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Have I got Pernicious Anaemia ?
I was diagnosed by my GP as having Pernicious Anaemia around 5 years ago, I assume this was after one of my regular blood tests for type 2 Diabetes. Since then I have been having 1ml. injections of Hydroxocobalamin / Vitamin B12 at the surgery, originally every 12 weeks. However, as I didn't seem to
I was diagnosed by my GP as having Pernicious Anaemia around 5 years ago, I assume this was after one of my regular blood tests for type 2 Diabetes. Since then I have been having 1ml. injections of Hydroxocobalamin / Vitamin B12 at the surgery, originally every 12 weeks. However, as I didn't seem to
KStandKen
in
Pernicious Anaemia Society
6 years ago
Slow Progression PSP-P and MR Parkinsonism index predicts vertical supranuclear gaze palsy in patients with psp-parkinsonism
Hi. well we went to neuro opthalmologst and after having a look said what made them make a diagnosis of PSP? "There is no indication of PSP and tends towards Parkinsons" I explained that the diagnosis was made due to the Hummingbird sign on the MRI. Looked like he didn't know what I was talking about
Hi. well we went to neuro opthalmologst and after having a look said what made them make a diagnosis of PSP? "There is no indication of PSP and tends towards Parkinsons" I explained that the diagnosis was made due to the Hummingbird sign on the MRI. Looked like he didn't know what I was talking about
daffodil48
in
PSP Association
6 years ago
Impact of sleep apnoea on RLS
I have had RKS and PMLD for a long time now. Sorry I haven’t been on the site for a long time but recently have had a change in experience with my both and thought it might be of use to others. I saw my neurologist in January and she decided to have me checked for sleep apnoea. I was diagnosed with
I have had RKS and PMLD for a long time now. Sorry I haven’t been on the site for a long time but recently have had a change in experience with my both and thought it might be of use to others. I saw my neurologist in January and she decided to have me checked for sleep apnoea. I was diagnosed with
hazelrobson
in
Restless Legs Syndrome
6 years ago
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Sleep study
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hidden
in
Cure Parkinson's
6 years ago
Need All The Advice I Can Get!!
Hi, the short version of my story is that I have scoliosis (curvature of the spine) that cannot be fixed with the traditional method of metal rods because it is too severe, and there is an 80% risk of paralysis or infection. Despite some restriction on my lungs, it hasn't affected my breathing much
Hi, the short version of my story is that I have scoliosis (curvature of the spine) that cannot be fixed with the traditional method of metal rods because it is too severe, and there is an 80% risk of paralysis or infection. Despite some restriction on my lungs, it hasn't affected my breathing much
CWest4882
in
Lung Conditions Community Forum
6 years ago
Why am I always exhausted?
I'm 40, and for the last 18 months or so, I've been suffering from severe exhaustion. I've been stuck in this zombie-like state, living barely half a life, and it's wearing me down so much, I honestly don't know how much longer I can take it. Just over a year ago I went to the doctors because I snore
I'm 40, and for the last 18 months or so, I've been suffering from severe exhaustion. I've been stuck in this zombie-like state, living barely half a life, and it's wearing me down so much, I honestly don't know how much longer I can take it. Just over a year ago I went to the doctors because I snore
Hidden
in
EDMESH
6 years ago
Post Encephalitis cognitive problems
My world has been turned upside down, I've just had six months off work with problems... My short term memory has always been a bit iffy since I had Viral Encephalitis in 2001, but these latest problems though, started with an inability to speak (dysarthria), then I was found in a confused state, covered
My world has been turned upside down, I've just had six months off work with problems... My short term memory has always been a bit iffy since I had Viral Encephalitis in 2001, but these latest problems though, started with an inability to speak (dysarthria), then I was found in a confused state, covered
3fingeredjake
in
Headway
6 years ago
Sleep Apnoea
I have a "sleep apnea machine" does anyone know if coming off it after being on it for a along time can result in your blood pressure going up ? I’ve been on cpap machine now for four years and resently stopped for one month. But I found my heart rate and blood pressure has gone up has anyone else
I have a "sleep apnea machine" does anyone know if coming off it after being on it for a along time can result in your blood pressure going up ? I’ve been on cpap machine now for four years and resently stopped for one month. But I found my heart rate and blood pressure has gone up has anyone else
Donkster
in
Lung Conditions Community Forum
6 years ago
Multiple sneezing episodes
I suffer from bouts of multiple sneezing episodes. My husband says the average is ten in a row. Sometimes the episodes can be quite violent and painful. For me there are no apparent triggers. I have mentioned this to my local doctor and pulmonologist but no one appears the slightest bit interested. In
I suffer from bouts of multiple sneezing episodes. My husband says the average is ten in a row. Sometimes the episodes can be quite violent and painful. For me there are no apparent triggers. I have mentioned this to my local doctor and pulmonologist but no one appears the slightest bit interested. In
mauschen
in
Lung Conditions Community Forum
6 years ago
MST continus and my driving Ban..
My doctor prescribed MST continus for me, I only took one 15mg tablet at night and I did sleep wonderfully! After about a month of taking this she reported me to the DVLA and I had my driving licence removed!! It did not effect me during the day, because I only took it at night! I don't take it any more
My doctor prescribed MST continus for me, I only took one 15mg tablet at night and I did sleep wonderfully! After about a month of taking this she reported me to the DVLA and I had my driving licence removed!! It did not effect me during the day, because I only took it at night! I don't take it any more
Piggery14
in
Fibromyalgia Action UK
6 years ago
Is this ******* about, not this enough to give another Mi ...HELP??!!
