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how common is tumor lysis syndrome after infusions?
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
Im reading about cll infusion treatment. A side effect is tumor lysis syndrome. I'm wondering how common that is
elm1
in
CLL Support
7 months ago
Coverage of RLS?
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
The title is not quite right, but I should have asked this long ago (for general benefit all the time). The title for this group is "Restless legs syndrome" What other ailments are covered in this header? Sleep apnoea PLMD (think that is RLS?) REM sleep disorder? it may be helpful to have "
Spurdog1
in
Restless Legs Syndrome
7 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
7 months ago
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Beta 2 Microglobulin
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
Hi. I'm considering getting a Beta 2 Microglobulin blood test done. I have CLL and on W&W. Has anyone else had this done?
ColSte
in
CLL Support
7 months ago
Music therapy
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
PDKiwi
in
Cure Parkinson's
8 months ago
Gabapentin to Pramipexole for RLS/PLMD.
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Has anyone changed from Gabapentin to Pramipexole for RLS/PLMD. What your experience of doing this? Many thanks
Arrendene1
in
Restless Legs Syndrome
8 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
8 months ago
First MS Neuro Appointment!
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
MSFlea
in
My MSAA Community
8 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
8 months ago
Update (partly for my own records) Day one scan and next steps
I had my day one scan for my second transfer (first frozen today). All looked fine and my lining was thin enough to begin to move forward with our cycle. I’m on 5 progynova tablets per day 3 orally, 2 vaginally- seems like a lot! And I am still on Nafarelin but only a half dose (one spray up the nose
I had my day one scan for my second transfer (first frozen today). All looked fine and my lining was thin enough to begin to move forward with our cycle. I’m on 5 progynova tablets per day 3 orally, 2 vaginally- seems like a lot! And I am still on Nafarelin but only a half dose (one spray up the nose
Here4ivfinfo
in
Fertility Network UK
8 months ago
Started peginterferon alpha 2a treatment
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Purplechoclover
in
MPN Voice
8 months ago
Sleep Apnea and afib
Greetings across the pond........I'm 81 and have been dealing with afib for 11years. I had my first ablation 2 weeks ago and was back in afib 4 days later. Today I had a cardioversion which was successful; and of course, I hope it lasts. The team who administered the procedure reported that sleep apnea
Greetings across the pond........I'm 81 and have been dealing with afib for 11years. I had my first ablation 2 weeks ago and was back in afib 4 days later. Today I had a cardioversion which was successful; and of course, I hope it lasts. The team who administered the procedure reported that sleep apnea
sealover
in
AF Association
8 months ago
Amitriptyline/ Duloxetine
Hello everyone, This is my first post but been a member for a year. I need some help regarding medication. GP given me Amitriptyline for night 10mg for night and Duloxetine 30mg to take morning. I complained to GP that I don’t feel well after Duloxetine and I stopped but GP insisted that side effects
Hello everyone, This is my first post but been a member for a year. I need some help regarding medication. GP given me Amitriptyline for night 10mg for night and Duloxetine 30mg to take morning. I complained to GP that I don’t feel well after Duloxetine and I stopped but GP insisted that side effects
Cleverclog22
in
Fibromyalgia Action UK
8 months ago
Dentistry.
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
Busyrobyn
in
PMRGCAuk
8 months ago
But no mention of Augmentation
FDA Warns Boehringer About Misleading Mirapex Ads By Samuel Howard · 2008-10-15 00:00:00 -0400 German pharmaceutical company Boehringer Ingelheim GmbH misled consumers and doctors about the safety and efficacy of Mirapex, the restless-leg syndrome treatment, according to the U.S. Food and Drug
FDA Warns Boehringer About Misleading Mirapex Ads By Samuel Howard · 2008-10-15 00:00:00 -0400 German pharmaceutical company Boehringer Ingelheim GmbH misled consumers and doctors about the safety and efficacy of Mirapex, the restless-leg syndrome treatment, according to the U.S. Food and Drug
RLSLearner
in
Restless Legs Syndrome
8 months ago
Improved sleep on anti-anxiety medication / antidepressants.
Has anyone gone on anti-anxiety meds or antidepressants (those that don't exacerbate RLS) and found that their sleep quality improved? Following on from a recent post containing Andy Berkowski's video on whether Periodic Limb Movement Disorder actually exists, i've been looking at alternative explanations
Has anyone gone on anti-anxiety meds or antidepressants (those that don't exacerbate RLS) and found that their sleep quality improved? Following on from a recent post containing Andy Berkowski's video on whether Periodic Limb Movement Disorder actually exists, i've been looking at alternative explanations
Hidden
in
Restless Legs Syndrome
8 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
8 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
8 months ago
Recent exacerbation of PLMD
Hi everyone. I’ve been on Pregabalin for 10 months after coming off Pramipexole. I’m taking 350mg around 8:30pm but have given up trying to go to bed before 11:30-midnight. Whilst RLS is well controlled, the PLMD isn’t. Most recently I am now getting PLMD as soon as or shortly after I get into bed. Sleep
Hi everyone. I’ve been on Pregabalin for 10 months after coming off Pramipexole. I’m taking 350mg around 8:30pm but have given up trying to go to bed before 11:30-midnight. Whilst RLS is well controlled, the PLMD isn’t. Most recently I am now getting PLMD as soon as or shortly after I get into bed. Sleep
Theonlypetied
in
Restless Legs Syndrome
8 months ago
Have you downloaded the AF Discussion Guide?
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
TracyAdmin
Partner
in
AF Association
8 months ago
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