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Rheumy telephone call appointment
I had a telephone appointment with my Rheumy yesterday, and basically it didn't go well!! The last time I spoke to her was November 2020, and I have not actually seen her for a very long time. Everything I am doing/not doing is wrong as it doesn't fit within her guidelines, which are reduce 1mg every
I had a telephone appointment with my Rheumy yesterday, and basically it didn't go well!! The last time I spoke to her was November 2020, and I have not actually seen her for a very long time. Everything I am doing/not doing is wrong as it doesn't fit within her guidelines, which are reduce 1mg every
Purplegloss
in
PMRGCAuk
3 years ago
Burning tongue or burning mouth
If any of you have burning tongue or mouth syndrome you might want to check this out as it helped me. Many years ago when I was doing some research for burning mouth syndrome I found R-Alpha Lipoic Acid and, at that time, R-ALA was only available in the USA (ALA is readily available but supposedly
If any of you have burning tongue or mouth syndrome you might want to check this out as it helped me. Many years ago when I was doing some research for burning mouth syndrome I found R-Alpha Lipoic Acid and, at that time, R-ALA was only available in the USA (ALA is readily available but supposedly
Moggy1234
in
Pernicious Anaemia Society
3 years ago
Omega 3
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
For love nor Money can I work this out. Which has higher omega 3 please. See pic attached.
Uglow
in
PMRGCAuk
3 years ago
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Interesting looking supplement
Saw this one on a dental summit. Used to detox and other things. Has a lot of familiar ingredients! Has anyone used it? https://oradix.com/product/stemdetox-detoxification-anti-germ-and-weight-loss/ How to Use StemDetox™ Take 1 capsule 2X daily for the 1st 5 days, 3 capsules 2X daily for the next 5
Saw this one on a dental summit. Used to detox and other things. Has a lot of familiar ingredients! Has anyone used it? https://oradix.com/product/stemdetox-detoxification-anti-germ-and-weight-loss/ How to Use StemDetox™ Take 1 capsule 2X daily for the 1st 5 days, 3 capsules 2X daily for the next 5
LAJ12345
in
Cure Parkinson's
3 years ago
Can you help what disease i am going through?
I poop a lot everyday. Sometimes 3 or 4 per day but my stool is not water like or oily. It is type 3 and 4 in bristol stool chart so it is normal. Recently i am taking ciprofloxacin and mefenamic acid because my Dr. said i have UTI 'cause of backpain lower abdomen and side pain and having diarrhea and
I poop a lot everyday. Sometimes 3 or 4 per day but my stool is not water like or oily. It is type 3 and 4 in bristol stool chart so it is normal. Recently i am taking ciprofloxacin and mefenamic acid because my Dr. said i have UTI 'cause of backpain lower abdomen and side pain and having diarrhea and
ToGodAbove
in
Colon Cancer Connected
3 years ago
Help with anxiety
I have such bad anxiety is anyone know if the anxiety gets worse before it gets better I started Lexapro 5 mg 13 days ago after two days I started shaking and we thought it was the Lexapro but when I figured it out it actually was the anxiety but my doctor had me cut it in half for a week and take it
I have such bad anxiety is anyone know if the anxiety gets worse before it gets better I started Lexapro 5 mg 13 days ago after two days I started shaking and we thought it was the Lexapro but when I figured it out it actually was the anxiety but my doctor had me cut it in half for a week and take it
SOPHIA24
in
Anxiety Support
3 years ago
Zoledronic acid infusion - side effects sound horrendous. Any advice?
