Can anyone give me information/advice please.
I am on daily aspirin and 500mg x 10 tablets weekly as I have ET.
I am seeing a new dentist as my previous one retired. I have told him about my diagnosis and treatment and am due to start treatment to have crowns removed and possibly root canal work done or possible extraction. There is a wisdom tooth to come out as well.
I am worried about the treatment and bleeding etc. I’m not sure where to go for information.
Can anyone advise me please ???
Hi Ozziepig, it would be advisable to also contact your haematologist to get some advice about your upcoming dental work, and also perhaps ask your new dentist to contact your haematologist as well for advice. I hope it all goes well for you. Best wishes, Maz
I had an implant put in and kept taking aspirin 75mg. I would second what Mazd suggests
You cannot expect to get guidance from your dentist on this issue as it is outside of a dentist's scope of practice. This is an issue to review with your MPN care team. They can give the best advice on how to handle your medications to prepare for major dental work.
The norm would be to continue taking the hydroxyurea and to discontinue the aspirin prior to any surgery or major dental work. Guidance on discontinuing the aspirin can vary based on the procedure and your MPN profile. I used to be advised to d/c aspirin 7 days in advance but now the recommendation is usually 3 days in advance. Your hematologist can give you the best case-specific advice on this.
Your dentist or any other medical professional working on you needs to be aware that you are on chemotherapy. They will be following universal precautions, however, so it is not a big deal and does not change anything regarding your dental care.
Depending on how high your platelets are, you may experience additional bleeding as this is one component thrombocytosis. You can also experience some degree of reactive thrmbopsytosis after any surgery or major dental procedure. This is normal and nothing to worry about. Return to baseline will occur as the body recovers. Your MPN care team can do the best job of reviewing these issues with you, taking into account your unique MPN profile.
Hope the dental work goes well.
Thanks Hunter
Hi there I have had all of those treatments, I have ET and am on warfarin and aspirin daily for life .I would love to reassure you ,I had absolutely no problems. Pre treatment my bloods had to be within MY target range, at first they wanted to stop my warfarin, my dentist played it safe with everything. No changes to meds and no problematic bleeds.
Good luck my friend Lavender
I spoke to Haematologist nurse-who said stop aspirin for a week before-(having tooth extracted)-I didn't bleed at all (I have ET)- kept taking Anagrelide.
hi, I had big dental surgery to remove extremely stubborn infected implants. I told my consultant and all was fine to go ahead.. She gave me a letter approving the procedure which the dental consultant asked for. She gave me a prescription for medication to take to reduce bleeding which t took.
One hour later the surgery failed and I had to go back a second time. I didn’t bother with the tablets. I was fine.
We are all different.
I also have ET. I do recommend you inform yor medical team.
All good advice. The only other issue could be acquiring an infection I think most of the MPN treatments compromise our immune system, so we are at more risk of infections. I had a small lump removed from my leg, and within a few days was diagnosed with Sepsis, fortunately treated quickly before it progressed to Sepsis shock, but after 12 months still coping with after effects. Sepsis is very difficult to diagnose, so if you have any signs of an infection, pain anywhere, plus temperature, go to hospital and ask, Is it Sepsis ? It could save your life.
Great advice from Maz, have your dentist consult with your treating hematologist and go from there. You will be fine. Best to you on your procedures.
My dentist went straight to the horses mouth and contacted haematology to get advice and there were no problems for my extraction and filling, I also had to continue taking blood thinner and hydroxy. Good luck.
Due to personal experience with an infected root canal and 3 infected cavitations (40 yrs after my wisdom teeth were removed) and the complete remission of my follicular lymphoma (6 yrs ago) that ensued when those infections were cleared by an IAOMT certified dentist, I suggest that you avoid a root canal. You can see some information here. youtu.be/bTOoiGAwyUw. Best wishes for you!
Wow, that is such an important video to watch. Thank you Nikon7
I had bad breath for years and no one could track down the cause. I went through all the leaky gut health diets etc, also had my tonsils removed (not a comfortable procedure as an adult), yet my dentist and other health professionals couldn’t find the cause. Such an embarrassing problem to have. I had my root canal giving me problems and had an implant to replace it and the bad breath disappeared. They said it was quite infected down there with two roots (to the same tooth) inflamed. One root had the root canal, the other ignored. So I’m very relieved esp now after watching this video to know it’s gone 👌🏻
Hi Ozziepig, I am 65, take 500 mg hydroxyurea daily and low-dose aspirin. I have had several implants and bone grafts with no adverse bleeding. The dentist told me to stop the aspirin several days prior to each treatment and he added a coagulant agent prior to each treatment, as well - no issues at all. But definitely follow Mazcd's advice and have dentist contact your treating hematologist for extra assurance, as he knows your particulars better than anyone. Best of luck to you.
I am new to group am in Nottingham i would like to meet others so me and my daughter can get more information from other patients 
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