High temperature

[OggieSh]

Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has noticed it started after she has been put on some medication for her gastrointestinal problem which seems to have been fixed.

What can this be and what else can be checked? The tests seem to be fine but she is also so weak now and has no energy and wants to sleep all the time

I am so worried.

[TomMilds]

Hi, OggieSH,

What is blood pressure on procedure? It might be overdry. She can bring a bottle and drink it during procedure.

[OggieSh in reply to TomMilds]

Blood pressure when she comes for dialysis is 150 and drops to 100 during dialysis. This is true about dehydration . She was saying that the water was not staying at all and she was very dehydrated. She mentioned this several times. Although now she says the water started staying for the last 4 days and she has put a bit on weight.She had dialysis yesterday and temperature starts rising during dialysis already. When she got home it was 38.4

[TomMilds in reply to OggieSh]

A little fever after dialysis is common case, but 38.4 is too high. Center personel can adjust temperature of blood (usual value is 37). Need dry weight check. How clear is dialysis filter after procedure?

[OggieSh in reply to TomMilds]

Today she tried drinking water and had no temperature during the dialysis but when she came home she had again 38 temperature.All tests came back fine and can't fund any infections or abnormalities. She also started having really bad sweats at night so she changes clothes 3 times per night. Nothing day time. She had no temperature yesterday and today before dialysis.

It is so strange. Doctors can't tell also. They are now thinking may be the medication she was put on is affecting it but she did not take this medication today. 😞 I am so worried. Not sure what else to check.

[TomMilds in reply to OggieSh]

High temperature is sign of inflammation. High levels of protein (GOP, GPT) also points to inflammation. What the medications you were used? Binders are not causing rising temperature.

[OggieSh in reply to TomMilds]

I found out which medications she has been taking: midrol and pentasa. It seems that all went down the hill after she took them. Her blood pressure started to go up to 200 also. She stopped the meds but she keeps having those symptoms and gets weaker and this is the problem . She is 76 so it's gard for her to not sleep at night and have a temperature. Both meds seem to have awful side effects but they don't speak about temperature though however medrol mentions hormones and sweats. I so much regret her taking those meds. They have not even helped, all got better by itself for her - the other issues she had.

[Benjamin124]

I'm sorry to hear about your mum's health concerns.

The high temperature after dialysis could indicate an infection or a reaction to medications. It's important to discuss these symptoms with her healthcare team to explore potential causes like dialysis-related infections, medication side effects, or underlying health conditions.

Requesting further tests or consultations with specialists might provide more clarity. Supporting her with rest, hydration and close monitoring of symptoms can help manage her condition.

[OggieSh in reply to Benjamin124]

Thank you for the message, Benjamin. I really appreciate it.And you are right here - they have found quite a bad infection in the end. It is strange that so many tests have been done and they could not find before. It is a streptococcal bacterial infection. She is still on strong antibiotics but she is better and has been discharged from hospital today. Eventually all blood tests were bad, all went either too high, or too low so they have found the reason. They thought it was oncology but thanks God this is not the case.

I am just praying now that she gets better fast and this infection is treatable fully. So scary and random.

[Tygrluv13 in reply to OggieSh]

I'm glad they found the reason your mum was not wellI was going to say also she probably has an infection and keep bugging her Dr about it.

When ever you know that your mum is not her normal self keep bugging those Dr they may not like it but never stop untell you get answers. You see your mum probably the most out of anyone and you know the difference.

I pray 🙏 for her recovery.

[OggieSh in reply to Tygrluv13]

Thank you so much for the kind wishes. This is the problem I live far away and I was shocked how all doctors ignored the fact that she went from a strong person in her age walking miles around the lake before her dialysis to the person who cannot even stand up from her bad without support. They actually see her all the time and noone was worried about this just. She is slowly recovering now and I hope infection goes away fully and is not here forever. I read it is extremely difficult bacteria to deal with. But mum starts walking again slowly with support . So so scary ! You are so right that everyone needs to keep pushing for checks when we know something is not 100% right. ❤️💕