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Traumatic macular hole
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Original symptoms coming back
Hi, I was diagnosed with triple negative ET in May 2017 and have been on Hydroxycarbamide since June 2017, my platelets when diagnosed were at 1300 and over the years have gone down and sit between 200-400. I had lots of symptoms but they all went over the first few years but over the last few months
Hi, I was diagnosed with triple negative ET in May 2017 and have been on Hydroxycarbamide since June 2017, my platelets when diagnosed were at 1300 and over the years have gone down and sit between 200-400. I had lots of symptoms but they all went over the first few years but over the last few months
beckyluck
in
MPN Voice
1 year ago
Fiber
I have taken three doses of Metamucil daily for many years. This should alleviate any constipation and adds healthy fiber.
I have taken three doses of Metamucil daily for many years. This should alleviate any constipation and adds healthy fiber.
Stub007
in
PBC Foundation
1 year ago
How long to take blood thinner for I frequent paroxysmal AF?
I have just had what is probably my 2nd or 3rd episode of AF in 3 years. I went back into normal Rhythm after about 19 hours and have remained there. I am taking apixiban for the stroke risk. So I have a dilemma. The private cardiologist I spoke to advised that I needed it for 3 weeks as I only have
I have just had what is probably my 2nd or 3rd episode of AF in 3 years. I went back into normal Rhythm after about 19 hours and have remained there. I am taking apixiban for the stroke risk. So I have a dilemma. The private cardiologist I spoke to advised that I needed it for 3 weeks as I only have
Sixtyslidogirl
in
Atrial Fibrillation Support
1 year ago
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St Thomas's appointment coming up
hi all. Sorry been MIA. I am seeing Prof Hunt soon and as of late St Thomas's have been wanting to stop my warfarin as aps negative for quite a while now. history - dvt in pregnancy 2002, weak + anticardiopilin afterwards Treated with lmwh in all pregnancies 2014 - broke shoulder, unwell after,
hi all. Sorry been MIA. I am seeing Prof Hunt soon and as of late St Thomas's have been wanting to stop my warfarin as aps negative for quite a while now. history - dvt in pregnancy 2002, weak + anticardiopilin afterwards Treated with lmwh in all pregnancies 2014 - broke shoulder, unwell after,
Fusch
in
Hughes Syndrome APS Forum
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
Partner
in
AF Association
1 year ago
Final stages of CBD
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Stormtrooper4
in
PSP Association
1 year ago
Hydroxyurea
I was finally diagnosed after asking my dr‘s why my platelets stayed so high. Finally a new internal medicine doc sent me to a hemotologist/oncologist. +JAK2. I am taking my first Hydroxyurea capsule tonight. Does any thing happen right away? Thanks
I was finally diagnosed after asking my dr‘s why my platelets stayed so high. Finally a new internal medicine doc sent me to a hemotologist/oncologist. +JAK2. I am taking my first Hydroxyurea capsule tonight. Does any thing happen right away? Thanks
Plate
in
MPN Voice
1 year ago
Brain injury befriend service SW11 London
Hi I'm looking for a befriend agency that has specifics with staff understanding head injury and mental health for my beloved best friend. This is even just 30/40 minutes per week. He is an animal lover, into art and craft, music, films, animation, Mr. bean, Faulty tower etc.. Any suggestions are
Hi I'm looking for a befriend agency that has specifics with staff understanding head injury and mental health for my beloved best friend. This is even just 30/40 minutes per week. He is an animal lover, into art and craft, music, films, animation, Mr. bean, Faulty tower etc.. Any suggestions are
headstrong60
in
Headway
1 year ago
Webinar: Pegcetacoplan for Dry AMD
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Anticoagulants and Dental treatment
I recently had a molar removed.I needed a couple of stitches. I was advised to stop Rivaroxaban the night previous to the extraction and also on the night of the extraction. All good so far and went back on Rivaroxaban. Then four days post extraction I had some heavy bleeding which resulted in my returning
I recently had a molar removed.I needed a couple of stitches. I was advised to stop Rivaroxaban the night previous to the extraction and also on the night of the extraction. All good so far and went back on Rivaroxaban. Then four days post extraction I had some heavy bleeding which resulted in my returning
helpmabob
in
AF Association
1 year ago
VTE post thrombotic
hi, in may april 2021, i was diagnosed with bilateral multiple Pulmonary embolisms in both of my lungs, prodominantly bottom lobe and DVT of the left leg (very big DVT half my leg vein was completely covered) however i have been sufferening with swelling, discolouration and seizing legs. I wear conpression
