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Hi everyone, I'm just over a year into my treatment for PV. Hydroxycarbamide 500mg weekdays 1000mg weekends with daily 75mg aspirin. I have have monthly blood tests with the aim of keeping haematocrit to below 0.45. Generally up 0.47 is ok anything above I have a venesection. hen I was first diagnosed
Hi everyone, I'm just over a year into my treatment for PV. Hydroxycarbamide 500mg weekdays 1000mg weekends with daily 75mg aspirin. I have have monthly blood tests with the aim of keeping haematocrit to below 0.45. Generally up 0.47 is ok anything above I have a venesection. hen I was first diagnosed
Swim360
in
MPN Voice
1 year ago
ET, Hydroxycarbamide and cataract surgery
I have to have cataract surgery, not so much because my cataracts are so bad but because I have primary angle closure glaucoma, so I don’t really have an option! I am concerned that it might take longer for my eyes (left one to be done first and right a few weeks after) to heal as I have ET. I have
I have to have cataract surgery, not so much because my cataracts are so bad but because I have primary angle closure glaucoma, so I don’t really have an option! I am concerned that it might take longer for my eyes (left one to be done first and right a few weeks after) to heal as I have ET. I have
Michali45
in
MPN Voice
1 year ago
Feet pain ( metatarsalgia?)
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and mycophenolate 1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions? I’m see the
Metatarsalgia feet pain soles , I’m taking some new meds on top of my old one are : atorvastin 20 mg aspirin 75 mg and mycophenolate 1 g twice a day , folic acid , instaed to improve my muscles weakness and fatigue I feel worst , the pain on the bottom of my feet is agony any suggestions? I’m see the
Melaxx
in
LUPUS UK
1 year ago
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Coming off Ticagrelor
Question - does anyone on the forum have experience of coming off Ticagrelor medication and experienced any complications from doing so? The background to my query is below: It's almost three years since my major heart attack, 12 July 2020 - I remember it well. I am currently on a fairly common combination
Question - does anyone on the forum have experience of coming off Ticagrelor medication and experienced any complications from doing so? The background to my query is below: It's almost three years since my major heart attack, 12 July 2020 - I remember it well. I am currently on a fairly common combination
Heartbear
in
British Heart Foundation
1 year ago
Alternative to Anticoagulation?
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
mjames1
in
Atrial Fibrillation Support
1 year ago
Supplements to Stop Before Holmium Laser Enucleation of the Prostate (HoLEP) Surgery
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Hubby has been scheduled for prostate surgery on 26 June 2023 at Vanderbilt. Surgeon asked him to stop
COQ10, Krill Oil, Turmeric, Aspirin and B Complex
for 10 days prior to surgery. I understand that he needs to stop first four which are blood thinners, BUT WHY
B COMPLEX?
Can any one
Despe
in
Cure Parkinson's
1 year ago
Anxiety, waiting for referral ‘Atrial Flutter’
Following on from my post yesterday - thank you to all who responded. Whilst waiting for referral appointment for ‘Atrial Flutter’ which should have arrived this week. I find myself getting pretty anxious and agitated with every little twinge, breath, etc. Humidity and heat is not helping. I currently
Following on from my post yesterday - thank you to all who responded. Whilst waiting for referral appointment for ‘Atrial Flutter’ which should have arrived this week. I find myself getting pretty anxious and agitated with every little twinge, breath, etc. Humidity and heat is not helping. I currently
Fight-the-good-fight
in
British Heart Foundation
1 year ago
Losartan and aspirin
does anyone know if aspirin (300mg) is ok with Losartan? Got a cracking headache paracetamol isn’t shifting! Thanks
does anyone know if aspirin (300mg) is ok with Losartan? Got a cracking headache paracetamol isn’t shifting! Thanks
im989
in
High Blood Pressure Support
1 year ago
Peeing blood
I just got done with 40 of 44 radiation treatments. Still have a Prostrate. Peeing blood after. The nurse says its because I take baby aspirin. Sounds strange after 40 treatments to start having this now. I have been taking a baby aspirin for 8 years. Did anyone else have this happen?
