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Eylea
I have been diagnosed with severe wet amd with severe vision lost. Had my first eylea injection. Am wondering if anyone else with severe vision loss had any success with Eylea treatments.
I have been diagnosed with severe wet amd with severe vision lost. Had my first eylea injection. Am wondering if anyone else with severe vision loss had any success with Eylea treatments.
GailGail
in
Macular Society
3 years ago
Eylea injection
I have wet amd with severe vision loss in one eye..Just had my first injection. Has anyone had severe loss with any success in treatment?
I have wet amd with severe vision loss in one eye..Just had my first injection. Has anyone had severe loss with any success in treatment?
GailGail
in
Macular Society
3 years ago
MRI Scan
Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of pmr in 9 months now except for dreadfull head and eye problem. Optitian said eyes OK and 111 sent me to hospital for a check they said all ok. Rheumatologist suggested to dr to send me for a scan so after 11 weeks I am
Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of pmr in 9 months now except for dreadfull head and eye problem. Optitian said eyes OK and 111 sent me to hospital for a check they said all ok. Rheumatologist suggested to dr to send me for a scan so after 11 weeks I am
Cosmos22Marigold
in
PMRGCAuk
3 years ago
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Drinking alcohol and Macular Degeneration.
Hello good people, Have any of you given up drinking because of MD. Dad said that he shouldn’t because of his liver. When I spoke to Dr about him she said everything was fine, blood, liver etc. Just wondered. Thanks.
Hello good people, Have any of you given up drinking because of MD. Dad said that he shouldn’t because of his liver. When I spoke to Dr about him she said everything was fine, blood, liver etc. Just wondered. Thanks.
Garfield33
in
Macular Society
3 years ago
Glaucoma and Cataract Surgery
Hi everyone, I know this is such a helpful forum and just wondered about other people’s experience of having cataract surgery when also having Glaucoma (I have open angle glaucoma)? I had my right cataract removed last week and my left this week and had lenses put in for my extremely bad near sightedness
Hi everyone, I know this is such a helpful forum and just wondered about other people’s experience of having cataract surgery when also having Glaucoma (I have open angle glaucoma)? I had my right cataract removed last week and my left this week and had lenses put in for my extremely bad near sightedness
Spanieldoglover
in
Glaucoma UK
3 years ago
New GP
Recently moved and saw a new GP yesterday. He was bewildered that I had been having headaches, blurred and double vision for months before and following my pmr diagnosis and no one thought a biopsy was urgently needed. Referred me to a surgeon to rule out GCA. Also referred to a new rheumy, so feeling
Recently moved and saw a new GP yesterday. He was bewildered that I had been having headaches, blurred and double vision for months before and following my pmr diagnosis and no one thought a biopsy was urgently needed. Referred me to a surgeon to rule out GCA. Also referred to a new rheumy, so feeling
Stickgal316
in
PMRGCAuk
3 years ago
Twirling "fans" in periphery
Does anyone experience pulsating lights (dim) in their peripheral vision? Similar to a twirling fan? I first experience this following cataract and vitreous replacement surgery last year. It disappeared shortly after, but has returned recently . It is mostly in my lower vision and I notice it more
Does anyone experience pulsating lights (dim) in their peripheral vision? Similar to a twirling fan? I first experience this following cataract and vitreous replacement surgery last year. It disappeared shortly after, but has returned recently . It is mostly in my lower vision and I notice it more
Ikansea
in
Macular Society
3 years ago
Glaucoma - Intractable eye pain
My daughter Natasha has closed angle glaucoma with apparently Pigmentary Dispersion Syndrome. She has had one operation to reduce the ciliary bodies because her intraocular pressures were getting progressively higher. This worked very well, and pressures are now well controlled. She takes her eye drops
My daughter Natasha has closed angle glaucoma with apparently Pigmentary Dispersion Syndrome. She has had one operation to reduce the ciliary bodies because her intraocular pressures were getting progressively higher. This worked very well, and pressures are now well controlled. She takes her eye drops
NackJich2
in
Glaucoma UK
3 years ago
Fear
Why I Fear of going blind with OHT without any damage whenever my visit to the Doctor comes near....I have read a lot about Glaucoma from internet...Can reading a lot induce this kind of fearful behaviour in an individual? I was quite normal since yesterday when i realized that my doctor's visit is
Why I Fear of going blind with OHT without any damage whenever my visit to the Doctor comes near....I have read a lot about Glaucoma from internet...Can reading a lot induce this kind of fearful behaviour in an individual? I was quite normal since yesterday when i realized that my doctor's visit is
Gurjar
in
Glaucoma UK
3 years ago
Life Change / Adjustment
Hello to you all. Its been very educational reading this forum. I have learnt a lot. I do not have Glaucoma myself but my husband was diagnosed a few years ago. He is 38 & we have 2 small children. His left eye has some irrevesable damage , the right one is ok . Hes has laser on that eye but pressures
Hello to you all. Its been very educational reading this forum. I have learnt a lot. I do not have Glaucoma myself but my husband was diagnosed a few years ago. He is 38 & we have 2 small children. His left eye has some irrevesable damage , the right one is ok . Hes has laser on that eye but pressures
Nyasham
in
Glaucoma UK
3 years ago
Success with IOPs of 6-8 with a trabeculectomy?
