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Baricitinib
Have been trialling Barictinib took it for a month and had nausea herpes mouth
ulcers
seeing double unsteadiness wooden feeling when walking, Now developed a chest infection. Pain incidentally was no better at all so very disappointed 😞 an disheartened anyone else tried this ??
Have been trialling Barictinib took it for a month and had nausea herpes mouth
ulcers
seeing double unsteadiness wooden feeling when walking, Now developed a chest infection. Pain incidentally was no better at all so very disappointed 😞 an disheartened anyone else tried this ??
vivgibbs
in
NRAS
6 years ago
Canker sore patches on genital ulcers
Has anyone had any luck with using canker cover patches (meant for canker sores in the mouth) on their genital
ulcers
? I’ve tried it this week (along with prescribed prednisone, but I needed relief for school and work) and they worked on one ulcer as it disappeared within two days (a record!)
Has anyone had any luck with using canker cover patches (meant for canker sores in the mouth) on their genital
ulcers
? I’ve tried it this week (along with prescribed prednisone, but I needed relief for school and work) and they worked on one ulcer as it disappeared within two days (a record!)
allies240
in
Behçet's UK
6 years ago
? Benefits or not of taking Aspirin Extra
I have now stopped taking Aspirin as I am aware of the side effects of
ulcers
etc although I have not experienced anything so far.
I have now stopped taking Aspirin as I am aware of the side effects of
ulcers
etc although I have not experienced anything so far.
jangregg
in
CLL Support
6 years ago
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Advice please!
As I had to wait 4 months for an appt with my consultant, I was given an inhaler called Clenil Modulite which is absolutely brilliant when sprayed directly on
ulcers
(anywhere on body but I used mainly for mouth and vagina) it gets rid of them within a day or so.
As I had to wait 4 months for an appt with my consultant, I was given an inhaler called Clenil Modulite which is absolutely brilliant when sprayed directly on
ulcers
(anywhere on body but I used mainly for mouth and vagina) it gets rid of them within a day or so.
RC123
in
Behçet's UK
6 years ago
Venection help please?
My GP and haematologist prescribed me aspirin, but it was giving me
ulcers
. Now they're looking at Warfarin or similar as an alternative. Problem is, I'm always very fatigued and have low levels of concentration.
My GP and haematologist prescribed me aspirin, but it was giving me
ulcers
. Now they're looking at Warfarin or similar as an alternative. Problem is, I'm always very fatigued and have low levels of concentration.
Ashto70
in
MPN Voice
6 years ago
Suspected Behcets...help
Hi my son has had recurrent mouth
ulcers
over the past 2 years, he had tongue tie, which has now been operated on, so thought the
ulcers
could be where his tongue wasn't sitting right in the mouth, anyway the last few months my sons mouth
ulcers
have gone off the scale fortunately our dentist has referred
Hi my son has had recurrent mouth
ulcers
over the past 2 years, he had tongue tie, which has now been operated on, so thought the
ulcers
could be where his tongue wasn't sitting right in the mouth, anyway the last few months my sons mouth
ulcers
have gone off the scale fortunately our dentist has referred
bevie2010
in
Behçet's UK
6 years ago
Mouth Sores from Pegasys
Any suggestions for treating mouth sores? I have been taking Pegasys since November, and recently started getting mouth sores. It seems to occur weekly, and lasts for about 3 days, then resolves on its own. Thank you for any advice on how to manage the days when it flares up.
Any suggestions for treating mouth sores? I have been taking Pegasys since November, and recently started getting mouth sores. It seems to occur weekly, and lasts for about 3 days, then resolves on its own. Thank you for any advice on how to manage the days when it flares up.
clevemic
in
MPN Voice
6 years ago
Recently Diagnosed - Seeking Information
Should the doctors be doing an endoscopy on me to check for cancer,
ulcers
, bleeding or signs of the gastrointestinal issues I am experiencing? 6. Should the doctors be doing tests for Hashimoto's or any other autoimmune disorders? Is there anything I should be looking at to figure this out?
Should the doctors be doing an endoscopy on me to check for cancer,
ulcers
, bleeding or signs of the gastrointestinal issues I am experiencing? 6. Should the doctors be doing tests for Hashimoto's or any other autoimmune disorders? Is there anything I should be looking at to figure this out?
topher2018
in
Pernicious Anaemia Society
6 years ago
So fatigued
I also get cracks at the corner of my mouth as well as mouth
ulcers
and I feel worse in the sun. Anyway just wanted to rant and say thanks to all of you who take time to reply and generally chat online. THANKYOU!!!! 😘
I also get cracks at the corner of my mouth as well as mouth
ulcers
and I feel worse in the sun. Anyway just wanted to rant and say thanks to all of you who take time to reply and generally chat online. THANKYOU!!!! 😘
breano
in
LUPUS UK
6 years ago
Bloating so severe it causes me to throw-up gas
I'm also on anti-inflammatories for gout, which until a few months ago I had been prescribed without a proton pump inhibitor, which are known for causing stomach
ulcers
.. so perhaps this is actually some kind of perfect storm combination of gluten intolerance and that?
I'm also on anti-inflammatories for gout, which until a few months ago I had been prescribed without a proton pump inhibitor, which are known for causing stomach
ulcers
.. so perhaps this is actually some kind of perfect storm combination of gluten intolerance and that?
RichLyd
in
Gluten Free Guerrillas
6 years ago
We have been contacted by Boeringer Ingelheim, they are are looking a patient and carer perspective on nutrition.
