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IV Iron Infusion for RLS
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
pages2tx
in
Restless Legs Syndrome
2 months ago
Got results today
Labs weren’t too bad, but will be curious to see what they say. Wbcs 1.9, hct 39.5, PLT 176, neutrophils 1.1, lymphocytes 0.6. Alk phos was a little high, but not near double, other liver enzymes were good. I figured it is because my thyroid needs adjusting as it was totally fine in June. But lipids
Labs weren’t too bad, but will be curious to see what they say. Wbcs 1.9, hct 39.5, PLT 176, neutrophils 1.1, lymphocytes 0.6. Alk phos was a little high, but not near double, other liver enzymes were good. I figured it is because my thyroid needs adjusting as it was totally fine in June. But lipids
KLCTJC
in
MPN Voice
2 months ago
Anyone know of issues with taking Candesartan anywhere near Levo/T3?
Hi, thanks for reading my post. I have Hashimoto’s, am on T4/T3 combo and get migraines. Have been told I can’t move onto migraine preventative injections etc unless I try 3 prophylaxis meds first. Propranolol and Amytriptaline no help, so now they say try Candesartan. I have enough bad reactions with
Hi, thanks for reading my post. I have Hashimoto’s, am on T4/T3 combo and get migraines. Have been told I can’t move onto migraine preventative injections etc unless I try 3 prophylaxis meds first. Propranolol and Amytriptaline no help, so now they say try Candesartan. I have enough bad reactions with
Lovecake
in
Thyroid UK
2 months ago
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Ultrasound scan results, help please, Dr's appointment today.
Hello lovely people, Further to my previous post I wrote about my sister being diagnosed with thyroid cancer, because of that the doctor agreed to refer me to have an ultrasound scan, my sister is having her thyroid removed later this month. My ultrasound was carried out on Sunday 11th August, the
Hello lovely people, Further to my previous post I wrote about my sister being diagnosed with thyroid cancer, because of that the doctor agreed to refer me to have an ultrasound scan, my sister is having her thyroid removed later this month. My ultrasound was carried out on Sunday 11th August, the
YorkshireLass_1964
in
Thyroid UK
2 months ago
Chronic Insomnia Part 2
https://healthunlocked.com/thyroiduk/posts/151096015/chronic-insomnia Above is a link to my previous post from 3 weeks ago. I've now asked my husband to communicate in the group on my behalf, as my condition has worsened significantly. I'm struggling to function, walking is difficult, my speech is
https://healthunlocked.com/thyroiduk/posts/151096015/chronic-insomnia Above is a link to my previous post from 3 weeks ago. I've now asked my husband to communicate in the group on my behalf, as my condition has worsened significantly. I'm struggling to function, walking is difficult, my speech is
Sami-M
in
Thyroid UK
2 months ago
Tuesday's Tip
[i]
For the most part physicians have given Urso up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.
[/i] [i]
According to Dr. Jones (world 's leading expert on PBC) the thinking may soon be that only a 6 month period
[i]
For the most part physicians have given Urso up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.
[/i] [i]
According to Dr. Jones (world 's leading expert on PBC) the thinking may soon be that only a 6 month period
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
low or high stomach acid?
I have been suffering with heat in my chest and a cough and have started lansoprzole which has helped but not much. Prior to this, a lot of stress with antibiotics and antifungal medication for infections. Could I have low stomach acid instead? I am testing my thyroid privately and vitamins to see
I have been suffering with heat in my chest and a cough and have started lansoprzole which has helped but not much. Prior to this, a lot of stress with antibiotics and antifungal medication for infections. Could I have low stomach acid instead? I am testing my thyroid privately and vitamins to see
Sailing14
in
Thyroid UK
2 months ago
Am I being blasé about stomach protectors whilst on Pred?
I have had PMR for 3 and a half years and generally feel lucky that I am not feeling as bad or fatigued as many on this forum. I am certainly not as fit as I was but age has a part to play. I am 75 and used to be able to do big hikes, Zumba and so on but can still walk 4 to 5 miles and have just moved
I have had PMR for 3 and a half years and generally feel lucky that I am not feeling as bad or fatigued as many on this forum. I am certainly not as fit as I was but age has a part to play. I am 75 and used to be able to do big hikes, Zumba and so on but can still walk 4 to 5 miles and have just moved
Stargiver
in
PMRGCAuk
2 months ago
RLS? PLMD? Myoclonic Jerks? All of the above?
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
LAdudePRS
in
Restless Legs Syndrome
2 months ago
help please osteoporosis at 48
hi there DEXA -3.7 and -3.5 Did have low bmi for many years no oestrogen Now on HRT What levels is ideal for hrt ? No one can tell me optimal range ? Ctx and 0.5 and Pn1p 106 All the rest is normal. T4 16 12 to 22 And t3 5.1 4.1 to 6.8 I’m only 48 . Can I improve it with jumping
hi there DEXA -3.7 and -3.5 Did have low bmi for many years no oestrogen Now on HRT What levels is ideal for hrt ? No one can tell me optimal range ? Ctx and 0.5 and Pn1p 106 All the rest is normal. T4 16 12 to 22 And t3 5.1 4.1 to 6.8 I’m only 48 . Can I improve it with jumping
Chouchou1234
in
Bone Health and Osteoporosis UK
2 months ago
B12 levels
Hello, I'm thinking of getting my daughter checked for Hashimotis and ceoliac after I was diagnosed. She had some symptoms (fatigue, irritability, headaches) but is only 7 and a great eater!. Her ferritin is very low at only 11 (20-100) and B12 is 228 (300-600) but her active B12 is in range at 68 (above
Hello, I'm thinking of getting my daughter checked for Hashimotis and ceoliac after I was diagnosed. She had some symptoms (fatigue, irritability, headaches) but is only 7 and a great eater!. Her ferritin is very low at only 11 (20-100) and B12 is 228 (300-600) but her active B12 is in range at 68 (above
Kmurr144
in
Thyroid UK
2 months ago
cathy
I need to have a thyroid test. Before I book it what time of day should I book it for and in your opinion what time of day should I take my T4 and T 3 and what are the reasons for this. Thanks so much.
