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A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
6 months ago
Have you had chemo via cannula?
Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare aggressive mucinous ovarian cancer, I had the good news that the cancer hasn’t spread to my lymph nodes which makes it 1C. While my oncologist explained that it’s difficult to quantify the benefits of adjuvant chemo due to
Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare aggressive mucinous ovarian cancer, I had the good news that the cancer hasn’t spread to my lymph nodes which makes it 1C. While my oncologist explained that it’s difficult to quantify the benefits of adjuvant chemo due to
OCacc
in
My Ovacome
6 months ago
Feeling very cold
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
Can anyone tell me if it's normal to feel very cold with CLL. It seems to be a new symptom, I have been like it for last 2 to 3 weeks. I'm wearing 2 jumpers and trousers and still feeling the cold. So am just wondering if it's normal lol. Donnax
PusscatsGoodies
in
CLL Support
6 months ago
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enlarged lymp node
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
DianeSH
in
CLL Support
6 months ago
BUPRENORPHINE
This is my story: I am 74 and have had RLS since I had a Cervical Fusion in 1984. I took different medications until I went into augmentation from pramipexole 3 years ago. Then all hell broke loose. For the past two years I would walk all night because I could not sit. I used my stationary bike
This is my story: I am 74 and have had RLS since I had a Cervical Fusion in 1984. I took different medications until I went into augmentation from pramipexole 3 years ago. Then all hell broke loose. For the past two years I would walk all night because I could not sit. I used my stationary bike
Josana13
in
Restless Legs Syndrome
8 months ago
Study reveals genetic chain reaction that drives the spread of prostate cancer
[i]Science keeps getting closer to stopping the spread of cancer.[/i] [i]Scout[/i] From the Male Care Prostrate news letter [i][/i] NOVEMBER 6, 2023 New research from scientists at VCU Massey Comprehensive Cancer Center and the VCU Institute of Molecular Medicine (VIMM) determined that a particular
[i]Science keeps getting closer to stopping the spread of cancer.[/i] [i]Scout[/i] From the Male Care Prostrate news letter [i][/i] NOVEMBER 6, 2023 New research from scientists at VCU Massey Comprehensive Cancer Center and the VCU Institute of Molecular Medicine (VIMM) determined that a particular
Scout4answers
in
Advanced Prostate Cancer
6 months ago
Colds and flu…🧐🥹?
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
”Why don’t lupus patients catch cold? Many, many patients comment on this observation – that during cold and flu epidemics they seem to be the only family member not affected…?”
Professor Graham Hughes, [the London Lupus Centre] 2008
Just wondering about this observation but I personally have
Suvi8901
in
LUPUS UK
6 months ago
Trametinib!
Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after debunking and several rounds of chemotherapy remission for 7 years, now the big C is back again, I have been offered the new drug Trametinib which I need to start soon, reading on the all side effects gives me a real scare
Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after debunking and several rounds of chemotherapy remission for 7 years, now the big C is back again, I have been offered the new drug Trametinib which I need to start soon, reading on the all side effects gives me a real scare
Izoominka
in
My Ovacome
6 months ago
Barrigel and markers
This Wednesday I am scheduled to have barrigel and markers. Doctor told me to take two extra strength Tylenol an hour before the procedure as well as one Valium. Also, antibiotics. Is the one Valium enough to calm me down as I am pretty anxious about the procedure? Has anyone else who has had these?
This Wednesday I am scheduled to have barrigel and markers. Doctor told me to take two extra strength Tylenol an hour before the procedure as well as one Valium. Also, antibiotics. Is the one Valium enough to calm me down as I am pretty anxious about the procedure? Has anyone else who has had these?
SilverSeppi
in
Advanced Prostate Cancer
8 months ago
Movicol
Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone 😔 my question is how many sachets do
Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone 😔 my question is how many sachets do
Kazzacrazy
in
IBS Network
6 months ago
Pneumonia Vaccine - Who Can Have it?
Hi everybody, it’s been a bit of a tough 10 days. Things have been going well but a week last Thursday I started getting flashes in my left eye and loads of floaters, optician referred me and went to hospital to have laser treatment on some retinal tears, because the NHS have difficulty managing appointments
Hi everybody, it’s been a bit of a tough 10 days. Things have been going well but a week last Thursday I started getting flashes in my left eye and loads of floaters, optician referred me and went to hospital to have laser treatment on some retinal tears, because the NHS have difficulty managing appointments
Investigator1
in
Vasculitis UK
6 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
End of IBrance …
After 6 months of consistently rising tumor markers and increasing back and leg pain, a recent flurry of scans and an MRI have finally brought us to the realization that the IBrance and Anastrozole combo is failing to control the bone Mets in my pelvis, sacrum and L5. I’m in the process of starting
After 6 months of consistently rising tumor markers and increasing back and leg pain, a recent flurry of scans and an MRI have finally brought us to the realization that the IBrance and Anastrozole combo is failing to control the bone Mets in my pelvis, sacrum and L5. I’m in the process of starting
Dragonfly2
in
SHARE Metastatic Breast Cancer
6 months ago
Think I've made a big mistake over flu vaccine!
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
Frenchduck
in
PMRGCAuk
6 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
6 months ago
constant flu
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to blood test in middle of cyrcle but have no power and she took all her power to go up by steps back and now she has problem with her leg it is swollen
Inguc_is
in
My Ovacome
6 months ago
buprenorphine -what next
I’ve been on buprenorphine for about 2 months now. I take 600 micrograms. I have also been slowly reducing from pregabalin by 25 mg every two weeks and am now on 100mg. I had nausea when I started buprenorphine but that stopped after a couple of weeks only to return. I have totally lost my appetite
I’ve been on buprenorphine for about 2 months now. I take 600 micrograms. I have also been slowly reducing from pregabalin by 25 mg every two weeks and am now on 100mg. I had nausea when I started buprenorphine but that stopped after a couple of weeks only to return. I have totally lost my appetite
Happykaz
in
Restless Legs Syndrome
8 months ago
Newly Diagnosed Panicking
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
Ive just had a pelvic ultrasound and was told I have 6 ovarian cysts on the left. Is that a lot? Consultant said ovaries are stuck together and looks like endo. Had Ca125 elevated at 53. Having had thyroid cancer at 26 im worried about ovarian cancer now. Waiting on MRI and gynae referrals. I've had
DarkStar85
in
Endometriosis UK
6 months ago
My Pet Scan Results. Where does this put me? TIA
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
IMPRESSION: There has been some interval treatment response. There still remain multiple osseous metastatic lesions, however, the remaining are decreased in activity and some have resolved. There is also been treatment response in active retroperitoneal/retrocrural lymph nodes. Only a single upper abdominal
Blueribbon63
in
Advanced Prostate Cancer
6 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
6 months ago
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