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My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
10 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
10 months ago
T4 over range yet again due to side effect of Amiodarone. I have no thyroid, am on 25mcg levo daily now. In a dilemma
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
Hi all I am aware that most people on this site will have little knowledge about the drug Amiodarone so here is a brief account of what it is used for and it's potential side effects that can alter conversion of thyroid medication such as levo or NDT so pushing levels either up or down. It can also effect
DizzyD
in
Thyroid UK
10 months ago
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Results on new test
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
I have just had the new test offered by Monitor My Health which I think is good value for money. My thyroid tests were good. I am on 2.5 grain of NDT so my TSH is suppressed. TSH .01 (.27 - 4.2) T4 20.3 (12 - 22) T3 5.9 (2.1 - 6.8) I'm not sure whether I need to be higher in some of
dottyb09
in
Thyroid UK
10 months ago
Vitamin and mineral deficiencies/Thyroid dysfunction.. Chicken or Egg?
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
doingitfordad
in
Thyroid UK
10 months ago
Genuine NDT source please
I'm starting again slightly differently 🤠Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
I'm starting again slightly differently 🤠Could people please pm me with their trusted sources of genuine NDT please? Usual story - I've had several clueless GPs, cant get a referral for love nor money as my results don't warrant it, tsh only of course because symptoms are put down to stress and a
Morbidmoggy
in
Thyroid UK
10 months ago
ADT (Lupron) and creatine?
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
57 yo Swede here. Diagnosed nine months ago 4+3. I am on Lupron after RALP (unclear margins) and 35 times ERBT. I do serious weight training and supplement with Whey protein. I am curious about creatine supplement. intake. Is it safe? I have not read anything against, but nothing that makes me feel totally
Gs-rider
in
Advanced Prostate Cancer
11 months ago
Blood Test Results! Can Anyone Interpret?
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
I went for a routine blood test today & I've just had the results posted already! I've never been able to read blood results - can someone help me Please.I had my Thyroid fully removed in 2008. I was Poisoned by Thyroxin! I'm on T3 Only. Recently I've found I feel a lot better on NDT Only. Six weeks
Lily905
in
Thyroid UK
11 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
11 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
11 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
11 months ago
ADT for how long..
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Hi, folks. I underwent whole pelvic irradiation 6 months ago - prostatectomy (2019), PT3A, and lodge irradiation (2020), just after gallium PSMA picked two small illiac nodes with PSMA around 2,5, both. My doctor had said I would be given 6 months of ADT back then, but now he just tripled the journey
Justt
in
Advanced Prostate Cancer
11 months ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
11 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
11 months ago
The good doctor
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
I had a GP appointment this morning (double appointment) for a Medication Review. I haven’t had one since pre-Covid when I lived in a different part of the country. I crept into the surgery with fear in my heart as I prepared to explain the ins and outs of NDT. OH came with me as I was in the middle
Hidden
in
Thyroid UK
11 months ago
Brother's numbers since ADT plus Orchiectomey since diagnosed in February
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Hi folks. I've been reading daily posts here since February when my brother was diagnosed with metastatic PC in February after a reading of 367.8 PSA. Thanks for all the good information! Cancer is in his skull, ribs, lymth nodes, and spine. He had one ADT injection right away and opted for an Orchiectomey
Sparlingo
in
Advanced Prostate Cancer
11 months ago
Can't find proper thyroid medication
Hi all, I've tried almost all thyroid medications under the sun, NDT, T4 only (tirosint, synthroid, euthyrox), T4 + T3, T3 only, NDT + T4. And no matter what I still have lingering symptoms despite all my levels being optimal ( TSH, free T4 and free T3). My vitamins are all optimal as well (vtiamin
Hi all, I've tried almost all thyroid medications under the sun, NDT, T4 only (tirosint, synthroid, euthyrox), T4 + T3, T3 only, NDT + T4. And no matter what I still have lingering symptoms despite all my levels being optimal ( TSH, free T4 and free T3). My vitamins are all optimal as well (vtiamin
Sam_Tx
in
Thyroid UK
11 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
11 months ago
Amiriodone & NDT update
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
So I was put on Amiodarone post heart surgery 3 1/2 weeks ago. I thought it was a three week course but it's not. Now on 200mg per day for the next few months . And yes I think it's messing my thyroid hormones up. I did protest over taking it...due to its high iodine content and contrary indications.
waveylines
in
Thyroid UK
11 months ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
11 months ago
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