I have have normal tension glaucoma brought about from Lasik surgery which gave me very thin corneas. Though my IOPs range from 10-15, I would need an IOP as low as possible, however, I am frightened of severe hypotony. I live in the U.S. and the surgeons don't go into detail as much as those in
I have have normal tension glaucoma brought about from Lasik surgery which gave me very thin corneas. Though my IOPs range from 10-15, I would need an IOP as low as possible, however, I am frightened of severe hypotony. I live in the U.S. and the surgeons don't go into detail as much as those in
bessygo
in
Glaucoma UK
3 years ago
Dry eyes & Vitamin B12
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Hi, I have just come across an article online which I thought may be of interest to anyone who suffers from dry eyes as I do: [i]Vitamin B12 is a water-soluble vitamin that helps the body make DNA and nerve cells. Deficiency of this nutrient is associated with severe dry eye disease and eye pain, according
Moggy1234
in
Pernicious Anaemia Society
3 years ago
COLLAGEN POWDER
Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, with some success. Our local health food store was suggesting a collagen supplement. Has anyone heard of adding collagen powder to smoothies or sprinkling on cereal as an aid to building connective tissue? I bought some anyway
Hi I have SLE and have been trying to reduce my MTX and prednisolone doses, with some success. Our local health food store was suggesting a collagen supplement. Has anyone heard of adding collagen powder to smoothies or sprinkling on cereal as an aid to building connective tissue? I bought some anyway
wallock
in
LUPUS UK
3 years ago
PRESSURE IN HEAD & POSS. TED -Thyroid Eye Disease
Can too much or too little levothyroxine cause a pressure pain in your head & stiffness in your neck aswell as tinnitus & ear problems? Also if one eye is showing larger than the other on a regular basis with piercing pain can this be TED ? Thyroid Eye Disease ? I am at the moment on levothyroxine
Can too much or too little levothyroxine cause a pressure pain in your head & stiffness in your neck aswell as tinnitus & ear problems? Also if one eye is showing larger than the other on a regular basis with piercing pain can this be TED ? Thyroid Eye Disease ? I am at the moment on levothyroxine
Toto88
in
Thyroid UK
3 years ago
Dry eye gel for night time
After having had an awful week with my right eye, managed to get an appointment yesterday at the eye clinic, but only with a senior nurse. After lots of tests and a scan, she seems to think there isn't anything to worry about. The reflections around the eye that I have been experiencing, particularly
After having had an awful week with my right eye, managed to get an appointment yesterday at the eye clinic, but only with a senior nurse. After lots of tests and a scan, she seems to think there isn't anything to worry about. The reflections around the eye that I have been experiencing, particularly
Engima
in
Glaucoma UK
3 years ago
Flecainide with Afib and LBBB?
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
IsobelBrown54
in
Atrial Fibrillation Support
3 years ago
So upset
After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem Recently went for bloods and on the slip it states :diagnosis: undifferentiated inflammatory condition. Today I receive a letter from rheumatology to say this.... Dear Jemma Diagnosis
After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem Recently went for bloods and on the slip it states :diagnosis: undifferentiated inflammatory condition. Today I receive a letter from rheumatology to say this.... Dear Jemma Diagnosis
BabyOleg
in
LUPUS UK
3 years ago
LAMP test for SARS-CoV-2 being Piloted in UK Hospitals and students to reduce asymptomatic transmission.
"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be accurate and sensitive enough to be used for COVID-19 testing, including for those without symptoms." Loop-mediated isothermal amplification (LAMP) is a single-tube technique for the amplification of DNA and a low-cost, rapid
"A technical and clinical evaluation has confirmed OptiGene RT-LAMP tests to be accurate and sensitive enough to be used for COVID-19 testing, including for those without symptoms." Loop-mediated isothermal amplification (LAMP) is a single-tube technique for the amplification of DNA and a low-cost, rapid
Jm954
Administrator
in
CLL Support
3 years ago
Venetoclax and Stelara
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Driverps1
in
CLL Support
3 years ago
Routine Follow Up
I've had my AMD treated with Eylea injections, and recently I've not needed more injections, but I was still regularly followed up in outpatients (OPD). I was last seen in Feb/ 21, but since then I seemed to have fallen off their radar. I understood in Feb. I would be seen in 6 months, but to date
I've had my AMD treated with Eylea injections, and recently I've not needed more injections, but I was still regularly followed up in outpatients (OPD). I was last seen in Feb/ 21, but since then I seemed to have fallen off their radar. I understood in Feb. I would be seen in 6 months, but to date
fed13
in
Macular Society
3 years ago
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