Hi folks, My osteoporosis consultant has recommended an intravenous infusion of Zolendronic acid, as I can't stomach the Alendronic acid tablets. My last DEXA scan was January 2019 - the numbers I can't remember but they were at a low level yet not low enough for treatment. Consultant says they are
Hi folks, My osteoporosis consultant has recommended an intravenous infusion of Zolendronic acid, as I can't stomach the Alendronic acid tablets. My last DEXA scan was January 2019 - the numbers I can't remember but they were at a low level yet not low enough for treatment. Consultant says they are
strawclutching
in
PMRGCAuk
3 years ago
Negative thoughts won’t stop
Negative thought are coming without end They keep me stuck in anxiety and depression Most are regrets about the past Sometimes I also think about how wonderful life would be if only I had not done this or that They are driving me crazy They had stopped for about 6 months but now back as strong as ever
Negative thought are coming without end They keep me stuck in anxiety and depression Most are regrets about the past Sometimes I also think about how wonderful life would be if only I had not done this or that They are driving me crazy They had stopped for about 6 months but now back as strong as ever
repeatOffender
in
Anxiety and Depression Support
3 years ago
A new trial suggests that a combination of NAC, Nicotinamide Riboside, Serine, and Carnitine will improve the cognitive performance of PD
Brad Stanfield, MD Aug 15, 2021 A new trial suggests that a combination of NAC, Nicotinamide Riboside, Serine, and Carnitine will improve the cognitive performance of Parkinson's Disease patients. https://youtu.be/ensRh8sR5ik Link to the new trial: https://www.medrxiv.org/content/10.1101/2021.07.28.21261293v1
Brad Stanfield, MD Aug 15, 2021 A new trial suggests that a combination of NAC, Nicotinamide Riboside, Serine, and Carnitine will improve the cognitive performance of Parkinson's Disease patients. https://youtu.be/ensRh8sR5ik Link to the new trial: https://www.medrxiv.org/content/10.1101/2021.07.28.21261293v1
Bolt_Upright
in
Cure Parkinson's
3 years ago
So many capsules, tablets, powders to swallow....
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
Hello everyone, I trust this post of mine finds you well. I wanted to ask you, how do you deal with all these things we have to swallow? More than once I found myself choking on a huge omega 3 capsule or a polyvitamin one. Maybe even a Mg capsule. And what about the constant need to drink, I don't even
enjoy2013
in
Cure Parkinson's
3 years ago
I've lost all hope.
I am so fed up and at the end of my rope. I have been trying to get treatment for over five years now. There have been several GPs (due to the first one leaving the practice and Covid necessitating using who you are given). There have been several gynaecologists and scans. I get told one thing and
I am so fed up and at the end of my rope. I have been trying to get treatment for over five years now. There have been several GPs (due to the first one leaving the practice and Covid necessitating using who you are given). There have been several gynaecologists and scans. I get told one thing and
Missy100
in
Endometriosis UK
3 years ago
Stuck on some internal conflicts
Having a very hard time. Stuck in so many ways. Stuck in a dead-end job. Too anxious and depressed to find another. Stuck in a town I don't like. But can't relocate family again, done that too many times. And a host of other issues. Negative thoughts are constant and they bring me to anxiety or
Having a very hard time. Stuck in so many ways. Stuck in a dead-end job. Too anxious and depressed to find another. Stuck in a town I don't like. But can't relocate family again, done that too many times. And a host of other issues. Negative thoughts are constant and they bring me to anxiety or
repeatOffender
in
Anxiety and Depression Support
3 years ago
Which supplements?? Your top 5
Besides exercise, medication etc etc I have been taking a wide range of supplements. I have no idea which individuals are beneficial. Based on advice I take: - vitamin D, C, B complex (a few people have said I should focus non B1) - omega 3 - Turmeric - magnesium - calcium citrate - mannitol What do
Besides exercise, medication etc etc I have been taking a wide range of supplements. I have no idea which individuals are beneficial. Based on advice I take: - vitamin D, C, B complex (a few people have said I should focus non B1) - omega 3 - Turmeric - magnesium - calcium citrate - mannitol What do
blazyb
in
Cure Parkinson's
3 years ago
Bisphosphonate success?
