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Officially Starting HD
So, my labs have finally gotten to the point where they've decided I need to start dialysis. eGFR at 6, high BUN, and high phosphorus point toward starting. I've had my (brachia-encephalic) AV fistula for a year. Because I've had it so long without actually using it, we've decided that it's a good
So, my labs have finally gotten to the point where they've decided I need to start dialysis. eGFR at 6, high BUN, and high phosphorus point toward starting. I've had my (brachia-encephalic) AV fistula for a year. Because I've had it so long without actually using it, we've decided that it's a good
PeaB4YouGo
in
Kidney Dialysis
2 months ago
Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
2 months ago
Working after transplant
I went active October 2022 and then on PD dialysis in Feb 2023. PD failed and I spent July, Aug and Sept 2023 in the hospital. In Aug I called the transplant center and had them inactivate me. When I got out of the hospital I was doing in center hemo and had lost weight. I've been eating as much as
I went active October 2022 and then on PD dialysis in Feb 2023. PD failed and I spent July, Aug and Sept 2023 in the hospital. In Aug I called the transplant center and had them inactivate me. When I got out of the hospital I was doing in center hemo and had lost weight. I've been eating as much as
horsie63
in
Kidney Transplant
2 months ago
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AS the Journey continues
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
Well, the Board did complete its investigation. Five doctors were reprimanded. The resident on duty the night of the loss is no longer allowed to practice. The ICU doctor is no longer an ICU doctor but is still practicing—three more doctors whose disciplinary hearing was held behind closed doors three
ceward204
in
British Liver Trust
2 months ago
Fiancé is in desperate need of a kidney
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
hi, My fiancé was born with a hereditary kidney disease. He’s been on dialysis for 3 years and is in dire need of a kidney. He’s been so positive and happy during this time , he even started a business this year all while being on dialysis. It’s been very inspiring to watch! I want to spread the
Nickywesley
in
Kidney Dialysis
2 months ago
how to secure CVC port
my 16 year old son just started dialysis with a CVC in his chest. What is the best way to secure the red and blue ports when not in use? He is active at school. Thank you for advice!
my 16 year old son just started dialysis with a CVC in his chest. What is the best way to secure the red and blue ports when not in use? He is active at school. Thank you for advice!
LSKing
in
Parents of Children with Kidney Disease
2 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
2 months ago
Dialysis Decision
I've had CKD since 2012 and am now encroaching dialysis. In your opinion, what are the pros and cons with the three (3) types of dialysis?
I've had CKD since 2012 and am now encroaching dialysis. In your opinion, what are the pros and cons with the three (3) types of dialysis?
Blueskylynn
in
Kidney Dialysis
2 months ago
The Queen is here!
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
HipHopQueen
in
Kidney Dialysis
3 months ago
Annual transplant program appointment
Yesterday was my annual transplant program check-in. Here are some highlights for those who may be curious what that entails. First up, unfortunately, is the weight and height check. This is one of the two the most dreaded moments for me. I wore the lightest clothes I could find. I've threatened
Yesterday was my annual transplant program check-in. Here are some highlights for those who may be curious what that entails. First up, unfortunately, is the weight and height check. This is one of the two the most dreaded moments for me. I wore the lightest clothes I could find. I've threatened
barbara55109
in
Kidney Disease
3 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
3 months ago
Painful foot problems since dialysis
Several sores worsened on problem feet, some now infected. These areas on my feet’s worsened after starting dialysis. Anyone else experienced this issue? If so any treatment or possible causes investigated. I appreciate your feedback/comments. Thanks.
Several sores worsened on problem feet, some now infected. These areas on my feet’s worsened after starting dialysis. Anyone else experienced this issue? If so any treatment or possible causes investigated. I appreciate your feedback/comments. Thanks.
Doremikid
in
Kidney Dialysis
3 months ago
Partner has Portal Vein Thrombosis - Any Advice Please?
Good morning from snowy Bristol! I have been on this group for a while, mostly watching and occasionally contributing, but most of you are all so we’ll informed my input would just repeat other replies. Forgive me, but I have some questions and a dilemma. Fair warning there’s quite a bit to process
Good morning from snowy Bristol! I have been on this group for a while, mostly watching and occasionally contributing, but most of you are all so we’ll informed my input would just repeat other replies. Forgive me, but I have some questions and a dilemma. Fair warning there’s quite a bit to process
Mufan99
in
British Liver Trust
3 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
3 months ago
Can't get warm
In dialysis today I had them raise the temp on the machine from 36 to 37 as I was so cold. When I got in the car to drive home I turned the temp all the way up. I have sweatpants on, 2 shirts and a hoodie with a light jacket and a blanket on my legs. I'm drinking a cup of coffee and still can not stop
In dialysis today I had them raise the temp on the machine from 36 to 37 as I was so cold. When I got in the car to drive home I turned the temp all the way up. I have sweatpants on, 2 shirts and a hoodie with a light jacket and a blanket on my legs. I'm drinking a cup of coffee and still can not stop
horsie63
in
Kidney Dialysis
3 months ago
Conservative treatment
Hi I’ve just been told that my dad who is 93 can’t have dialysis because of a lot of other health problems. His egfr is 6. His treatment will just be palliative although he’s not suffering from many symptoms at the minute. Does anyone have experience of how low egfr has to get before it is fatal
Hi I’ve just been told that my dad who is 93 can’t have dialysis because of a lot of other health problems. His egfr is 6. His treatment will just be palliative although he’s not suffering from many symptoms at the minute. Does anyone have experience of how low egfr has to get before it is fatal
Hidden
in
Kidney Disease
3 months ago
Contradicting Dietary Advice
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
GosportNancy29
in
Kidney Disease
3 months ago
Contradicting Dietary advice
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
I have a dilemma, I have heart failure and am at increased risk of cardiac arrest because I have had one already. I also have stage 3 chronic kidney disease + type 2 Diabetes. The dietary requirements for heart failure include foods high in potassium and the main dietary requirements for those with
GosportNancy29
in
British Heart Foundation
3 months ago
gfr 6
with a gfr of 6 what is the life expectancy if you don’t want dialysis
with a gfr of 6 what is the life expectancy if you don’t want dialysis
Hidden
in
Kidney Disease
3 months ago
Yes, definitely
Losing weight using a healthy diet (no Rx) and exercise can definitely improve kidney function. Btw, most people with ckd die from a heart condition before reaching dialysis necessity (90%). Healthy diet and exercise greatly reduces cardiovascular risks for 98% of people.
Losing weight using a healthy diet (no Rx) and exercise can definitely improve kidney function. Btw, most people with ckd die from a heart condition before reaching dialysis necessity (90%). Healthy diet and exercise greatly reduces cardiovascular risks for 98% of people.
PensacolaSharon
in
Kidney Disease
3 months ago
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