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Uva Ursi
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Blood Tests
How often should I have my blood tested in a year? Now attend nurse led clinic once a year instead of liver specialist. Bloods referred to at last appointment were a year old and no request to have more done. Back to clinic in August and GP surgery say they must receive a request from the hospital before
How often should I have my blood tested in a year? Now attend nurse led clinic once a year instead of liver specialist. Bloods referred to at last appointment were a year old and no request to have more done. Back to clinic in August and GP surgery say they must receive a request from the hospital before
jrobertson1
in
PBC Foundation
8 years ago
Horrible dilemma
I,ve been prescribed urso, but haven't started it. I emailed the manufacturer to ask them exactly where they sourced it from, as i,m a strict vegan. The answer was is that they source it from cattle from the slaughter house. If i decide not to take it, does anyone know of alternatives, or what the result
I,ve been prescribed urso, but haven't started it. I emailed the manufacturer to ask them exactly where they sourced it from, as i,m a strict vegan. The answer was is that they source it from cattle from the slaughter house. If i decide not to take it, does anyone know of alternatives, or what the result
MissusTee
in
PBC Foundation
8 years ago
Symptom of PBC or URSO?
Hi - This may be a bit TMI but I'm wondering if this additional gas and flatulence is caused by the URSO or is this a symptom of the PBC. I haven't had the diarriah but a lot of gas. it's so uncomfortable. Each day I take my 3 URSO pills, 2 fibre pills, reactine (for the itch) I need this constant
Hi - This may be a bit TMI but I'm wondering if this additional gas and flatulence is caused by the URSO or is this a symptom of the PBC. I haven't had the diarriah but a lot of gas. it's so uncomfortable. Each day I take my 3 URSO pills, 2 fibre pills, reactine (for the itch) I need this constant
Becca75
in
PBC Foundation
8 years ago
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Questran
Hello, I've been itching more since February when I think I had a virus, my asthma so kicked off and I'm more fatigued. Consultant this week put me on increased urso and also prescribed Questran for the itch. I'm just wondering if anyone else is on it? Do you find it helps?
Hello, I've been itching more since February when I think I had a virus, my asthma so kicked off and I'm more fatigued. Consultant this week put me on increased urso and also prescribed Questran for the itch. I'm just wondering if anyone else is on it? Do you find it helps?
Hidden
in
PBC Foundation
8 years ago
Newly Diagnosed
Hi - I had written a post introducing myself the day after I was diagnosed, but I can't find it anywhere, so I'm thinking I must have done it wrong. Anyway, I'm Rebecca. I'm 41 and a single mom with a 9 yr old boy. I have had high (flagged HI) liver numbers since 2010 and I brought to three famly dr's
Hi - I had written a post introducing myself the day after I was diagnosed, but I can't find it anywhere, so I'm thinking I must have done it wrong. Anyway, I'm Rebecca. I'm 41 and a single mom with a 9 yr old boy. I have had high (flagged HI) liver numbers since 2010 and I brought to three famly dr's
Becca75
in
PBC Foundation
8 years ago
Newly diagnosed and concerned about pain
Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've started Urso treatment, and my blood tests show that I'm responding well to it. My LET'S are slowly getting better. However, last month I had awful pain over the liver area and nausea lasting 3 days. I assumed it was down to one
Hi Everyone, I am newly diagnosed with PBC (diagnosed December 2015) I've started Urso treatment, and my blood tests show that I'm responding well to it. My LET'S are slowly getting better. However, last month I had awful pain over the liver area and nausea lasting 3 days. I assumed it was down to one
Hibbsy
in
PBC Foundation
8 years ago
Second hepatology appointment
Hi just thought I would update you on my progress, I have now been prescribed the urso, x3 per day. I am now waiting on the liver biopsy date, my specialist wants me to wait to take the urso until after the biopsy as the urso may change the biopsy findings. I have also been given a cream for the itch
Hi just thought I would update you on my progress, I have now been prescribed the urso, x3 per day. I am now waiting on the liver biopsy date, my specialist wants me to wait to take the urso until after the biopsy as the urso may change the biopsy findings. I have also been given a cream for the itch
Twinkle26
in
PBC Foundation
8 years ago
Treatment and advice
Hello, My mother was diagnosed with PBC 2 years ago. She has been taking Urso for about a year now: 3 capsules before bed (she is about 90 kg). Her bilirubin is still around 35-40 but the doctor says that it would probably stay that way. AST/ALT/GGT have all come down. How long is she supposed to
Hello, My mother was diagnosed with PBC 2 years ago. She has been taking Urso for about a year now: 3 capsules before bed (she is about 90 kg). Her bilirubin is still around 35-40 but the doctor says that it would probably stay that way. AST/ALT/GGT have all come down. How long is she supposed to
temirzhan
in
PBC Foundation
8 years ago
Study for the new med Obetichiolic Acid and my experience
Good Morning, Here's a study for the new med Obetichiolic Acid and my experience for on applying; Subject: NCT02308111, 747-302, Phase 3 Study of Obeticholic Acid Evaluating Clinical Outcomes in Patients With Primary Biliary Cirrhosis (this is out of Nashville, TN, however I think they have other locations
Good Morning, Here's a study for the new med Obetichiolic Acid and my experience for on applying; Subject: NCT02308111, 747-302, Phase 3 Study of Obeticholic Acid Evaluating Clinical Outcomes in Patients With Primary Biliary Cirrhosis (this is out of Nashville, TN, however I think they have other locations
kauthement
in
PBC Foundation
8 years ago
Colon cleanse
Hi everybody, I want to do a colon cleanse with different herbs. Can anyone think of a reason why not? I have PBC and Sjogrens and I take Urso. Has anyone else done one? Thanks kandiepat
Hi everybody, I want to do a colon cleanse with different herbs. Can anyone think of a reason why not? I have PBC and Sjogrens and I take Urso. Has anyone else done one? Thanks kandiepat
kandiepat
in
PBC Foundation
8 years ago
Rapid progression of PBC and scared
NHello, I am new to all this. I tested AMA+ 9 months ago had a livergram showing stage 1 Pbc. Just had another livergram and biopsy done now stage 3/4. Dr. Upped Urso to 2000mg and my all phos is finally in normal range first time in 6 yeas. My liver is enlarged at 21 cm and spleen is "tiny". I
NHello, I am new to all this. I tested AMA+ 9 months ago had a livergram showing stage 1 Pbc. Just had another livergram and biopsy done now stage 3/4. Dr. Upped Urso to 2000mg and my all phos is finally in normal range first time in 6 yeas. My liver is enlarged at 21 cm and spleen is "tiny". I
stoowill
in
PBC Foundation
8 years ago
Maybe NOT PBC......perhaps Nodular Regenerative Hyperplasia?