I need to have a thyroid test. Before I book it what time of day should I book it for and in your opinion what time of day should I take my T4 and T 3 and what are the reasons for this. Thanks so much.
Puddingym
in
Thyroid UK
2 months ago
Me again! Ferritin 37 midJune,baffled as to how it has raised another 25 to 110 in a wk,taking no iron please?
Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after 1 wk not taking iron-advanced thyroid check. Last wk 110 (medichecks Iron Panel-no.other results worked) I've only been taking 1 ferrous fumarate
Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after 1 wk not taking iron-advanced thyroid check. Last wk 110 (medichecks Iron Panel-no.other results worked) I've only been taking 1 ferrous fumarate
Jo5454
in
Pernicious Anaemia Society
2 months ago
My Longevity after a Triple Bypass.
My reason for my existence for so long after my op I feel was due to me never having a heart attack. I was fantastically fit involved in many sports and only got mild angina when at the extremes of exercising.Caught very early l was very young to 30 years of age. Still rather scary setting out on my
My reason for my existence for so long after my op I feel was due to me never having a heart attack. I was fantastically fit involved in many sports and only got mild angina when at the extremes of exercising.Caught very early l was very young to 30 years of age. Still rather scary setting out on my
Bigscar
in
British Heart Foundation
2 months ago
Still suffering
My story is so long, so I will try to start where I am currently. An update: I have been on gabapentin (1800mg) and Rquip (4mg) for over 20 years. Just recently my RLS became unrelenting. I can't sleep, and I am so tired. Ihave been to so many doctors here in Oklahoma who really know nothing about RLS
My story is so long, so I will try to start where I am currently. An update: I have been on gabapentin (1800mg) and Rquip (4mg) for over 20 years. Just recently my RLS became unrelenting. I can't sleep, and I am so tired. Ihave been to so many doctors here in Oklahoma who really know nothing about RLS
Littlegran
in
Restless Legs Syndrome
2 months ago
Hello friendsI have decided to take a private MMA urine test as I have had symptoms for a few years.Advice on that please.
Thinking I must do this for several weeks before taking the
test
. But it occured to me that as it's a
urine
test
, do I have to wait long before doing the test?My routine B12 blood tests come back normal or very high. I have read that B12 can be high in blood but not getting into the cells.
Thinking I must do this for several weeks before taking the
test
. But it occured to me that as it's a
urine
test
, do I have to wait long before doing the test?My routine B12 blood tests come back normal or very high. I have read that B12 can be high in blood but not getting into the cells.
Everdean
in
Pernicious Anaemia Society
2 years ago
Tips for Apt with NHS Endo
Hi All, hope you are having a good day. I’m a few months into taking Thybon Henning T3 only and I finally think I have found a medication that is working for me. Less anxiety, pain and I’m generally coping better. Any tips on how to persuade the NHS Endocrinologist to potentially prescribe Thybon Henning
Hi All, hope you are having a good day. I’m a few months into taking Thybon Henning T3 only and I finally think I have found a medication that is working for me. Less anxiety, pain and I’m generally coping better. Any tips on how to persuade the NHS Endocrinologist to potentially prescribe Thybon Henning
Blu-cat11
in
Thyroid UK
2 months ago
Von Hippel Lindau Syndrome
Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large (2 inch in diameter) tumor in my kidney. Pathology showed that I have/had clear cell renal cell carcinoma (ccRCC). Throughout my life small tumors have been found in different places in my body, but all benign. I was
Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large (2 inch in diameter) tumor in my kidney. Pathology showed that I have/had clear cell renal cell carcinoma (ccRCC). Throughout my life small tumors have been found in different places in my body, but all benign. I was
myarabella
in
Hughes Syndrome APS Forum
2 months ago
Change to Levo timings/splitting dose?
After PM in with a very helpful Forumite, she has given me the idea of splitting my dose. One part in the morning and one part later in the day. I think this is worth pursuing for two reasons. 1.) My night time heart racing is a blooming nuisance if nothing else. 2.) I am getting the sense that my
After PM in with a very helpful Forumite, she has given me the idea of splitting my dose. One part in the morning and one part later in the day. I think this is worth pursuing for two reasons. 1.) My night time heart racing is a blooming nuisance if nothing else. 2.) I am getting the sense that my
arTistapple
in
Thyroid UK
2 months ago
Following on from synacthen test.....
....and feeling pathetic at the hospital. Thank you for all your replies. On to my next question - Prior to the synacthen test I got down to 5mg pred but the last 3 weeks I had been feeling as though 5mg wasn't enough. I'd had several bouts of S&D, also fatigued by the heat..I thought it may have been
....and feeling pathetic at the hospital. Thank you for all your replies. On to my next question - Prior to the synacthen test I got down to 5mg pred but the last 3 weeks I had been feeling as though 5mg wasn't enough. I'd had several bouts of S&D, also fatigued by the heat..I thought it may have been
CygnusX1
in
PMRGCAuk
2 months ago
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