hi, in may april 2021, i was diagnosed with bilateral multiple Pulmonary embolisms in both of my lungs, prodominantly bottom lobe and DVT of the left leg (very big DVT half my leg vein was completely covered) however i have been sufferening with swelling, discolouration and seizing legs. I wear conpression
Holliemorris
in
Anticoagulation Support
1 year ago
unending anal pressure
hello, looking for ideas to solve this ongoing problem. I appreciate your help and feedback in advance. I (24M) have never really had any problems with my digestive system my whole life, but this issue of constant anal pressure has slowly progressed over the past few months. It feels like I need to
hello, looking for ideas to solve this ongoing problem. I appreciate your help and feedback in advance. I (24M) have never really had any problems with my digestive system my whole life, but this issue of constant anal pressure has slowly progressed over the past few months. It feels like I need to
Edeske
in
IBS Network
1 year ago
feeling very down
hi all, I posted on here some weeks ago when I felt that the combination of infliximab infusions and leflunomide was no longer working and I was hopeful my rheumatologist would change my medication. I live in Guernsey so only see her occasionally when she flies across. I honestly don’t feel like anyone
hi all, I posted on here some weeks ago when I felt that the combination of infliximab infusions and leflunomide was no longer working and I was hopeful my rheumatologist would change my medication. I live in Guernsey so only see her occasionally when she flies across. I honestly don’t feel like anyone
Emye343
in
NRAS
1 year ago
terriersgalore
I am 81, and I have recently been diagnosed with Atrial Fibrillation. I was prescribed Verapamil tablets 3 times a day, Apixaban twice a day and Lansoprozole once. Has anyone else had problems with Verapamil causing really bad constipation? I very rarely suffered with constipation; in fact it was
I am 81, and I have recently been diagnosed with Atrial Fibrillation. I was prescribed Verapamil tablets 3 times a day, Apixaban twice a day and Lansoprozole once. Has anyone else had problems with Verapamil causing really bad constipation? I very rarely suffered with constipation; in fact it was
Terriersgalore
in
AF Association
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
Hidden
Partner
in
AF Association
1 year ago
Vasculitis
I have very painful arthritis in my shoulder and spine, I'm told vasculitis causes this has anyone else had this please?
I have very painful arthritis in my shoulder and spine, I'm told vasculitis causes this has anyone else had this please?
Westley
in
PMRGCAuk
1 year ago
PIP CLAIMS
hello everyone, I am a year today since my Subarachnoid haemorrhage, I still have all the usual problems with daily life, fatigue being the most problematic. Managing it is so difficult. Also ptsd and anxiety has been so hard to deal with. I am awaiting an assessment still for my pip claim and I am
hello everyone, I am a year today since my Subarachnoid haemorrhage, I still have all the usual problems with daily life, fatigue being the most problematic. Managing it is so difficult. Also ptsd and anxiety has been so hard to deal with. I am awaiting an assessment still for my pip claim and I am
Vonny1979
in
Headway
1 year ago
help with nightmares from ptsd
in October I had to put down my service dog that I rescued, she has lymes that we were treating and it came back almost every other month. I knew I didn’t have a lot of time left however the vets kept giving false hope that I had more time then I actually did. When the day came to put her to rest and
in October I had to put down my service dog that I rescued, she has lymes that we were treating and it came back almost every other month. I knew I didn’t have a lot of time left however the vets kept giving false hope that I had more time then I actually did. When the day came to put her to rest and
Brandysgirl
in
Anxiety and Depression Support
1 year ago
ptsd & cancer/surgery
Hi everyone, Not posted on this forum for a long time. I was diagnosed with advanced ovarian cancer 3 weeks ago. The first surgery 3 weeks ago triggered me big time. I’m having major surgery next week, and what panicking about being triggered again (that’s not even to mention the anxiety over chemo
Hi everyone, Not posted on this forum for a long time. I was diagnosed with advanced ovarian cancer 3 weeks ago. The first surgery 3 weeks ago triggered me big time. I’m having major surgery next week, and what panicking about being triggered again (that’s not even to mention the anxiety over chemo
Hailun
in
Heal My PTSD
1 year ago
subutex
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
RlS2023
in
Restless Legs Syndrome
1 year ago
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