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Others don’t understand
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
I know we’re all usually talking about our meds, but I’m wondering how everybody is faring when trying to explain to others what we go through. I’ve had my adult children question why I take oxycodone. Some seem to understand, some are very judgmental. RLS can start at 10:30 am, and is why I’m spreading
Marlayna
in
Restless Legs Syndrome
1 year ago
Change from Nucala to Dupixent
Hello all! I don’t post much but read daily. I have eosinophilic asthma and chronic sinusitis. I’ve been on Nucala for the last 5 years and have been relatively well controlled. After a mild case of covid I developed bronchitis and was treated, but after that, I can’t seem to stop coughing. I have constant
Hello all! I don’t post much but read daily. I have eosinophilic asthma and chronic sinusitis. I’ve been on Nucala for the last 5 years and have been relatively well controlled. After a mild case of covid I developed bronchitis and was treated, but after that, I can’t seem to stop coughing. I have constant
kdr112
in
Asthma Community Forum
1 year ago
FLU VACCINE
I am in the UK on Venetoclax and have just spent 5 days in hospital with COVID. Is it safe to have the flu vaccine and is it hit or miss whether the vaccine is actually for the strain of flu which is going to be around this winter
I am in the UK on Venetoclax and have just spent 5 days in hospital with COVID. Is it safe to have the flu vaccine and is it hit or miss whether the vaccine is actually for the strain of flu which is going to be around this winter
Marisa
in
CLL Support
1 year ago
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Costochondritis
I had a bad cough with a chest infection (in my opinion). The third time this year. On previous 2 occasions, I was given 30mg pred per day for 5 days and an antibiotic, and chest cleared each time. I have been in contact with covid, but have not had +ve test. This time I was not given, I was refused
I had a bad cough with a chest infection (in my opinion). The third time this year. On previous 2 occasions, I was given 30mg pred per day for 5 days and an antibiotic, and chest cleared each time. I have been in contact with covid, but have not had +ve test. This time I was not given, I was refused
Q-owl
in
PMRGCAuk
1 year ago
Itchy ear
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
sun_1234
in
Tinnitus UK
1 year ago
?asthma
a few years ago after a bout of bronchitis which I often got in the winter I was given asthma pumps, I’ve never been sure if I had asthma. Following wheezing when I lay down or even in the day my doctor listened to my chest and sent me for a chest X-ray, this showed a shadow on my lung and I was sent
a few years ago after a bout of bronchitis which I often got in the winter I was given asthma pumps, I’ve never been sure if I had asthma. Following wheezing when I lay down or even in the day my doctor listened to my chest and sent me for a chest X-ray, this showed a shadow on my lung and I was sent
Londone16
in
Asthma Community Forum
1 year ago
Pleurisy
Hi all I was recently diagnosed with pneumonia and pleurisy and am on my fourth course of antibiotics They don’t seem to be working My question is regarding the pleurisy - can the pain move around the chest? Today the upper front of my chest is very sore whereas a few days ago it was the lower
Hi all I was recently diagnosed with pneumonia and pleurisy and am on my fourth course of antibiotics They don’t seem to be working My question is regarding the pleurisy - can the pain move around the chest? Today the upper front of my chest is very sore whereas a few days ago it was the lower
Dazzler57
in
Lung Conditions Community Forum
1 year ago
Flu jab
As flu vaccine season will soon be on us I was wondering if my husband will get a flu jab this year (I have asthma, therefore I qualify). In previous years he has been eligible but I believe the criteria has changed. Any thoughts?
As flu vaccine season will soon be on us I was wondering if my husband will get a flu jab this year (I have asthma, therefore I qualify). In previous years he has been eligible but I believe the criteria has changed. Any thoughts?
Mayneffy
in
Asthma Community Forum
1 year ago
Advice on increasing Pred for breathlessness and persistent cough
My GP told me that breathlessness is a symptom of PMR, so I can't seek her advice on how to manage this cough etc. Some people are saying that Eris Covid is around and it presents as a bad cough which does not show up as positive on home covid testing kits. I have had a persistent productive cough
My GP told me that breathlessness is a symptom of PMR, so I can't seek her advice on how to manage this cough etc. Some people are saying that Eris Covid is around and it presents as a bad cough which does not show up as positive on home covid testing kits. I have had a persistent productive cough
Motida
in
PMRGCAuk
1 year ago
Given new 500mg Hydroxycarbamide tablets today!?
