such a thing as generic drugs but not fully sure what that means and if so, are there
I can't help wondering what others are on for PBC medication-wise with regards to the URSO. I have the URDOX brand and my GP gives me a prescription with just Ursodeoxycholic Acid and the mgs/tabs per day. Have heard such a thing as generic drugs but not fully sure what that means and if so, are there
Hidden
in
PBC Foundation
12 years ago
Bile
I have a very dry mouth but for quite a while now (months) I get like a thick bile in the back of my throat which starts me coughing, choking, then can nearly be sick (its completely different from acid reflux). Just wondered if anyone else had anything like this as to whether it might have some relation
I have a very dry mouth but for quite a while now (months) I get like a thick bile in the back of my throat which starts me coughing, choking, then can nearly be sick (its completely different from acid reflux). Just wondered if anyone else had anything like this as to whether it might have some relation
zipitydoo
in
PBC Foundation
12 years ago
Hair loss - thinning hair
I've got positive amas at 320 titre and have beene xperiencing very strange symptoms for over a year now including transient stinging pain - bruising and crucially hair loss. My hair keepsthinning then regrowing - I've been told this is chronic telogen effluvium caused by something. On the pbc front
I've got positive amas at 320 titre and have beene xperiencing very strange symptoms for over a year now including transient stinging pain - bruising and crucially hair loss. My hair keepsthinning then regrowing - I've been told this is chronic telogen effluvium caused by something. On the pbc front
Hidden
in
PBC Foundation
12 years ago
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