Which supplements?? Your top 5

[blazyb]

Besides exercise, medication etc etc I have been taking a wide range of supplements. I have no idea which individuals are beneficial. Based on advice I take:

- vitamin D, C, B complex (a few people have said I should focus non B1)

- omega 3

- Turmeric

- magnesium

- calcium citrate

- mannitol

What do you recommend?

[Hidden]

Why are you taking calcium citrate? I have not researched that one

Turmeric is excellent but has limited bioavailability. Make sure to take with black pepper.

Matcha tea

Ashwaganda

And K2

[blazyb in reply to Hidden]

Thank you.

Truth is I don’t remember why I take CC - I think my nutritionist recommended it. Will research the other topics.

[Farooqji in reply to Hidden]

Add bacopa monnieri alongside ashwagandha. Its super supplement for stress. Also called Brahmi

[Astra7]

For what’s is worth I take NAC, butyrate, mannitol (brain clarity), magnesium (relaxes stiff leg), and melatonin for sleep.

[blazyb in reply to Astra7]

Many thanks!

[Reginald1]

Hi I was diagnosed early 2018 and started taking vitamin B1 Thiamine hcl about 12 months later I take 3 x500mg capsules every morning and I feel it is doing a great job of treating my symptoms. My condition has hardly changed in this time, I’m still playing competition squash twice a week and walking 8-10km a day. I think between the vitamins and exercise my symptoms are kept at bay.

[blazyb in reply to Reginald1]

Excellent thank you very much

[bassofspades in reply to Reginald1]

WOW!

[LisaCB]

I'm taking high dose B1, C, magnesium L-threonate, and (over the counter) l-dopa. I watch my diet (looking at Wahl's Protocol). Exercising 5x/wk (weights, swimming, pickleball) seems to also be a lot of help.

[bassofspades]

I'll play.!

12mg Lithium Orotate

3000-4000mg B1

1000mg Fish oil

1000mg vitamin c

Panax ginseng & ginkgo biloba combo

[Marimar70 in reply to bassofspades]

Hello what is the lithium oronate do for you?

[blazyb in reply to Marimar70]

thank you all!

[bassofspades in reply to Marimar70]

It helps with brain fog and mood

[Missy0202]

B1 Thiamine, Mannitol, K2, NAC, B3, fish oil, Ubiquinol, B12, D3, Magnesium, liposomal glutathione

[PDbeater]

I take a lot of supplements in addition to my meds–

Madopar which I take with a 1 gramme Redoxin Vit C with the first tablet as recommended by my neurologist professor

Rasagiline

Co Q 10

Curcumin UP

Vitamin D3

Ginkgo Biloba

Magnesium

B12

The following four were recommended by a bio-chemist who my wife met ‘by chance’ on a flight as being good for healthy ageing-

Réservatrol

Tru Niagen

Astragalus

Super K (2 forms of K2+K1)

I also take Symprove probiotic again as suggested by my neurologist as being one of the few probiotics which can reach the lower gut.

I also take Atremo Plus daily-pricey but it helps.

Lastly I take something called Neuroseanol from Korea which I believe has improved my memory. It’s expensive but worthwhile I believe.

Yes they still leave room for food!

The other recommendation made was to consider doing the PD Warrior programme (Australian) which I highly recommend. I have been doing it for over a year on line and with a zoom consultation every 6 weeks with one of their Neurological Physiotherapists.

Hope that helps

[blazyb in reply to PDbeater]

Really helps and thanks …. Given me a lot to think about

[PDsux_10 in reply to PDbeater]

Hi, where do you get your symprove in Australia and have you noticed any benefits from it yet?Thanks

Mel

[PDbeater in reply to PDsux_10]

You can only get it from the U.K. at the moment. We live in Hong Kong so they ship it here. Australia may be too far and expensive. James

[PDsux_10 in reply to PDbeater]

Ok excellent I will look for it. Have you noticed any benefits from using it yet?Cheers

Mel

[PDbeater in reply to PDsux_10]

Yes it helps 'keep us regular'. My wife doesn't have PD but finds the Symprove helpful as well.

[PDsux_10 in reply to PDbeater]

Ok thank you for your reply. That's what my husband uses the mannitol for just FYI.Cheers

Mel

[Erniediaz1018]

Supplements/Vitamins* Vitamin B-Complex 100 mg 2 times daily

* Vitamin B-3 (Niacin) 50 mg 3 times daily

* Vitamin B-6 200 mg 2 times daily

* Vitamin B-12 1000 mcg daily

* Vitamin C 5000 mg daily

* Vitamin E 400 IU 3 times daily

* Amino Acid Complex 500 mg 3 times daily

* Glutamic Acid (Phenylalanine) 500 mg 3 times daily

* Zinc 15 mg 2 times daily

* Lecithin 1 Tbsp 3 times daily

* Chlorophyll Drink 4 oz 3 times daily

Magnesium and tryptophan

[blazyb in reply to Erniediaz1018]

Really interesting….lots to think about….

[chartist]

Have you dropped B1, Ernie?

Art

[Erniediaz1018 in reply to chartist]

I use it occasionally because I’m trying this New protocol for a month now and it’s a lot. Also combine a number of herbs with this

[chartist in reply to Erniediaz1018]

Please keep us updated on how you do as I am sure other members will be interested too.

On a somewhat related note, a forum member has switched to thiamine mononitrate from thiamine HCI and reported significant improvement over thiamine HCI in her husband! Just thought you might find that interesting in case you missed that post.

Art

[Erniediaz1018]

Oh and ldopa from mucuna stops the tremors

[jombi in reply to Erniediaz1018]

are you still using nutrivita brand?

[Erniediaz1018 in reply to jombi]

Yes

[PDsux_10]

My husband takes melatonin, Mannitol, b1, fish oil, nac. Plus many others but those are essential

[chartist in reply to PDsux_10]

Does your husband feel he is benefiting from this regimen? If so, what benefit(s) does he feel he is getting?

Art

[PDsux_10 in reply to chartist]

He has his good days and bad days, the best for him seems to be melatonin for sleep 10mg and mannitol for sense of smell. B1 is tricky we are never sure if it's too much or too little but take it anyway. The NAC is just to keep his immune system strong in my opinion. His best relief comes from mucuna but that's just levadopa so I didn't mention it this time around.Cheers

Mel