Boeringer Ingelheim would like to ask participants and their contacts and members for content ideas for recipes and discussion topics o Examples: • Good recipes for chemotherapy patients (e.g. feeling nauseous, calming mouth
ulcers
) and foods to help people that may suffer from side effects
Boeringer Ingelheim would like to ask participants and their contacts and members for content ideas for recipes and discussion topics o Examples: • Good recipes for chemotherapy patients (e.g. feeling nauseous, calming mouth
ulcers
) and foods to help people that may suffer from side effects
NicF4
Administrator
in
The Roy Castle Lung Cancer Foundation
6 years ago
Waiting for results anxiety
I have suspected lupus for a while as I have joint pain, chronic fatigue, malar rash, blood in my urine, frequent nose bleeds, mouth
ulcers
and random fevers and I'm sensitive to sunlight.
I have suspected lupus for a while as I have joint pain, chronic fatigue, malar rash, blood in my urine, frequent nose bleeds, mouth
ulcers
and random fevers and I'm sensitive to sunlight.
Racheal21
in
LUPUS UK
6 years ago
Any ideas to help please
Hi all haven't been on for a while I've just come off a clinical trial in conjunction with Liverpool betchet center at the Freeman hospital Newcastle I was on infleximab unfortunately it only worked for a couple of months been really ill
ulcers
never go last week I had ,20+and they were large also get
Hi all haven't been on for a while I've just come off a clinical trial in conjunction with Liverpool betchet center at the Freeman hospital Newcastle I was on infleximab unfortunately it only worked for a couple of months been really ill
ulcers
never go last week I had ,20+and they were large also get
bobthomas1962
in
Behçet's UK
6 years ago
Skin lesions/ulcers?
I keep telling myself that their better than my oral
ulcers
and the extreme fatigue, but still. Thank you in advance!
I keep telling myself that their better than my oral
ulcers
and the extreme fatigue, but still. Thank you in advance!
MoniqueKahili
in
Behçet's UK
6 years ago
Anyone else have no issues with periods? (fatigue, back pain, high iron)
I also seem to have a weakened immune system - I get horrendous mouth
ulcers
a lot and other weird things, rashes, eye twitch etc.
I also seem to have a weakened immune system - I get horrendous mouth
ulcers
a lot and other weird things, rashes, eye twitch etc.
weekari
in
Endometriosis UK
6 years ago
Advice please
Feeling Faint Numbness/Tingling/Pins and Needles Burning Legs and/or Feet Neuropathic Pain/Fibromyalgia Vertigo Tinnitus Sensory Impairment Behavioural Changes Irritability/Frustration/Impatience Sudden Mood Swings Depression Loss of Libido Sleep Disturbance Confusion/Dementia Oral Cavity Symptoms Mouth
Ulcers
Feeling Faint Numbness/Tingling/Pins and Needles Burning Legs and/or Feet Neuropathic Pain/Fibromyalgia Vertigo Tinnitus Sensory Impairment Behavioural Changes Irritability/Frustration/Impatience Sudden Mood Swings Depression Loss of Libido Sleep Disturbance Confusion/Dementia Oral Cavity Symptoms Mouth
Ulcers
Jaye8
in
Pernicious Anaemia Society
6 years ago
LOOPS HOOPS AND ALL
That said I have been in remission since Xmas2017 but now it seems
ulcers
are rearing their ugly head which usually means the rest of me follows suit as in lots of pain fatigue barely able to walk and everything else that comes with .
That said I have been in remission since Xmas2017 but now it seems
ulcers
are rearing their ugly head which usually means the rest of me follows suit as in lots of pain fatigue barely able to walk and everything else that comes with .
amanda73
in
LUPUS UK
6 years ago
To many problems plus gaining weight
I’m a 51 year old woman and I have the following conditions: Lupus Chrons stomach
ulcers
Barrettes esophagus Pseroatic arthritis Brain tumor The brain tumor will soon be gone. My problem is my diet. It seems like the food plans for each problem conflicts with the other problem.
I’m a 51 year old woman and I have the following conditions: Lupus Chrons stomach
ulcers
Barrettes esophagus Pseroatic arthritis Brain tumor The brain tumor will soon be gone. My problem is my diet. It seems like the food plans for each problem conflicts with the other problem.
Sofia67
in
Pernicious Anaemia Society
6 years ago
Too many problems
I’m a 51 year old woman and I have the following conditions: Lupus Chrons stomach
ulcers
Barrettes esophagus Pseroatic arthritis Brain tumor The brain tumor will soon be gone. My problem is my diet. It seems like the food plans for each problem conflicts with the other problem.
I’m a 51 year old woman and I have the following conditions: Lupus Chrons stomach
ulcers
Barrettes esophagus Pseroatic arthritis Brain tumor The brain tumor will soon be gone. My problem is my diet. It seems like the food plans for each problem conflicts with the other problem.
sofia42467
in
Women's Health
6 years ago
Oral/nasal sores
I get
ulcers
on my tongue and in my gums however not on the top of my mouth and I read somewhere lupus sores are on the top of the mouth, is this true? Also, how can I identify if I have nasal sores or not? Thanks
I get
ulcers
on my tongue and in my gums however not on the top of my mouth and I read somewhere lupus sores are on the top of the mouth, is this true? Also, how can I identify if I have nasal sores or not? Thanks
alice2800
in
LUPUS UK
6 years ago
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