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Update on Brother
I wrote a week or so ago about my older brother. He has since been released from the Hospital they are recommending Skilled Nursing or Home Care but he is refusing. At a minimum we have tried to push for Palliative Care and again he refuses. I worry about him as he live alone in a tiny camper and
I wrote a week or so ago about my older brother. He has since been released from the Hospital they are recommending Skilled Nursing or Home Care but he is refusing. At a minimum we have tried to push for Palliative Care and again he refuses. I worry about him as he live alone in a tiny camper and
Jag9380
in
British Liver Trust
2 years ago
Has anyone used Ketamine for PTSD, depression or anxiety?
My therapist had brought it up to me as a possible way to help with my diagnosis’s. She wasn’t too sure if it would be right for me because she isn’t trained in that, but suggested I look into it. Any feedback?
My therapist had brought it up to me as a possible way to help with my diagnosis’s. She wasn’t too sure if it would be right for me because she isn’t trained in that, but suggested I look into it. Any feedback?
Theloudone
in
Anxiety and Depression Support
3 years ago
Phantom Pain
I have suffered with this since a BKA (Below Knee Amputation) in 2020. The last few days it has tended to start after I go to bed. I am tied and want to sleep yet suffer various pains (cramp, pain in ankle, burning in big toe area). It may take a couple of hours to drift off. I am on 3 x 300mg Gabapentin
I have suffered with this since a BKA (Below Knee Amputation) in 2020. The last few days it has tended to start after I go to bed. I am tied and want to sleep yet suffer various pains (cramp, pain in ankle, burning in big toe area). It may take a couple of hours to drift off. I am on 3 x 300mg Gabapentin
MichaelJH
in
Pain Concern
3 years ago
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Covid and PTSD / NEADs
My son in law has PTSD and non epileptic attack disorder. He's got covid atm and is experiencing increased symptoms such as hallucinations and tremors, has any anyone else on here had increased neurological symptoms with covid infection. I'm just worried that the virus may have infected his brain. I've
My son in law has PTSD and non epileptic attack disorder. He's got covid atm and is experiencing increased symptoms such as hallucinations and tremors, has any anyone else on here had increased neurological symptoms with covid infection. I'm just worried that the virus may have infected his brain. I've
Denise1968
in
Functional Neurological Disorder - FND Hope
3 years ago
Tested Positive Will it Affect my INR?
Tested positive for covid. Only mild symptoms so far. I have APS and Lupus SLE. I take warfarin, hydroxychloroquine and vitamin D. My question is will it affect my INR and should I be speaking to the warfarin clinic? Although I couldn’t go in to have an INR test anyway as I’m positive so obviously can
Tested positive for covid. Only mild symptoms so far. I have APS and Lupus SLE. I take warfarin, hydroxychloroquine and vitamin D. My question is will it affect my INR and should I be speaking to the warfarin clinic? Although I couldn’t go in to have an INR test anyway as I’m positive so obviously can
Bobbydoodle
in
Hughes Syndrome APS Forum
3 years ago
Down days
I had my hydroxycarbamide upped from one a day to one for 5days 2for 2days platelets 480 since taking the extra hydroxycarbamide I am experiencing leg pain in one leg nausea, down days before the increase I felt great has this happened to anyone else
I had my hydroxycarbamide upped from one a day to one for 5days 2for 2days platelets 480 since taking the extra hydroxycarbamide I am experiencing leg pain in one leg nausea, down days before the increase I felt great has this happened to anyone else
ChillyAsh34
in
MPN Voice
3 years ago
Sudden change of management
Hi. Firstly I must mention how grateful I am to have found this group. I’ve been feeling very isolated, frightened and alone. I am 62, I was diagnosed with ET 16 years ago. I’ve been managed on daily aspirin all this time. Honestly, I’ve hardly thought about my condition all these years. I’ve been monitored
Hi. Firstly I must mention how grateful I am to have found this group. I’ve been feeling very isolated, frightened and alone. I am 62, I was diagnosed with ET 16 years ago. I’ve been managed on daily aspirin all this time. Honestly, I’ve hardly thought about my condition all these years. I’ve been monitored
Peachjoy
in
MPN Voice
3 years ago
Coming off Apixaban
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my medication today as my doctor insist I not longer need treatment. I’m very nervous to stop taking the tablets and what effects it will have on my body
Ladyshnappz
in
Hughes Syndrome APS Forum
3 years ago
Lupron
Gentleman--getting my second Lupron injection tomorrow---Is the fatigue associated with it strongest immediately after?