Sent to yet another Researcher/specialist In desparation as fast tracking is a no no at Easter? OPEN E-MAIL Just enrolled for therapies at Ms Centre At Bradley Stoke but the major ones for whom always had hospital treatment were not transferred to Gloucestershire when moved from London 5 years
Sent to yet another Researcher/specialist In desparation as fast tracking is a no no at Easter? OPEN E-MAIL Just enrolled for therapies at Ms Centre At Bradley Stoke but the major ones for whom always had hospital treatment were not transferred to Gloucestershire when moved from London 5 years
skybluepink
in
Sudden Cardiac Arrest & Heart Attack
6 years ago
Sleep apnea and af
Is it safe to use a CPAP machine with paf
Is it safe to use a CPAP machine with paf
Ottis
in
AF Association
6 years ago
Sleep apnea and anxiety
Just wondering, im also diagnosed with sleep apnea and have to wear cpap machine. Question, even though i have quit smoking does wearing cpap during sleep reduce anxiety and fast heart beat during the day. , ?
Just wondering, im also diagnosed with sleep apnea and have to wear cpap machine. Question, even though i have quit smoking does wearing cpap during sleep reduce anxiety and fast heart beat during the day. , ?
Kennygrunt
in
Anxiety Support
6 years ago
Poor sleep in spite of using a CPAP machine
Is anybody out there in the same boat as me, I have been using CPAP treatment for over 20 years, but my actual sleep time is getting worse. It did take me a long time to realise that this was so, I was like people who did not have Sleep Apnea, I thought the machine would promote good sleep.Most nights
Is anybody out there in the same boat as me, I have been using CPAP treatment for over 20 years, but my actual sleep time is getting worse. It did take me a long time to realise that this was so, I was like people who did not have Sleep Apnea, I thought the machine would promote good sleep.Most nights
Lybra
in
Sleep Matters
6 years ago
Newbie
Hi. My name is Lisa and at the end of February I was diagnosed with obstructive sleep apnea. I have just started cpap treatment (it’s taking some getting used to!) and as the long term cure is weight loss, I today started the NHS 12 week programme. I am both excited and yet nervous. But also extremely
Hi. My name is Lisa and at the end of February I was diagnosed with obstructive sleep apnea. I have just started cpap treatment (it’s taking some getting used to!) and as the long term cure is weight loss, I today started the NHS 12 week programme. I am both excited and yet nervous. But also extremely
Lisap88
in
Weight Loss Support
6 years ago
BIRM Testimonial – Neuroendocrine Pca
My husband was diagnosed with Neuroendocrine Pca last June (2017)due to a hip fracture. He was immediately put on Hormone treatment – Lupron and Zytiga(prednisone). July, he started chemotherapy. He adopted a completely plant based diet and lots of raw juices(what he could tolerate during chemo
My husband was diagnosed with Neuroendocrine Pca last June (2017)due to a hip fracture. He was immediately put on Hormone treatment – Lupron and Zytiga(prednisone). July, he started chemotherapy. He adopted a completely plant based diet and lots of raw juices(what he could tolerate during chemo
softwaremom00
in
Advanced Prostate Cancer
6 years ago
Feeling very sorry for myself.
I have a very heavy cold. Just a cold but I feel so unwell and lousy. This is Day 6 and I decided I needed to go to the Dr as my chest was singing as I expired. All night and all day. I really struggled last night with my CPAP mask. My need to see Dr was partly down to anxiety at consequences of
I have a very heavy cold. Just a cold but I feel so unwell and lousy. This is Day 6 and I decided I needed to go to the Dr as my chest was singing as I expired. All night and all day. I really struggled last night with my CPAP mask. My need to see Dr was partly down to anxiety at consequences of
IdasMum
in
PMRGCAuk
6 years ago
Osas
Hi, i am carol, i was diagnosed with osas in dec 17 and started using cpap in jan this year. I am interested to know if anyone else with sleep apnea/osas has had any adjustments made by their employer to support them at work? I live in lancadhire and work in the public sector. Thanks
Hi, i am carol, i was diagnosed with osas in dec 17 and started using cpap in jan this year. I am interested to know if anyone else with sleep apnea/osas has had any adjustments made by their employer to support them at work? I live in lancadhire and work in the public sector. Thanks
Caroldol
in
Lung Conditions Community Forum
6 years ago
Acid reflux
Hi all, I've had reflux to some extent since my late teens. Found out I had a large hiatal hernia in 06'. I had surgery to repair it in 08'. Everything was great for about four years,no reflux or stomach issues and didn't need any meds or any anti acids. Then I started having a little reflux again. Had
Hi all, I've had reflux to some extent since my late teens. Found out I had a large hiatal hernia in 06'. I had surgery to repair it in 08'. Everything was great for about four years,no reflux or stomach issues and didn't need any meds or any anti acids. Then I started having a little reflux again. Had
ShaunMB
in
AF Association
6 years ago
MRI Results
Finally got mri results. NO NEW LESIONS. Hallelujah. Praise God. This was awesome news after all the trouble I went thru getting them. So I guess the Plegridy is doing it’s job. I think I hurt his feelings when I asked him for his definition of a relapse. After his response I asked if that didn’t seem
Finally got mri results. NO NEW LESIONS. Hallelujah. Praise God. This was awesome news after all the trouble I went thru getting them. So I guess the Plegridy is doing it’s job. I think I hurt his feelings when I asked him for his definition of a relapse. After his response I asked if that didn’t seem
Doubled51
in
My MSAA Community
6 years ago
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