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FSGS - does anyone have this?
waiting for a full diagnosis but now looking like I have this. If you have had it, how has it been for you? When were you diagnosed & what was your EGFR at this point? How long before you went onto dialysis?
waiting for a full diagnosis but now looking like I have this. If you have had it, how has it been for you? When were you diagnosed & what was your EGFR at this point? How long before you went onto dialysis?
Meagain24
in
Kidney Disease
1 month ago
There's Hope
Being a dialysis patient can have its difficulty, but when you have dual diagnosis like being a diabetic sometimes it feels like all he'll breaks through. But I decided to reach out to my medical team and I got the support I needed as well as understanding my situation. I have a plan that I and my
Being a dialysis patient can have its difficulty, but when you have dual diagnosis like being a diabetic sometimes it feels like all he'll breaks through. But I decided to reach out to my medical team and I got the support I needed as well as understanding my situation. I have a plan that I and my
Quita55
in
Kidney Dialysis
1 month ago
Hello
Hi, I'm new to one of these pages. I have had FSGS since I was 7 and between the 4 transplants I have had plenty of dialysis. I am over 40 now and back on dialysis. I am having a hard time this time around. It has been harder and looking for others like me to talk with.
Hi, I'm new to one of these pages. I have had FSGS since I was 7 and between the 4 transplants I have had plenty of dialysis. I am over 40 now and back on dialysis. I am having a hard time this time around. It has been harder and looking for others like me to talk with.
Apache11
in
Kidney Disease
1 month ago
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FTC investigating DaVita and Fresenius
FTC looking into required noncompete clauses with medical staff and the tactics they use to prevent folks from trying home dialysis. The dominance in the US of the two companies does not promote lower prices through competition. Their contracts prevent Dr from working for newer companies. https://www.politico.com
FTC looking into required noncompete clauses with medical staff and the tactics they use to prevent folks from trying home dialysis. The dominance in the US of the two companies does not promote lower prices through competition. Their contracts prevent Dr from working for newer companies. https://www.politico.com
barbara55109
in
Kidney Disease
1 month ago
Declining eFGR
Hi. Just joined this forum. I'm a 66 healthy male. Since December of last year my efgr has declined from 63 to 57 a couple of weeks ago. Now CKD Stage 3 a. My father had polyscistic kidneys and recieved dialysis during his last few years. My ACR and BP were normal. My creatinine level however was 114
Hi. Just joined this forum. I'm a 66 healthy male. Since December of last year my efgr has declined from 63 to 57 a couple of weeks ago. Now CKD Stage 3 a. My father had polyscistic kidneys and recieved dialysis during his last few years. My ACR and BP were normal. My creatinine level however was 114
Bluecharles
in
Kidney Disease
1 month ago
Depression in dialysis patients
How can I help my son who refuses to take dialysis on a regular basis. He has had many heart attacks, is diabetic and needs a kidney, as well as new heart. I recognize anger and depression in him. But, you cannot talk to him about it, because he becomes extremely agitated. He's almost given
How can I help my son who refuses to take dialysis on a regular basis. He has had many heart attacks, is diabetic and needs a kidney, as well as new heart. I recognize anger and depression in him. But, you cannot talk to him about it, because he becomes extremely agitated. He's almost given
JESUSWENEEDYOU
in
Kidney Disease
1 month ago
ICU Stay Neuro Challenges
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains
Doglover276
in
ICUsteps
1 month ago
Critical illness neuropathy and critical illness myopathy
Are there any members of this group who are aware of anyone being placed into an induced coma with pneumonia and whilst in the coma suffered kidney issues and were placed on dialysis and then came off it. Has anyone knowledge of anyone coming out of an induced coma and being unable to speak or move
Are there any members of this group who are aware of anyone being placed into an induced coma with pneumonia and whilst in the coma suffered kidney issues and were placed on dialysis and then came off it. Has anyone knowledge of anyone coming out of an induced coma and being unable to speak or move
Twoblu
in
ICUsteps
1 month ago
pain in fistula arm
I will be 76 years old in August, 2024 and have been suffering kidney disease since 13 years old. I have been on dialysis for over a month. One time after the needles were removed from my fistula, I noticed sharp pain when I extended that arm. The nurses at the center claimed that likely the needle
I will be 76 years old in August, 2024 and have been suffering kidney disease since 13 years old. I have been on dialysis for over a month. One time after the needles were removed from my fistula, I noticed sharp pain when I extended that arm. The nurses at the center claimed that likely the needle
Lee75glom
in
Kidney Disease
1 month ago
BIOPSY
Does everyone have to have a kidney biopsy before they can have dialysis.