I am in desperate need of some positivity and success stories regarding the use of bisphophonates, particularly the once a week for 2-3 years regimen, and then hopefully a drug holiday. The word I see most often on this site is "terrified", as I also am, by other readers considering the prospect of
I am in desperate need of some positivity and success stories regarding the use of bisphophonates, particularly the once a week for 2-3 years regimen, and then hopefully a drug holiday. The word I see most often on this site is "terrified", as I also am, by other readers considering the prospect of
Loveballet
in
Osteoporosis Support
3 years ago
Do any supplements work?
Do any supplements work? I've read through many, many posts on this site claiming that particular supplements, or combinations of supplements, slow or stop or reverse the progression of Parkinson's Disease. Off the top of my head, I've seen posts on the following: - Vitamin B1 - CoQ 10 - Ceylon
Do any supplements work? I've read through many, many posts on this site claiming that particular supplements, or combinations of supplements, slow or stop or reverse the progression of Parkinson's Disease. Off the top of my head, I've seen posts on the following: - Vitamin B1 - CoQ 10 - Ceylon
Alock2020
in
Cure Parkinson's
3 years ago
Ingredients to prevent or slow progression of PD - Knox Van Dyke - Dept of Biochemistry and Molecular Pharmacology, West Virginia University
I give Doctor Knox Van Dyke credit. He put his name on it and did not spare any details. https://asclepiusopen.com/clinical-research-in-immunology/volume-1-issue-1/4.php Ingredients to prevent or slow progression of PD (2018): - Inosine - 4 g/day in divided doses inosine or sustained release inosine
I give Doctor Knox Van Dyke credit. He put his name on it and did not spare any details. https://asclepiusopen.com/clinical-research-in-immunology/volume-1-issue-1/4.php Ingredients to prevent or slow progression of PD (2018): - Inosine - 4 g/day in divided doses inosine or sustained release inosine
Bolt_Upright
in
Cure Parkinson's
3 years ago
Venting my struggle with mental/emotional well-being
Quick backstory. I contracted Covid in June of 2019 and seemingly recovered July 2020. In Nov. 2020 I developed parosmia as a result of Covid which has altered my sense of smell and taste to a point where familiar scents/tastes are now unpleasant and even repulsive. Back in Dec. I had a panic attack
Quick backstory. I contracted Covid in June of 2019 and seemingly recovered July 2020. In Nov. 2020 I developed parosmia as a result of Covid which has altered my sense of smell and taste to a point where familiar scents/tastes are now unpleasant and even repulsive. Back in Dec. I had a panic attack
Mxrpheus
in
Anxiety and Depression Support
3 years ago
My health history
I was diagnosed with Catastrophic Anti-Phospholipid Syndrome (CAPS) or Hugh's Syndrome in early 2009 which resulted in a partial loss of kidney function (it was stage 5 renal failure with less than 15% functionality but I have since recovered to about 60% ish total renal function). I was 17 years of
I was diagnosed with Catastrophic Anti-Phospholipid Syndrome (CAPS) or Hugh's Syndrome in early 2009 which resulted in a partial loss of kidney function (it was stage 5 renal failure with less than 15% functionality but I have since recovered to about 60% ish total renal function). I was 17 years of
Jake91
in
Hughes Syndrome APS Forum
3 years ago
What dosage of calcium supplement is recommended when on prednisolone?
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
Pr0jection
in
PMRGCAuk
3 years ago
Tips on improving spine and back
Hi I’m on another forum and stumble across this one which I’m so pleased. I had a major operation last May and pre op, I acquired sarcopenia, Kyphosis and Osteoporosis with multiple spinal fractures. I was prescribed Alendronic acid pre op but it made me feel very queasy so I stopped taking it as I
Hi I’m on another forum and stumble across this one which I’m so pleased. I had a major operation last May and pre op, I acquired sarcopenia, Kyphosis and Osteoporosis with multiple spinal fractures. I was prescribed Alendronic acid pre op but it made me feel very queasy so I stopped taking it as I
Flowergirl24
in
Bone Health and Osteoporosis UK
3 years ago
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