MRI/MRCP Tomorrow

[NotorDJP]

Good morning all! (Morning in the US. 24 degrees and freezing rain later today!),

If you look at my posts you will see that I have had a "blip" on my PBC radar. My old doctor retired and I went to a new practice about 2.5 weeks ago. She did a lot of blood work I haven't had in a long time, and a fibroscan. My fibroscan showed me in the upper of F2, close to F3 in fibrosis, but no cirrhosis. I have had PBC since around 2010 (diagnosed 2014). My ALk Phos lowered right away with URSO, but went back up a couple of years later and has been "partially" reduced since then staying in the high 200s and low 300s. My new doctor ordered an MRI/MRCP that I am finally getting tomorrow morning. She wants to see my ducts, small and large ducts. She is concerned that my Alk Phos has been this high for awhile and wants to make sure I don't have an overlap syndome such as AIH or PSC, or a blockage (which to my mind means a stone, though I don't have a GB anymore, or possibly a tumor). I think she is more concerned about PSC than cancer. But I think she just wants to see in there and make sure what she is doing in the right thing.

My blood work all came back about levels like it always does, though she did some ANA and other rheumy type types and my titers were VERY high on some things. But they have been at that level before. Alk Phos was lower (she upped my Urso because my weight has gone up) but it was only a week later from when I started and we are looking at other meds.

I guess I say all this because I have been pretty chill about the test after my initial freak out. I have a pretty deep faith and I rely on God for my help. But my anxiety has creeped back in because the test is now tomorrow morning. 8 am my time.

I like to read devotional calendars at work to start to my day and the ones for tomorrow and Friday are a little scary. Like "your way is going to be steep" and "even though its dark ahead" stuff like that. While I know that could mean anything, and I'm probably being crazy thinking a calendar is telling me what is going to happen tomorrow, I do believe God speaks to us in ways we don't understand.

So I sit here and tell myself that if I had cancer I would feel significantly worse than I do and my blood work pretty much is exactly like it has been for literally years and I'm just borrowing trouble. But I'm having my moments today. Thanks for listening. I know we are all walking down this road together, some at different stages, so I wanted to let you know what was going on with me.

[DonnaBoll Administrator]

Thank you for sharing your history as well as what's going on now. It is very hard not to worry and think the worst. I do believe, however, that some of the same passages that may give you the feeling of dread that there are ones that can also be a source of comfort and strength. I know when I was going thru a rough time around the time of my transplant I can remember saying so often "I know you are with me, Jesus. We will get thru this." Sounds like your doctor is very thorough. It's hard to wait for answers. Please let us know what you find out.

[NotorDJP in reply to DonnaBoll]

Thank you Donna. I didn't realize you had gone through a transplant. I have had lots of scans and tests and always find myself nervous, but since I knew that I was having the fibroscan, it was like a jolt that my life was going to be different going forward. I can't shake it. I may be completely wrong, of course. There are many passages that give me comfort and strength. I will hold on to them the next couple of days. My medical system uploads tests into an online portal, actually fairly quickly. I anticipate seeing the results either later tomorrow or early on Friday. Thank you again for replying.

[NotorDJP]

I had my MRI today. All looked good. Thanks for sticking with me.

[DonnaBoll Administrator in reply to NotorDJP]

SO glad to hear! reason to celebrate!!!

[NotorDJP in reply to DonnaBoll]

Yes! Thank you!

[lovesoccer]

Thank you for posting and sharing your story to date. The anxiety of waiting for results can be daunting, and I find this group to be a source of support. Use the calendar, your faith, and any other vehicles of strength. We all have those times where we’re in our own heads. Wishing you the best.