Does everyone have to have a kidney biopsy before they can have dialysis.
bevgt
in
Early CKD Support
1 month ago
What's the one thing you would ask a friend or relative to bring in to someone in ICu?
HI,Posted previously about my Dad, he's making small slow improvements, very tired and says he's in agony (his hips and bottom mainly). We can understand him now, but he gets so tired, and he's still so weak (can barely move). Still on Dialysis and tube fed, begging for a drink as his mouth feels horrid
HI,Posted previously about my Dad, he's making small slow improvements, very tired and says he's in agony (his hips and bottom mainly). We can understand him now, but he gets so tired, and he's still so weak (can barely move). Still on Dialysis and tube fed, begging for a drink as his mouth feels horrid
Preciousfamily
in
ICUsteps
1 month ago
Hello
Hi all. My husband had kidney disease and we were given the option of Home PD or dialysis in a facility. Where can I find pros and cons for both. The physician says at home will need every day as opposed to three days a week... any information is greatly appreciated.
Hi all. My husband had kidney disease and we were given the option of Home PD or dialysis in a facility. Where can I find pros and cons for both. The physician says at home will need every day as opposed to three days a week... any information is greatly appreciated.
Juventus-Arsenal
in
Kidney Dialysis
1 month ago
Making the Case for Home Dialysis
Many patients are not informed when they first begin dialysis that there are more options beyond the traditional in-center, in-a-chair, 3 times a week system. Only 14% of patients on dialysis in the US are using at-home options, despite evidence showing that it may be a better option for some patients
Many patients are not informed when they first begin dialysis that there are more options beyond the traditional in-center, in-a-chair, 3 times a week system. Only 14% of patients on dialysis in the US are using at-home options, despite evidence showing that it may be a better option for some patients
JackieJ_NKF
Partner
in
Kidney Dialysis
2 months ago
starting home dialysis
Hi. I am 49 years old. I am getting the catheter put in my stomach in 2 weeks, so that I can do the home dialysis. Is it called PD? I forget what it's called. But it's the one I do when I'm sleeping. I feel like there is just no support or help to prepare for this. My insurance has some place
Hi. I am 49 years old. I am getting the catheter put in my stomach in 2 weeks, so that I can do the home dialysis. Is it called PD? I forget what it's called. But it's the one I do when I'm sleeping. I feel like there is just no support or help to prepare for this. My insurance has some place
WhoaFella
in
Kidney Dialysis
2 months ago
Transient treatment
Can anyone still get transient dialysis treatment? It's never been so hard. My wife has been on dialysis for 8 years, and when she started this journey, we were told travel was no problem. Yeah, right, those were the days. She can't visit her parents (live 5+ hrs away) for more than a day because
Can anyone still get transient dialysis treatment? It's never been so hard. My wife has been on dialysis for 8 years, and when she started this journey, we were told travel was no problem. Yeah, right, those were the days. She can't visit her parents (live 5+ hrs away) for more than a day because
JerseyCows
in
Kidney Dialysis
2 months ago
Dad, 77, in ICU, double pneumonia, now issues with kidneys
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to Intensive Care and intubated due to double pneumonia. Normally a health, active 77 year old. They said he wouldn't make it through the
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to Intensive Care and intubated due to double pneumonia. Normally a health, active 77 year old. They said he wouldn't make it through the
Preciousfamily
in
ICUsteps
2 months ago
LasVegasLover
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
LasVegasLover
in
Kidney Dialysis
2 months ago
Health food and Supplements-Warning!!
I just wanted to pass on a danger of too many vitamins, etc. My brother always worked out and took about 40 supplements a day as well as avoiding sugar, alcohol and anything that remotely seemed unhealthy. He is 3 1/2 years younger than me. All those supplements put him in Renal failure and on Dialysis
I just wanted to pass on a danger of too many vitamins, etc. My brother always worked out and took about 40 supplements a day as well as avoiding sugar, alcohol and anything that remotely seemed unhealthy. He is 3 1/2 years younger than me. All those supplements put him in Renal failure and on Dialysis
FootDr
in
Atrial Fibrillation Support
2 months ago
sorry for not supporting as I should can I now?
sorry I was going through a lot with dialysis and should have not been on here as much I could have but would love to be of any help to anyone who may need it I got my transplant in January of 2023 and remember how difficult that can be
sorry I was going through a lot with dialysis and should have not been on here as much I could have but would love to be of any help to anyone who may need it I got my transplant in January of 2023 and remember how difficult that can be
Vacuumnerd
in
Dialysis Support
2 months ago
Finding my way
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
taar
in
Kidney Transplant
2 months ago
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