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IBS and other gastro problems
Hi, I’m new here! I have had IBS all my life (I’m 46 just now). Also have reflux. But last September my IBS has randomly got worse and I’ve developed more upper GI problems and Burning Mouth Syndrome. I had (yet another) endoscopy in April and the only thing that’s there is very mild, chronic oesophagitis
Hi, I’m new here! I have had IBS all my life (I’m 46 just now). Also have reflux. But last September my IBS has randomly got worse and I’ve developed more upper GI problems and Burning Mouth Syndrome. I had (yet another) endoscopy in April and the only thing that’s there is very mild, chronic oesophagitis
weegmack
in
Menopause and Perimenopause Support
3 years ago
Gallbladder removal
Hi folks. Just wondering if anyone on here has had their gallbladder removed? I have had IBS for years and years and flit between IBS-D and IBS-C. I’ve had several colonoscopy tests and always get the “all clear” for anything sinister. This year I’ve had upper GI issues, which I haven’t really had before
Hi folks. Just wondering if anyone on here has had their gallbladder removed? I have had IBS for years and years and flit between IBS-D and IBS-C. I’ve had several colonoscopy tests and always get the “all clear” for anything sinister. This year I’ve had upper GI issues, which I haven’t really had before
weegmack
in
IBS Network
3 years ago
Ovary removal
Hello, So after stage 4 endo diagnosis via a lap, Covid hit and my surgery and consultant appointments went on hold. 2 years later I’m finally having left ovary removal plus endo surrounding that ovary removed this week. What should I expect post op, any advise from any one that has had similar surgery
Hello, So after stage 4 endo diagnosis via a lap, Covid hit and my surgery and consultant appointments went on hold. 2 years later I’m finally having left ovary removal plus endo surrounding that ovary removed this week. What should I expect post op, any advise from any one that has had similar surgery
Mysterywomen
in
Endometriosis UK
3 years ago
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Making sense of IVF in your 40s…
Hi, first time on here and hoping to connect with some of you and your stories. I’m 41, just completed a second round of ICSI which has failed. OTD tomorrow morning but BFNs up until this point. Should say I’ve had a left blocked tube and hydrosalpinx, as well as a polyp removal. My AMH is 6.19 1st
Hi, first time on here and hoping to connect with some of you and your stories. I’m 41, just completed a second round of ICSI which has failed. OTD tomorrow morning but BFNs up until this point. Should say I’ve had a left blocked tube and hydrosalpinx, as well as a polyp removal. My AMH is 6.19 1st
Sabretooth
in
Fertility Network UK
3 years ago
Thought it was under control after years of multiple serious surgeries and diet changes but now facing new battles - any advice welcome
Hello all, I was diagnosed with endometriosis aged 21 after 8 years of awful problems and symptoms. After my first laparoscopy I was initially told it was “just a few spots of endometriosis” and my options were chemically induced menopause (gnrh and add back HRT) or to get pregnant and they fitted
Hello all, I was diagnosed with endometriosis aged 21 after 8 years of awful problems and symptoms. After my first laparoscopy I was initially told it was “just a few spots of endometriosis” and my options were chemically induced menopause (gnrh and add back HRT) or to get pregnant and they fitted
Greys90
in
Endometriosis UK
3 years ago
Life Post Hysterectomy
So I had an abdominal hysterectomy with oophorectomy on the 1st of July. I am 6 weeks post-op. Pain on or around the wound is much better though its still a bit sore and hurts if Im sitting too long. Endopain is gone so far 🤞🤞 Struggling big time with energy levels. Have started transitioning back
So I had an abdominal hysterectomy with oophorectomy on the 1st of July. I am 6 weeks post-op. Pain on or around the wound is much better though its still a bit sore and hurts if Im sitting too long. Endopain is gone so far 🤞🤞 Struggling big time with energy levels. Have started transitioning back
Endo_Phoenix
in
Endometriosis UK
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Ozark
in
PMRGCAuk
3 years ago
Tocilizumab
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
MavisEllen
in
PMRGCAuk
3 years ago
Tocilizumab & Covid vaccine
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
Bachblues
in
PMRGCAuk
3 years ago
Should I have my ovaries removed?