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Evening all, Was on Pegasus injections for over a year which ended up with a repeat side effect of pneumonia. Came off for 2 months & now have been prescribed 500mg Hydroxycarbamide Any advice would be greatly appreciated What time of day is best to take my 2 tablet dose? Thanks in advance Grant
Pappafraser
in
MPN Voice
1 year ago
Dental extraction
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
It never rains……… Have had a herniated disc for the past four weeks with the dreaded sciatica accompanying it with glee but despite that I have felt better having gone back on my Filgotinib JAK after being off it after a month of bronchitis in April on antibiotics. However, and here’s the rub, the back
Amnesiac3637
in
NRAS
1 year ago
flu symptoms with aps / stroke history
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed. But my flu whilst I haven’t had high fevers. I have felt my original stroke side effects come back - eg vestibular dizziness and it’s made the
Sand1985
in
Hughes Syndrome APS Forum
1 year ago
bronchiastasis
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
hi I have bronchiastasis and new to it even though consultant thinks I’ve probably had it since childhood, I also have brittle asthma ( fingers crossed, been under control for years). Since 2019 I’ve had double pneumonia 3 times, sepsis twice and currently sat on a ward waiting for a scan for a possible
Numptybrain
in
Lung Conditions Community Forum
1 year ago
Kennel cough vaccine dilemma
My wife recently took my dog to the vets for his annual booster and kennel cough vaccine. As I am immunocompromised I am aware that there is a very small risk to myself as the kennel cough vaccine is live. I also understood (maybe incorrectly) that if my dog did not have the vaccine and were to subsequently
My wife recently took my dog to the vets for his annual booster and kennel cough vaccine. As I am immunocompromised I am aware that there is a very small risk to myself as the kennel cough vaccine is live. I also understood (maybe incorrectly) that if my dog did not have the vaccine and were to subsequently
Hightower62
in
NRAS
1 year ago
Options for Recurrent PCa w/ RT Initial Therapy
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Researcher50
in
Advanced Prostate Cancer
1 year ago
Prolapse surgery
I have suffered with uterine prolapse for approximately 4 years and have had a Gellhorn pessary for almost 3 years. Prolapse is now at stage 3 with more and more problems with the pessary, discomfort, burning bladder and infections. It came out so now have a larger pessary. This is even more uncomfortable
I have suffered with uterine prolapse for approximately 4 years and have had a Gellhorn pessary for almost 3 years. Prolapse is now at stage 3 with more and more problems with the pessary, discomfort, burning bladder and infections. It came out so now have a larger pessary. This is even more uncomfortable
Catsaloud
in
Women's Health
1 year ago
Temgesic/Buprenorphine
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Jelbea and Shumbah have both posted recently about Temgesic versus Buprenorphine and the different half life of these 2 medicines.Both have Buprenorphine hydrochloride as the active ingredient BUT Temgesic has a much shorter half life. This means it will have to be taken every 6 to 8 hours throughout
Joolsg
in
Restless Legs Syndrome
1 year ago
Problematic mucous & dry cough ..
Hello, Dad's cough is now pretty mucousy, and dry at the same time. Both are frustrating/aggravating for him, in different ways. For the mucous part - we try to do some mild chest tapping to encourage it out & I know that drinking good amounts of water is good for that too. Any
ideas
that have
Hello, Dad's cough is now pretty mucousy, and dry at the same time. Both are frustrating/aggravating for him, in different ways. For the mucous part - we try to do some mild chest tapping to encourage it out & I know that drinking good amounts of water is good for that too. Any
ideas
that have
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Cold water!
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
Sandych55
in
Atrial Fibrillation Support
1 year ago
Medically induced zombie looking for help!
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Fibro_warrior
in
Fibromyalgia Action UK
1 year ago
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