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MrFacts
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
Can somebody highlight the entire causes and side effects of IV steroids They cause osteoporosis, which is bone loss So where does this bone loss go and where does if form I know steroids settles inflammation But long term, is the systemic impact on us better or worse After two courses of
mrfacts
in
Vasculitis UK
10 months ago
Lymphedema & Knee bursitis
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
I have Inflammatory arthritis, Sjogren's and OA. I have been on Methotrexate and Imraldi since 2017, before that I was on Benepali. I have had a new hip in 2017 and I also suffered with my knees which despite many steroid injections they are no longer having any effect. I saw my rheumatologist
Bailybiscuit
in
NRAS
5 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
5 months ago
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Good news about steroids!
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
I thought I would share the results of a recent study. It looked at 1112 (wow!) people with Rheumatoid Arthritis who were either taking 7.5mg or less of prednisolone regularly, or a control drug which wasn't a steroid. After two years, those taking prednisolone weighed on average only around 1kg more
oldtimer2
in
NRAS
10 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
10 months ago
Severe Degenerative Arthritis and Osteoporosis
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
Bluebell999
in
Arthritis Action
10 months ago
Nervous changing from Prednisolone to Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
I have been on prednisolone for about 6 years and was down to 4.5mg but not feeling great with general pain so upped it to 5mg. Adrenal gland isn’t working so I doubt if I can get off steroids entirely anytime soon. Anyway spoke to my Endocrinologist the other day and we discussed trying Hydrocortisone
Suffolklady
in
PMRGCAuk
10 months ago
steroids
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
Is there an alternative to steroids or do I have to have them ? I can’t stand sweating buckets for hours on end ! Or is it a matter of having to deal with it ?
TedTheMaineCoon
in
PMRGCAuk
10 months ago
re:- White blood cell count on steroids
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
Hi, Recently diagnosed with PMR and having started on 30mg. prednisolone now down to 15 mg in 3 weeks and seem to be doing well. Just had blood tests done and white blood cell count is high 16.4 10*9/L and am rather concerned, although as I understand this is a common side effect of steroids. Any
gillsky8
in
PMRGCAuk
10 months ago
Weaning off times for Levothyroxine and steroids for BFP - please share? Thank you
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Hi Ladies My clinic want to wean me off steroids and levothyroxine (only took as levels elevated by IVF drugs) can you please advise me on the timelines that your clinic used, or times you would recommend based on your personal experience? It’s a bit scary as these drugs helped to get the BFP. Thank
Eggfreezer2015
in
Fertility Network UK - Pregnancy Support
10 months ago
feeling sick
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
Hi I’m new to this PMR diagnosis. Is it normal to feel sick and off food ? I’ve been off steroids for a few weeks , but might be put back on them .
TedTheMaineCoon
in
PMRGCAuk
10 months ago
Infusion
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
Fractured left humorous currently, previous fractured wrist and previous fractured foot, all left side, all due to falls. Am on 3.5mgs down from 15mgs May2022, dexascan levels good, rhuemt appt last week, she said because of being on steroids and a fracture I should have an infusion. Anyone had this,
456again
in
PMRGCAuk
10 months ago
Isolated
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
Ellamaye
in
Vasculitis UK
10 months ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
10 months ago
Second Rituximab infusion.
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Jacksc06
in
CLL Support
10 months ago
Heart Medicine Increased inhaled steroid absorption.
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
Karenjaninaz
in
PMRGCAuk
10 months ago
Acute steroid myopathy
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Body_bonkers
in
PMRGCAuk
10 months ago
Is this overkill?
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
humlies
in
PMRGCAuk
10 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
10 months ago
hair loss - Adalimumab ?
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
Bucket13
in
Crohn's and Colitis Support
10 months ago
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