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Both ovaries out or not?
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Loveneige
in
Endometriosis UK
2 months ago
Dienogest withdrawal
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Sheep2
in
Endometriosis UK
2 months ago
Is the end in sight???
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Stopalready
in
Endometriosis UK
2 months ago
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what to try next?
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
KML22
in
Endometriosis UK
2 months ago
Accuracy doubtful due to fusion hardware?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
Jeaniem130
in
Bone Health and Osteoporosis UK
2 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
2 months ago
Meningioma advice
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Calannmc
in
Meningioma Support
2 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
2 months ago
HRT and fatigue
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
I'm quite interested to see if this resonates with anyone else .Was diagnosed with RA 2018, and been on methotrexate and Hydroxychloroquine ever since. Once the dose settled it's controlled the RA swelling. But the fatigue has been awful and constant. I assumed a result of the RA and side effects of
Spaniellady
in
NRAS
2 months ago
Knee replacement & lupus
Hello. Im due to have a whole knee replacement very soon. I was wondering has anybody else had one,and any advice or tips for a good recovery.Thanks so much xxx
Hello. Im due to have a whole knee replacement very soon. I was wondering has anybody else had one,and any advice or tips for a good recovery.Thanks so much xxx
MonicaT
in
LUPUS UK
1 year ago
MCAS and LEVOTHYROXINE Nightmare
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately
CGH123
in
Thyroid UK
2 months ago
sertraline
Hi all, I’m been on Hrt about 18 months now but my anxiety is still extremely high, as it’s relentles. I’ve tried anti depressants flouxetine and Mirtazipine that haven’t really helped. I’m thinking of trying sertraline next, and was wondering if it has helped anyone with menapausal anxiety please.
Hi all, I’m been on Hrt about 18 months now but my anxiety is still extremely high, as it’s relentles. I’ve tried anti depressants flouxetine and Mirtazipine that haven’t really helped. I’m thinking of trying sertraline next, and was wondering if it has helped anyone with menapausal anxiety please.
BjAli
in
Menopause and Perimenopause Support
2 months ago
Could heart pain be related to peri menopause?
Hi everyone. I’ve just recently stopped taking HRT patches as I felt nearly suicidal for two weeks every month. I have been having pains like a stitch in my heart on and off for weeks. Was wondering if any of you have ever experienced anything like this and if it was related to peri menopause
Hi everyone. I’ve just recently stopped taking HRT patches as I felt nearly suicidal for two weeks every month. I have been having pains like a stitch in my heart on and off for weeks. Was wondering if any of you have ever experienced anything like this and if it was related to peri menopause
Ktez
in
Menopause and Perimenopause Support
2 months ago
stitch pains in heart
I’ve recently been told I have Left Ventricle Non Compaction and I also have the dilated cardiomyopathy gene but no symptoms of that yet. My EF is 52 and consultant not too concerned for now. The strange thing is, almost within a day or two or learning this new information, I’ve been having small
I’ve recently been told I have Left Ventricle Non Compaction and I also have the dilated cardiomyopathy gene but no symptoms of that yet. My EF is 52 and consultant not too concerned for now. The strange thing is, almost within a day or two or learning this new information, I’ve been having small
Ktez
in
British Heart Foundation
2 months ago
Clonazepam
looking for advice. I’ve been taking 1mg Clonazepam to help sleep but I e read quite a few horror stories about it so it’s making me nervous about taking it. I’ve not slept for six months and my tinnitus has become rea tube to virtually every sound you can think of. I believe it become my nervous system
looking for advice. I’ve been taking 1mg Clonazepam to help sleep but I e read quite a few horror stories about it so it’s making me nervous about taking it. I’ve not slept for six months and my tinnitus has become rea tube to virtually every sound you can think of. I believe it become my nervous system
Lakeshiker
in
Tinnitus UK
2 months ago
Neuro Behcet's and surgery.
I'm being investigated for headaches which I have had for a couple of months. I'm having an MRI (brain) in a couple of days to see if anything shows up, then I will see the neurologist. If it turns out to be neuro Behcet's, as I have a diagnosis of Behcet's anyway, I'm wondering if it may affect my hip
I'm being investigated for headaches which I have had for a couple of months. I'm having an MRI (brain) in a couple of days to see if anything shows up, then I will see the neurologist. If it turns out to be neuro Behcet's, as I have a diagnosis of Behcet's anyway, I'm wondering if it may affect my hip
Sherlock11
in
Behçet's UK
9 months ago
Malabsorption of drugs?
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
Chickens44
in
Pernicious Anaemia Society
2 months ago
T3 only and feeling a bit desperate
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
I have been taking T3 only for a handful of years now and for a couple of them on a LCHF diet I was happy enough. I lost weight, and felt good. In October 2020 I restarted HRT (I still had/have) hot flushes, but within 2 months I had started to gain weight and on balance I thought that I would rather
Icicles
in
Thyroid UK
2 months ago
diagnosis process
hey all, I posted last week regarding my mum who was awaiting her results. They had MDT on Thursday and called her straight in for 08:30am Friday to see gynae/onc consultant for results. They didn’t mention anywhere else on her CT other than what we already knew about the ovary so we are assuming
hey all, I posted last week regarding my mum who was awaiting her results. They had MDT on Thursday and called her straight in for 08:30am Friday to see gynae/onc consultant for results. They didn’t mention anywhere else on her CT other than what we already knew about the ovary so we are assuming
Kerri1402
in
My Ovacome
11 months ago
hip replacement & taking Flecainide 150mg x 2
Hi everyone - I have been on Flecainide 150mg twice daily for nearly a year now (increased from 100mg x 2) and thus far the A.F episodes (17 in 2022) have ceased. My problem now is I am facing the prospect of hip replacement surgery & wonder if anyone else has experienced this and did they have to stop
Hi everyone - I have been on Flecainide 150mg twice daily for nearly a year now (increased from 100mg x 2) and thus far the A.F episodes (17 in 2022) have ceased. My problem now is I am facing the prospect of hip replacement surgery & wonder if anyone else has experienced this and did they have to stop
Fib36
in
AF Association
9 months ago
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