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Pelvic pain
I had a Hysterectomy with Bilateral Salpingo- Oophorectomy in November 2019 which was the best thing I had done but in the 7 th August this year 2020 I developed pain in my pelvic area and lower back and sometimes radiates to my sides it’s very uncomfortable and it not going away I’ve had urine samples
I had a Hysterectomy with Bilateral Salpingo- Oophorectomy in November 2019 which was the best thing I had done but in the 7 th August this year 2020 I developed pain in my pelvic area and lower back and sometimes radiates to my sides it’s very uncomfortable and it not going away I’ve had urine samples
Crazy-kazo
in
Pelvic Pain Support Network
4 years ago
Rachel-Faye Endometrioid Ovarian Cancer Stage 1A Grade 1
I was diagnosed on 9/11 /2018 on the phone having had debulking surgery on 20/8/18. Total abdominal hysterectomy, Bilateral salpingo oopherectomy and omentectomy . No chemo offerered just WATCH & WAIT for 5 years. Year 1: 3-monthly CT scans and CA125s + consultation with gynae/oncologist Year 2
I was diagnosed on 9/11 /2018 on the phone having had debulking surgery on 20/8/18. Total abdominal hysterectomy, Bilateral salpingo oopherectomy and omentectomy . No chemo offerered just WATCH & WAIT for 5 years. Year 1: 3-monthly CT scans and CA125s + consultation with gynae/oncologist Year 2
RachelFaye
in
SHARE Ovarian Cancer Support
4 years ago
How long will it take until I have my energy back?
I was diagnosed with ovarian/peritoneal cancer 14 months ago. Surprising as I had bilateral oophorectomy (and tubes) removed 10 years ago due to benign cysts. It was considered to be inoperable and I had the full round of chemo and all the miseries that go with that. I was very fortunate after this to
I was diagnosed with ovarian/peritoneal cancer 14 months ago. Surprising as I had bilateral oophorectomy (and tubes) removed 10 years ago due to benign cysts. It was considered to be inoperable and I had the full round of chemo and all the miseries that go with that. I was very fortunate after this to
Jenjill47
in
My Ovacome
4 years ago
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Occasional sore tongue
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
Karenjaninaz
in
PMRGCAuk
4 years ago
salpingo oophorectomy
Hi, I had stage 1 breast cancer 2 years ago and I opted for double mastectomy in order to reduce any chances of it coming back. My 1st mammo was normal result, 6 months later I still felt the lump and I went for a breast assessment and the Prof in the hospital said it was diffused tissue . Nearly a yr
Hi, I had stage 1 breast cancer 2 years ago and I opted for double mastectomy in order to reduce any chances of it coming back. My 1st mammo was normal result, 6 months later I still felt the lump and I went for a breast assessment and the Prof in the hospital said it was diffused tissue . Nearly a yr
Frizzlesizzle
in
Endometriosis UK
4 years ago
Stage 1a triple negative breast cancer
I was diagnosed 1 1/2 years ago with stage 0 triple negative DCIS. I had a lumpectomy with sentinel lymph node removal. It turned out to be stage 1a triple negative breast cancer. The tumor was very tiny and my lymph nodes were clear. I also had 20 rounds of radiation treatment. My oncologist told me
I was diagnosed 1 1/2 years ago with stage 0 triple negative DCIS. I had a lumpectomy with sentinel lymph node removal. It turned out to be stage 1a triple negative breast cancer. The tumor was very tiny and my lymph nodes were clear. I also had 20 rounds of radiation treatment. My oncologist told me
jackandbox
in
My Breast Cancer Community
4 years ago
Reassurance regarding surgery
Hi I hope everyone is keeping well. I haven’t written in a while and thankfully since being diagnosed with cirrhosis 3 years ago life has been kind and I am happy and healthy x I have a question I am currently on the waiting list for cholecystectomy for gallstones and due to liver disease I am classed
Hi I hope everyone is keeping well. I haven’t written in a while and thankfully since being diagnosed with cirrhosis 3 years ago life has been kind and I am happy and healthy x I have a question I am currently on the waiting list for cholecystectomy for gallstones and due to liver disease I am classed
Happyluckymummyof2
in
British Liver Trust
4 years ago
Lymph node removal side effects
Hi ladies, I have just had some lymph nodes removed in my groin as there was a tumour, today i received hospital letter from surgeon listing many unpleasant risks of post operative surgury such as lymphocyst formation,secondary intention healing etc . My question is does this occur in week or two after
Hi ladies, I have just had some lymph nodes removed in my groin as there was a tumour, today i received hospital letter from surgeon listing many unpleasant risks of post operative surgury such as lymphocyst formation,secondary intention healing etc . My question is does this occur in week or two after
megb246
in
My Ovacome
4 years ago
Gallstones - Severe Bloating
I went to the GP due to severe bloating which started back in April/May. It’s always there but worse after eating. GP did bloods (clear) and ultrasound. They found large gallstones. I have been suffering mildly with colic type pain and reflux for a few years. I take PPIs which help, otherwise I struggle
I went to the GP due to severe bloating which started back in April/May. It’s always there but worse after eating. GP did bloods (clear) and ultrasound. They found large gallstones. I have been suffering mildly with colic type pain and reflux for a few years. I take PPIs which help, otherwise I struggle
Ariadne1925
in
British Liver Trust
4 years ago
Uterosacral Ligaments
Hi ladies Does anyone have any advice on deep infiltrating endo on the uterosacral ligaments? I've had 3 surgeries over 20 years; in summary - ablation in 2002, ovaries removed in 2015 and then full hysterectomy in 2017. On top of my endo I also had adenomyosis. I was 44 in 2015 so went onto HRT then
Hi ladies Does anyone have any advice on deep infiltrating endo on the uterosacral ligaments? I've had 3 surgeries over 20 years; in summary - ablation in 2002, ovaries removed in 2015 and then full hysterectomy in 2017. On top of my endo I also had adenomyosis. I was 44 in 2015 so went onto HRT then