I just got done with 40 of 44 radiation treatments. Still have a Prostrate. Peeing blood after. The nurse says its because I take baby aspirin. Sounds strange after 40 treatments to start having this now. I have been taking a baby aspirin for 8 years. Did anyone else have this happen?
turkeyjoe1
in
Advanced Prostate Cancer
1 year ago
Blood pressure treatment - Irbesartan
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Jelbea
in
MPN Voice
1 year ago
Feeling weird
I had my stents (multiple) fitted on Sept last year, attended rehab.since then been actively doing my walk 7 days a week and 3 days HIIT /weight training PW with no issue. On regular medicine of statin rosuvastatin 40mg, bisoprol 2.5, ticagrelor 90 and aspirin. I was feeling well occassionally anxiety
I had my stents (multiple) fitted on Sept last year, attended rehab.since then been actively doing my walk 7 days a week and 3 days HIIT /weight training PW with no issue. On regular medicine of statin rosuvastatin 40mg, bisoprol 2.5, ticagrelor 90 and aspirin. I was feeling well occassionally anxiety
Sodp
in
British Heart Foundation
1 year ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
Gallbladder Removal?
Hey MPN-ers 😊 It’s recently become recommended for me to have my gallbladder removed. Not really in any pain but sporadic discomfort and upon ultrasound it was discovered my gallbladder is full of stones 🥴 I’ve been reading up on some patients side affects after and the stress it puts on the liver
Hey MPN-ers 😊 It’s recently become recommended for me to have my gallbladder removed. Not really in any pain but sporadic discomfort and upon ultrasound it was discovered my gallbladder is full of stones 🥴 I’ve been reading up on some patients side affects after and the stress it puts on the liver
KyleeR
in
MPN Voice
1 year ago
Petechial rash
I have Jak2 positive ET. I was diagnosed two years ago and I take Hydroxycarbamide 500 mg daily. My blood levels settled down very well on this treatment - the platelets sitting around 400. I am also taking the blood thinner - rivaroxaban 20 mg daily - as I had already suffered blood clots. I take
I have Jak2 positive ET. I was diagnosed two years ago and I take Hydroxycarbamide 500 mg daily. My blood levels settled down very well on this treatment - the platelets sitting around 400. I am also taking the blood thinner - rivaroxaban 20 mg daily - as I had already suffered blood clots. I take
Jelbea
in
MPN Voice
1 year ago
Tric and aspirin
You will prob be on aspirin every day but the tric usually only a year after HA and stent. My husband was on it for a year and bled alot if he scratched or cut himself. Usually causes this but it stopped after he stopped taking it when the year was, up
You will prob be on aspirin every day but the tric usually only a year after HA and stent. My husband was on it for a year and bled alot if he scratched or cut himself. Usually causes this but it stopped after he stopped taking it when the year was, up
Oscarpebbles2021
in
British Heart Foundation
1 year ago
Anxiety about all the immune based meds
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
Skittles11
in
Fertility Network UK
1 year ago
Erratic heart beat
Good morning all, I am due to have an angiogram on Friday, I am praying its not cancelled again..I haven't been diagnosed yet but have been prescribed Atorvastatin 4mg, Aspirin 75mg and a Gtn spray. Last week had a really scarey time with chest pains and erratic heart beat so was taken to A & E . After
Good morning all, I am due to have an angiogram on Friday, I am praying its not cancelled again..I haven't been diagnosed yet but have been prescribed Atorvastatin 4mg, Aspirin 75mg and a Gtn spray. Last week had a really scarey time with chest pains and erratic heart beat so was taken to A & E . After
Tryingtimes13
in
British Heart Foundation
1 year ago
Visit to the dentist
Can anyone give me information/advice please. I am on daily aspirin and 500mg x 10 tablets weekly as I have ET. I am seeing a new dentist as my previous one retired. I have told him about my diagnosis and treatment and am due to start treatment to have crowns removed and possibly root canal work done
Can anyone give me information/advice please. I am on daily aspirin and 500mg x 10 tablets weekly as I have ET. I am seeing a new dentist as my previous one retired. I have told him about my diagnosis and treatment and am due to start treatment to have crowns removed and possibly root canal work done
Ozziepig
in
MPN Voice
1 year ago
Anxiety and A-Fib
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
FiberedOut555
in
AF Association
1 year ago
Bruises
I have the same problem. Both my GP and cardiac nurse said it's nothing to worry about, quite normal whilst take clopidogrel and aspirin. GP carried out blood test, everything was normal. I think it's good for you to see your GP, they will put your mind to rest.
I have the same problem. Both my GP and cardiac nurse said it's nothing to worry about, quite normal whilst take clopidogrel and aspirin. GP carried out blood test, everything was normal. I think it's good for you to see your GP, they will put your mind to rest.
Suzz7
in
British Heart Foundation
1 year ago
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