Gentleman--getting my second Lupron injection tomorrow---Is the fatigue associated with it strongest immediately after?
nuc1111
in
Advanced Prostate Cancer
3 years ago
Obstructive defecation
I have posted about this before but make no apologies for flagging it up again. I have a long history of IBS but about 6 years ago I started having problems passing a motion even when it was soft - needing to go many times a day and never feeling that I was empty. I saw endless specialists and the
I have posted about this before but make no apologies for flagging it up again. I have a long history of IBS but about 6 years ago I started having problems passing a motion even when it was soft - needing to go many times a day and never feeling that I was empty. I saw endless specialists and the
janke
in
IBS Network
3 years ago
Actemra users
Hi all I have Polymyalgia and gca,I’m on 9mg pred.and just had my 4th Actemra inj. today, and will go down to 8mg pred tomorrow as instructed by my Rheumatologist,what I’m asking is it the norm to be feeling exhausted,shakey,mild headache, drugged up, I’m putting this down to the Actemra (could be wrong
Hi all I have Polymyalgia and gca,I’m on 9mg pred.and just had my 4th Actemra inj. today, and will go down to 8mg pred tomorrow as instructed by my Rheumatologist,what I’m asking is it the norm to be feeling exhausted,shakey,mild headache, drugged up, I’m putting this down to the Actemra (could be wrong
Petcut
in
PMRGCAuk
3 years ago
Warfarin versus DOACS
Following the subconjunctival haemorrhage I got from taking Apixaban for a week, my GP has asked me if I would “like to try” warfarin as an alternative. This is, according to her, less likely to produce an eye bleed. I’m very dubious about this claim which conflicts with what I have read. Has anyone
Following the subconjunctival haemorrhage I got from taking Apixaban for a week, my GP has asked me if I would “like to try” warfarin as an alternative. This is, according to her, less likely to produce an eye bleed. I’m very dubious about this claim which conflicts with what I have read. Has anyone
Hidden
in
AF Association
3 years ago
Lactoferrin and anticoagulants
I am a 78 old male with PAF. I take Eliquis, Flecainide and Bisoprolol. In these times of Covid a GP suggested to my son, who has no PAF, to take Lactoferrin as a preventative. I would like to take it as well, but I cannot find information on interactions between Lactoferrin and anticoagulants. Has
I am a 78 old male with PAF. I take Eliquis, Flecainide and Bisoprolol. In these times of Covid a GP suggested to my son, who has no PAF, to take Lactoferrin as a preventative. I would like to take it as well, but I cannot find information on interactions between Lactoferrin and anticoagulants. Has
mirtilla
in
AF Association
3 years ago
Digital ulcers
Hope you are all keeping warm and safe. Does anyone have any tips on coping with ulcers on their fingers in work. I work in an office so most of my work is computer based and the whole thing is a nightmare. I've tried all the usual things, fingerless gloves and so on but nothing makes any difference.
Hope you are all keeping warm and safe. Does anyone have any tips on coping with ulcers on their fingers in work. I work in an office so most of my work is computer based and the whole thing is a nightmare. I've tried all the usual things, fingerless gloves and so on but nothing makes any difference.
Jacko37
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Stressed
Hi everyone have found out what stressed is James was rushed to hospital during the night he has suffered a stroke and mum is worried sick they found out he has something called dvt as well as cellulitis and is very poorly .we are very stressed as no-one can visit for three days because of covid
Hi everyone have found out what stressed is James was rushed to hospital during the night he has suffered a stroke and mum is worried sick they found out he has something called dvt as well as cellulitis and is very poorly .we are very stressed as no-one can visit for three days because of covid
Pokermon
in
Lung Conditions Community Forum
3 years ago
mds/mpn-rs-t
Does anyone out there have this specific diagnosis. I was diagnosed with it in 2018 and was told it was rare. I am on hydroxyurea and aspirin and that is controlling my platelets but not new symptoms I have developed.
Does anyone out there have this specific diagnosis. I was diagnosed with it in 2018 and was told it was rare. I am on hydroxyurea and aspirin and that is controlling my platelets but not new symptoms I have developed.
woodmonkey
in
MPN Voice
3 years ago
Stories from a Hospital volunteer - "From major to minor"
Monday 6th December As some of you know, I occasionally write up a story or two from my Volunteering at a London Hospital, my role being a “Ward Musician.” But in Covid times I'm restricted to the use of a Blue-tooth speaker and the use of the Spotify App to search for patients’ musical requests. But
Monday 6th December As some of you know, I occasionally write up a story or two from my Volunteering at a London Hospital, my role being a “Ward Musician.” But in Covid times I'm restricted to the use of a Blue-tooth speaker and the use of the Spotify App to search for patients’ musical requests. But
Greenthorn
in
Lung Conditions Community Forum
3 years ago
Dr stop actemra . Still question is it gca ?
My wife was diogonsis gca 6 month back , biopsy could not done . She was on steriod and actemra as per standard chart from 60 to down 15 mg with weekly actemra, no much improvements in headache, pressure , all test were perform mri .,every thing seems ok team of .rehumotologist, neurologist . And eye
My wife was diogonsis gca 6 month back , biopsy could not done . She was on steriod and actemra as per standard chart from 60 to down 15 mg with weekly actemra, no much improvements in headache, pressure , all test were perform mri .,every thing seems ok team of .rehumotologist, neurologist . And eye
Rajuguide
in
PMRGCAuk
3 years ago
Help! PIP review form
Just opened my post to find a PIP Award Review Form! This has upset me so much! Just in the run up to Christmas and they want it in by January 6th! I have so much going on right now with builders in my flat, an insect problem and so many off shoots with having to deal with these things that I just can
Just opened my post to find a PIP Award Review Form! This has upset me so much! Just in the run up to Christmas and they want it in by January 6th! I have so much going on right now with builders in my flat, an insect problem and so many off shoots with having to deal with these things that I just can
LilyMistri2
in
LUPUS UK
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
3 years ago
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