Hi, anyone out there had subtotal hysterectomy and then had ovaries removed at a later date? Are you pain free now? How has having a surgical menopause effected you? I am on a waiting list to have ovaries removed but I’m really unsure if it’s what I want. Thank you Bunnyrunning xxx
Hi, anyone out there had subtotal hysterectomy and then had ovaries removed at a later date? Are you pain free now? How has having a surgical menopause effected you? I am on a waiting list to have ovaries removed but I’m really unsure if it’s what I want. Thank you Bunnyrunning xxx
Bunnyrunning
in
Endometriosis UK
3 years ago
I had a laparoscopic cholecystectomy 8 days ago and still have severe wind pain. Is this normal?
I can potter around the house but if i go for a walk (even down the street) i get a severe 'stitch' like stabbing pain under left rib and intense shpulder tip pain. Also if i bend over or forward (to try and pick up kids toys) get intense pain in bottom right side of stomach and again shoulder pain.
I can potter around the house but if i go for a walk (even down the street) i get a severe 'stitch' like stabbing pain under left rib and intense shpulder tip pain. Also if i bend over or forward (to try and pick up kids toys) get intense pain in bottom right side of stomach and again shoulder pain.
Monkeymini
in
Endometriosis UK
3 years ago
Femostonnand hair
Hi there, i was on Femoston 2/10 few months after an ovary removal because I had a lot of endometriomas inside my ovary ( had two scepsi because of them few years ago) I have the left one but ovarian reserve is low. I stopped Femoston after 2 months because As soon as I started HRt my hair was shedding
Hi there, i was on Femoston 2/10 few months after an ovary removal because I had a lot of endometriomas inside my ovary ( had two scepsi because of them few years ago) I have the left one but ovarian reserve is low. I stopped Femoston after 2 months because As soon as I started HRt my hair was shedding
Lalillala
in
Menopause and Perimenopause Support
3 years ago
Hair loss because of Femoston 2/10
Hello, I am 39 yo and with endometriosis. Last year I had an ovary removal becauses of endometriosis cyst. My hair was fine and in good health inAugsut and September and before I start Femoston because of hot flushes As soon as i took in October Femoston my hair started to shed. He told me to stop
Hello, I am 39 yo and with endometriosis. Last year I had an ovary removal becauses of endometriosis cyst. My hair was fine and in good health inAugsut and September and before I start Femoston because of hot flushes As soon as i took in October Femoston my hair started to shed. He told me to stop
Lalillala
in
Women's Health
3 years ago
Just now discovering things I really never wanted to know.
Hello, I just joined to see what everyone is talking about. I have been diagnosed with serous cell uterine Stage III by one doc and Stage IV by another doc. I've had 6 rounds of chemotherapy of paclitaxal and carboplatin. In addition I am HER2+. So I received transtuzamab along with chemo. Had surgery
Hello, I just joined to see what everyone is talking about. I have been diagnosed with serous cell uterine Stage III by one doc and Stage IV by another doc. I've had 6 rounds of chemotherapy of paclitaxal and carboplatin. In addition I am HER2+. So I received transtuzamab along with chemo. Had surgery
14523ok
in
SHARE Uterine Cancer Support
3 years ago
Tocilizumab and coming off prednisolone
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Stkeyna
in
PMRGCAuk
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
Tocilizumab treatment?
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
Ozark
in
PMRGCAuk
3 years ago
total hysterectomy with bilateral salpingo oophorectomy
I had my total hysterectomy with bilateral salpingo oophorectomy 2 weeks ago had my staples removed yesterday and considering I have been walking around the block for the last week with no problem, last night was a very uncomfortable night and I’m very sore today, my wound has bled a bit but I have just
I had my total hysterectomy with bilateral salpingo oophorectomy 2 weeks ago had my staples removed yesterday and considering I have been walking around the block for the last week with no problem, last night was a very uncomfortable night and I’m very sore today, my wound has bled a bit but I have just
Kemali
in
Healthy Happy Woman
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Frenchduck
in
PMRGCAuk
3 years ago
My fatty liver hurts
My fatty liver hurts every day. Anyone experienced that? Or it is consequences of my cholecystectomy and being out of sync with bile?
My fatty liver hurts every day. Anyone experienced that? Or it is consequences of my cholecystectomy and being out of sync with bile?
Hidden
in
Living with Fatty Liver and NASH
3 years ago
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