Friends... I had my appointment Monday at NIH, the National Institute of Health. For those of you not in the US, this is our country's top hospital and research center. You have to be accepted into their program, because they only treat patients who meet the specific criteria for diseases they are studying
Friends... I had my appointment Monday at NIH, the National Institute of Health. For those of you not in the US, this is our country's top hospital and research center. You have to be accepted into their program, because they only treat patients who meet the specific criteria for diseases they are studying
JennyCville
in
PBC Foundation
8 years ago
More confused than ever!
Hi, Everyone. I just got the results from my liver biopsy and the results are normal! I know I should be jumping for joy but I just don't have a warm feeling about it. Prior to this, my LFTs were ALP =513, ALT = 450; GGT = 750, cholesterol = 10.6, Fibroscan = 14.8, BMI = 17.3, AMA negative, and B12
Hi, Everyone. I just got the results from my liver biopsy and the results are normal! I know I should be jumping for joy but I just don't have a warm feeling about it. Prior to this, my LFTs were ALP =513, ALT = 450; GGT = 750, cholesterol = 10.6, Fibroscan = 14.8, BMI = 17.3, AMA negative, and B12
tinypixie
in
PBC Foundation
8 years ago
Can anyone help please?
I have had AF since 1994 following pneumonia. For the last 4ish years I have been on Verapamil; Digoxin and Warfarin which seemed to keep me pretty well balanced, apart from the usual blip occasionally. I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment.
I have had AF since 1994 following pneumonia. For the last 4ish years I have been on Verapamil; Digoxin and Warfarin which seemed to keep me pretty well balanced, apart from the usual blip occasionally. I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment.
GranJan
in
Beyond Psoriasis
8 years ago
Can anyone help me here, please?
I have had AF since 1994 following pneumonia. For the last 4ish years I have been on Verapamil; Digoxin and Warfarin which seemed to keep me pretty well balanced, apart from the usual blip occasionally. I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment.
I have had AF since 1994 following pneumonia. For the last 4ish years I have been on Verapamil; Digoxin and Warfarin which seemed to keep me pretty well balanced, apart from the usual blip occasionally. I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment.
GranJan
in
AF Association
8 years ago
Urso
I was diagnosed with PBC last month. I did not have any symptoms. Then came Urso.😣. Now I itch at night, feel nauseous and have problems with anger. Too much of a coincidence for my liking. Has anyone heard of Low dose naltrexone?
I was diagnosed with PBC last month. I did not have any symptoms. Then came Urso.😣. Now I itch at night, feel nauseous and have problems with anger. Too much of a coincidence for my liking. Has anyone heard of Low dose naltrexone?
LindyRich
in
PBC Foundation
8 years ago
Dairy before and after
Hi everyone, thank you so much for your replies, that did bring up another question though. How important is it to stay away from dairy products 2 hours before and after taking the Urso? I only have a little bit of lactose free milk in my coffee and sometimes, specially in winter I want a last cuppa
Hi everyone, thank you so much for your replies, that did bring up another question though. How important is it to stay away from dairy products 2 hours before and after taking the Urso? I only have a little bit of lactose free milk in my coffee and sometimes, specially in winter I want a last cuppa
Lekkerbek
in
PBC Foundation
8 years ago
side effects from Urso
I am newly diagnosed with PBC. Realize from reading here that I should ask my doctor what stage I am. I started taking a large dose of generic ursodiol about 9 days ago. I've read that most people do not have reactions to the urso but I think I am having them because that's the only thing that has changed
I am newly diagnosed with PBC. Realize from reading here that I should ask my doctor what stage I am. I started taking a large dose of generic ursodiol about 9 days ago. I've read that most people do not have reactions to the urso but I think I am having them because that's the only thing that has changed
littysgirl
in
PBC Foundation
8 years ago
Endometriosis, Now Post Hysterectomy & Contemplating Holistic Remedies or should I try HRT?
Vogel
Uva
Ursi
(pee infection!)
Vogel
Uva
Ursi
(pee infection!)
EEshborn
in
Endometriosis UK
8 years ago
Liver Flare
I was diagnosed with PBC in 2014, about this time of year. After going on URSO, as long as I watch what I eat for the most part, my liver has stopped hurting. But a week or so ago, I started having liver pain again. I will have some pain before my period, but it stops after I am over it. But this
I was diagnosed with PBC in 2014, about this time of year. After going on URSO, as long as I watch what I eat for the most part, my liver has stopped hurting. But a week or so ago, I started having liver pain again. I will have some pain before my period, but it stops after I am over it. But this
NotorDJP
in
PBC Foundation
8 years ago
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