Juls1971
in
Endometriosis UK
4 years ago
Just finished radiotherapy but feel overwhelmed
Hi everyone This is my first post here and hoping for a little guidance/advice. I was diagnosed in May with grade 3, ER+ HER2- breast cancer. Lymph node removal showed no spread, so lumpectomy and radiotherapy, along with taking Tamoxifen (oncotype result 17, so no chemo). Haven't felt too bad physically
Hi everyone This is my first post here and hoping for a little guidance/advice. I was diagnosed in May with grade 3, ER+ HER2- breast cancer. Lymph node removal showed no spread, so lumpectomy and radiotherapy, along with taking Tamoxifen (oncotype result 17, so no chemo). Haven't felt too bad physically
cbear22
in
My Breast Cancer Community
4 years ago
New Kid on the Block
Hi,everyone,just joined the group and reading the posts really feel for those suffering with fatigue, something fortunately I have never had with P.M.R..I do however get flare ups with SEVERE pain mainly in the neck and shoulders.Difficult sometimes to know whether its P.M.R. or a trapped nerve or pulled
Hi,everyone,just joined the group and reading the posts really feel for those suffering with fatigue, something fortunately I have never had with P.M.R..I do however get flare ups with SEVERE pain mainly in the neck and shoulders.Difficult sometimes to know whether its P.M.R. or a trapped nerve or pulled
BeeDee1940
in
PMRGCAuk
4 years ago
Any light at the end of this long ‘waiting’ tunnel?
Hi everyone , I was just wondering how people have found getting back on track after the Covid thing. I have had a nightmare so am just getting it all out of my system in what might come across as a long whining post ( apologies if it sounds like this) - I have had numerous symptoms that I have struggled
Hi everyone , I was just wondering how people have found getting back on track after the Covid thing. I have had a nightmare so am just getting it all out of my system in what might come across as a long whining post ( apologies if it sounds like this) - I have had numerous symptoms that I have struggled
Guitar1986
in
Endometriosis UK
4 years ago
Getting diagnosed
I am 40 years old and have dealt with chronic pelvic pain for years. I am in the US, but I enjoy this forum and I hope it's okay to post here. I'll give you a bit of my history. In 2017, I had several uterine polyps removed. At the time, my surgeon wanted to explore for endometriosis, but I could
I am 40 years old and have dealt with chronic pelvic pain for years. I am in the US, but I enjoy this forum and I hope it's okay to post here. I'll give you a bit of my history. In 2017, I had several uterine polyps removed. At the time, my surgeon wanted to explore for endometriosis, but I could
desertkelp
in
Endometriosis UK
4 years ago
NHS rapid policy statement on Tocilizumab for GCA during the Covid-19 pandemic
Hello everyone, and I hope you are all staying safe ( and sane) in these scary times. Forgive me if someone has already brought this to people’s attention, but I only just came across this important statement put out by the NHS which most certainly affects me, and could affect other GCA sufferers who
Hello everyone, and I hope you are all staying safe ( and sane) in these scary times. Forgive me if someone has already brought this to people’s attention, but I only just came across this important statement put out by the NHS which most certainly affects me, and could affect other GCA sufferers who
Suzita76
in
PMRGCAuk
4 years ago
Feeling the pain
Last November I had three short courses of Brachytherapy following a hysterectomy for womb cancer. I thought all was going okay but began to have rectal bleeding. To cut a long story short I had a flexi-sig and transanal ultrasound done today. For the first time I saw the issues. Firstly a polyp
Last November I had three short courses of Brachytherapy following a hysterectomy for womb cancer. I thought all was going okay but began to have rectal bleeding. To cut a long story short I had a flexi-sig and transanal ultrasound done today. For the first time I saw the issues. Firstly a polyp
Zigoin
in
Pelvic Radiation Disease Association
4 years ago
The Salt Room ...
Hi Everyone, thought I would tell you about what has happened to me over the last couple of days. I have been travelling quite well on 6 mgs of pred and tocilizumab jabs weekly and some girlfriends invited me to come along with them to “The Salt Room”. It sounded fab, described as a cure for all sorts
Hi Everyone, thought I would tell you about what has happened to me over the last couple of days. I have been travelling quite well on 6 mgs of pred and tocilizumab jabs weekly and some girlfriends invited me to come along with them to “The Salt Room”. It sounded fab, described as a cure for all sorts
LemonZest11
in
PMRGCAuk
4 years ago
Lymphedema Treatment Act needs support
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
Lymphedema fighter here from single mastectomy & 9 lymph node removal on left arm!! Did y'all know of the Lymphedema Treatment Act? We are trying to get this bill passed in Washington DC this year!! Ask to see how you can reach out to your congress leaders!!
April4ChristPlexus
in
LSN
4 years ago
Umbilicus inflamed after lap
I had a lap to remove stage 4 Endo from my rectum and bowels at the end of February and I’ve had nothing but troubles with my belly button. I had key hole surgery so the umbilicus was the main port. Ever since it has been swollen (almost outside my belly button and that’s a deep hole lol) and weeping
I had a lap to remove stage 4 Endo from my rectum and bowels at the end of February and I’ve had nothing but troubles with my belly button. I had key hole surgery so the umbilicus was the main port. Ever since it has been swollen (almost outside my belly button and that’s a deep hole lol) and weeping
Noodle1984
in
Endometriosis UK
4 years ago
An update on my tocilizumab experience.
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
LemonZest11
in
PMRGCAuk
4 years ago
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