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Confused
I had my first appointment with an endo specialist today. I think I'm still in shock at the whole situation to be honest and am trying to sort things out in my head. I've just turned 40 and there's no history of endo in my family. I've been diagnosed with endo and adenomyosis. The endo is between
I had my first appointment with an endo specialist today. I think I'm still in shock at the whole situation to be honest and am trying to sort things out in my head. I've just turned 40 and there's no history of endo in my family. I've been diagnosed with endo and adenomyosis. The endo is between
Tulip1983
in
Endometriosis UK
9 months ago
Higgyandpiggy
Hi, I have had a TKR to both in the last 2 years. A friend lent me a cuff called a Cryocuff which compresses and cools the knee. It really helped. They are expensive to buy but they canbe hired. I was given crutches with special handles, designed for arthritic hands and they helped too. Everything
Hi, I have had a TKR to both in the last 2 years. A friend lent me a cuff called a Cryocuff which compresses and cools the knee. It really helped. They are expensive to buy but they canbe hired. I was given crutches with special handles, designed for arthritic hands and they helped too. Everything
Higgyandpiggy
in
NRAS
6 months ago
Total knee replacement
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasn’t great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR it’s possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
Toffeeboyblue
in
PMRGCAuk
6 months ago
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bladder problems after total hysterectomy
hi has anyone experienced bladder problems after total hysterectomy. I am getting frequent urine infections and passing blood - pink streaks in urine and also urge incontinence is a problem. I would appreciate any experience you have regarding these issues. Kind Regards Lara
hi has anyone experienced bladder problems after total hysterectomy. I am getting frequent urine infections and passing blood - pink streaks in urine and also urge incontinence is a problem. I would appreciate any experience you have regarding these issues. Kind Regards Lara
Lara1244
in
Menopause and Perimenopause Support
9 months ago
Total knee replacement, if and when?
I am looking for comments on my decision to delay my total knee replacement until I am either suffering too much pain or my mobility becomes to restricted. I am 71 and suffered from arthritis in both knees for over Forty years. The right one has been the worse, until 2020. RECENT HISTORY 29 Jan
I am looking for comments on my decision to delay my total knee replacement until I am either suffering too much pain or my mobility becomes to restricted. I am 71 and suffered from arthritis in both knees for over Forty years. The right one has been the worse, until 2020. RECENT HISTORY 29 Jan
hampsetwoden
in
Arthritis Action
6 months ago
help interpreting last test results
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
MiaMam
in
Thyroid UK
3 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
5 months ago
Prostap longer than 6 months?
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Honeybeehappy
in
Endometriosis UK
9 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
6 months ago
No endo found
Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel adhesions noted. Mirena inserted. May 2022 the pain started again, lower left side and down my leg. All around mid and end cycle. Referred back to gynae. Since tried the progesterone only pill on top, had a normal mri
Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel adhesions noted. Mirena inserted. May 2022 the pain started again, lower left side and down my leg. All around mid and end cycle. Referred back to gynae. Since tried the progesterone only pill on top, had a normal mri
Ccn2018
in
Endometriosis UK
9 months ago
BCF after 9 years post proton therapy
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
hwrjr
in
Prostate Cancer Network
5 months ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Hello, I was diagnosed with stage 3 c ovarian cancer had debulking surgery complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel? i think thts how u spell it but im now in remission but also have the brca 1 mutation gene and did lynparza for 3 weeks and was feeling bad brain
Mommashark6
in
SHARE Ovarian Cancer Support
9 months ago
Help sought with iron panel, please
I took an Advanced Thyroid panel with Medichecks on 9th February, and my ferritin came back much lower than optimal, to the point where their GP commented that it could be increased: Ferritin 51.4 (30-264) 9.15% through range I followed the advice I've seen posted here over the years and took a
I took an Advanced Thyroid panel with Medichecks on 9th February, and my ferritin came back much lower than optimal, to the point where their GP commented that it could be increased: Ferritin 51.4 (30-264) 9.15% through range I followed the advice I've seen posted here over the years and took a
Thalia56
in
Thyroid UK
4 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
5 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
surgery ready
So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op tests and book of a tick box questionnaire. Feeling a bit weird, I know all the pain and bleeding and hospital visits will be over at last, and I know I need this surgery because without it I just won’t have a normal life
So I’m on the countdown to my total hysterectomy on 5th October. Had the pre op tests and book of a tick box questionnaire. Feeling a bit weird, I know all the pain and bleeding and hospital visits will be over at last, and I know I need this surgery because without it I just won’t have a normal life
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
Covid
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldn’t smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
Wesleygrange2a
in
MPN Voice
9 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
6 months ago
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