Search
Search
About
Log in
Join
Experiences with
Temodal
Posts
Communities
1,095 public posts
Filter results
New in this forum suffering after gallbladder removal
Hello folks. I was diagnosed with fatty liver in February2021. Experienced pain on the right. One 2 cm gallstone. In March 2021 I had gallblader removed. It is now June 2021. My pain on the right side never left me. Plus I have some heavy inflamation feeling in my stomach. I had 3 US. I had MRI a
Hello folks. I was diagnosed with fatty liver in February2021. Experienced pain on the right. One 2 cm gallstone. In March 2021 I had gallblader removed. It is now June 2021. My pain on the right side never left me. Plus I have some heavy inflamation feeling in my stomach. I had 3 US. I had MRI a
Hidden
in
Living with Fatty Liver and NASH
3 years ago
Drinking and liver
I am reading a lot of posts here and people honestly admit their drinking. But what is drinking. Before January 2021 I would have a glass of red wine every day for a few years. Apparently, all my doctors even now say red wine in moderation is fine. Well, no. I was told fatty liver, had cholecystectomy
I am reading a lot of posts here and people honestly admit their drinking. But what is drinking. Before January 2021 I would have a glass of red wine every day for a few years. Apparently, all my doctors even now say red wine in moderation is fine. Well, no. I was told fatty liver, had cholecystectomy
Hidden
in
British Liver Trust
3 years ago
18F-Fluciclovine PET & COVID Vaccine
Interesting anecdote from MD Anderson.
18F-Fluciclovine-Avid Reactive Axillary Lymph Nodes After COVID-19 Vaccination
[1] -Patrick [1] https://pubmed.ncbi.nlm.nih.gov/34183501/ Clin Nucl Med . 2021 Jun 28. doi: 10.1097/RLU.0000000000003844. Online ahead of print. 18F-Fluciclovine-Avid Reactive
Interesting anecdote from MD Anderson.
18F-Fluciclovine-Avid Reactive Axillary Lymph Nodes After COVID-19 Vaccination
[1] -Patrick [1] https://pubmed.ncbi.nlm.nih.gov/34183501/ Clin Nucl Med . 2021 Jun 28. doi: 10.1097/RLU.0000000000003844. Online ahead of print. 18F-Fluciclovine-Avid Reactive
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tocilizumab treatment extension, and latest PET-CT scan results
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Three weeks ago, I discovered (via this wonderful group) that the NHS had decided to extend Tocilizumab injections until March 2022 (and indeed, my suppliers, Lloyds’ Homecare, arranged a delivery whilst I was away visiting my mum). 2 days later, my Consultant emailed me to say that she
Suzita76
in
PMRGCAuk
3 years ago
Calling UK tocilizumab or epipen users: How do you dispose of your self-injector? Who arranges it?
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
Someone on the Vasculitis forum is encountering difficulty - is expected to attend the hospital to be handed her self-injection medication because they claim there isn't a protocol for disposing of the needle.
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
SARose
in
PMRGCAuk
3 years ago
menstrual cycle after oopherectomy
I had both ovaries and both tubes removed and So I had post bleeding 7-10 postop which was told normal. 13 days after that having a regular menstrual cycle. Any ideas why this is happening
I had both ovaries and both tubes removed and So I had post bleeding 7-10 postop which was told normal. 13 days after that having a regular menstrual cycle. Any ideas why this is happening
menolady2021
in
Endometriosis UK
3 years ago
Long term tocilizumab use
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
christine2715
in
PMRGCAuk
3 years ago
Sigmoiditis
I had a colonoscopy years ago - as I had a positive screening for blood (because I had a haemorrhoid). Years later these sent me another bowel screening kit - and I thought that it would be another false-negative, so I did not bother sampling or sending. Years after that (two years ago) I had lower abdominal
I had a colonoscopy years ago - as I had a positive screening for blood (because I had a haemorrhoid). Years later these sent me another bowel screening kit - and I thought that it would be another false-negative, so I did not bother sampling or sending. Years after that (two years ago) I had lower abdominal
S11m
in
Colon Cancer Connected
3 years ago
What is the maximum time you can be on prostap 3 injections?
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
I have been on prostap 3 since October 2020, with add-back HRT, Tibolone, since January 2021, almost 8 months. I'm due to have the next prostap 3 injection next month. I'm on the waiting list for an "urgent" (been waiting almost 9 months); hysterectomy, cyst and ovary removal, with bowel involvement
77yellow
in
Endometriosis UK
3 years ago
Could this be Lupus? A very long journey...
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
London1979
in
LUPUS UK
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
New Mitochondrial enzyme target, and a chance for Oligometastatic patients to step up--MetaCure trial-some information
Salutations FPC members, First, a look at a new mitochondrial enzyme target for those failing treatment. The process of ferroptosis can lead to cancer cell death and inhibit tumor growth, but a mitochondrial enzyme (DHODH) can block that process. Researchers have found that using brequinar, a drug being
Salutations FPC members, First, a look at a new mitochondrial enzyme target for those failing treatment. The process of ferroptosis can lead to cancer cell death and inhibit tumor growth, but a mitochondrial enzyme (DHODH) can block that process. Researchers have found that using brequinar, a drug being
NPfisherman
in
Fight Prostate Cancer
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
Fighting the fatigue
Hi there, I have stage 4 endo, a tumour on my left ovary and I’m currently on the list to have an oophorectomy. In the meantime I have been having decapeptyl injections with addback hrt. Im guessing the backlog for ops due to covid is going to be at least a year. I have other conditions too, ibs, anxiety
Hi there, I have stage 4 endo, a tumour on my left ovary and I’m currently on the list to have an oophorectomy. In the meantime I have been having decapeptyl injections with addback hrt. Im guessing the backlog for ops due to covid is going to be at least a year. I have other conditions too, ibs, anxiety
karenjack1000
in
Endometriosis UK
3 years ago
Hysterectomy & ovary removal - what do you wish you'd known first?
Hi, Thinking about surgery, the consultant explained to me that my options might range from removing the endo lesions and restoring of anatomy position, to total hysterectomy with bilateral salpingo-oophorectomy (removal of the uterus, cervix, fallopian tubes and ovaries). I still need an MRI scan to
Hi, Thinking about surgery, the consultant explained to me that my options might range from removing the endo lesions and restoring of anatomy position, to total hysterectomy with bilateral salpingo-oophorectomy (removal of the uterus, cervix, fallopian tubes and ovaries). I still need an MRI scan to
Hidden
in
Endometriosis UK
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
Full Hysterectomy with Ovary Removal and Stoma
Hi everyone, I was diagnosed with Endo after failed fertility treatment three years ago at the age of 39. After numerous scans, laparoscopy, MRI and sigmoidoscopy, the option suggested is a full hysterectomy with ovary removal and sigmoid colon resection due to scar tissue thickening a portion of it.
Hi everyone, I was diagnosed with Endo after failed fertility treatment three years ago at the age of 39. After numerous scans, laparoscopy, MRI and sigmoidoscopy, the option suggested is a full hysterectomy with ovary removal and sigmoid colon resection due to scar tissue thickening a portion of it.
Eddax19
in
Endometriosis UK
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
1
...
15
16
17
...
55
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
274 results
PMRGCAuk
194 results
My Ovacome
116 results
View top 10 communities
Sort by
Most Relevant
Newest