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Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
1 year ago
Help with meds for flu
Just caught the proverbial flu , unfortunately not able to find a suitable medication to help with symptoms due to side effects unsuitable for the medication I'm presently taking IE Valsarten for bp, beta blockers for AF and coagulants (apixaban). Is anyone able to advise or know of a medication to help
Just caught the proverbial flu , unfortunately not able to find a suitable medication to help with symptoms due to side effects unsuitable for the medication I'm presently taking IE Valsarten for bp, beta blockers for AF and coagulants (apixaban). Is anyone able to advise or know of a medication to help
anyatall
in
Atrial Fibrillation Support
8 months ago
COVID vaccine side effects
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
Miacaro45
in
PMRGCAuk
11 months ago
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I have been signed off from my care at hospital after 10 years of A fib and a stroke
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
01maxdog
in
AF Association
11 months ago
Workplace Injury
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
Lc06091
in
British Liver Trust
7 months ago
steroid advice
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
Reddev
in
PMRGCAuk
8 months ago
Pneumonia vaccine
Hi all I have Lupus SLE, and numerous other thing, just wondering how often do we need the pneumonia vaccine TIA
Hi all I have Lupus SLE, and numerous other thing, just wondering how often do we need the pneumonia vaccine TIA
MrGrey1234
in
LUPUS UK
1 year ago
covid booster
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
jhorsf
in
Lung Conditions Community Forum
11 months ago
Covid Positive
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Rich1957
in
Lung Conditions Community Forum
11 months ago
MtX or am I just unlucky?
I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just recvered from an UTI that has needed 2 rounds of antibiotics (hope to be clear now) and 3 weeks of a milder cold virus! Then for 2-3 days I was well and then again down with a severe cold, lasting now 2 weeks and it is progressing
I have been on 20 mg MtX for now 3 weeks, titrating up over 3 months. I just recvered from an UTI that has needed 2 rounds of antibiotics (hope to be clear now) and 3 weeks of a milder cold virus! Then for 2-3 days I was well and then again down with a severe cold, lasting now 2 weeks and it is progressing
krillemy
in
PMRGCAuk
10 months ago
cold weather
is it just me or has this Uk cold weather worsened symptoms? My chest feels tight I’m wheezy ! Ugh I hate winter
is it just me or has this Uk cold weather worsened symptoms? My chest feels tight I’m wheezy ! Ugh I hate winter
Hiddenhidden224
in
Asthma Community Forum
8 months ago
I’m back again …5th cycle 🤞
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
Rol81
in
Fertility Network UK
11 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
8 months ago
Spinal injection
Hi everyone wow look at all these replies tells me there is a grey area on this subject. I had an injection in 2014 I only got 2 weeks relief so they wouldnt give me another one. I've had guided steroid injections in my 2 shoulders and omg it worked instantly!!!!. I've suffered ever since I had surgery
Hi everyone wow look at all these replies tells me there is a grey area on this subject. I had an injection in 2014 I only got 2 weeks relief so they wouldnt give me another one. I've had guided steroid injections in my 2 shoulders and omg it worked instantly!!!!. I've suffered ever since I had surgery
Betsy50
in
Pain Concern
11 months ago
Chickenpox
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
Hi, Just wondered what your recommended hints and tips are for relief from chickenpox for my DD who is 2! How long did your children have chicken pox for and how unwell did they become? Unsettled nights etc. Thanks in advance x
NicoJono
in
Pregnancy and Parenting Support
10 months ago
CRP 220
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Phoebess
in
Vasculitis UK
8 months ago
Combining the Influenza and COVID-19 vaccines.
I have read of some people who got both vaccines at the same time, and their experience was not good. However perhaps a different kind of Influenza vaccine combined with a COVID-19 vaccine might make things easier.? This approach is now being tested. Pfizer and BioNTech Announce Positive Topline
I have read of some people who got both vaccines at the same time, and their experience was not good. However perhaps a different kind of Influenza vaccine combined with a COVID-19 vaccine might make things easier.? This approach is now being tested. Pfizer and BioNTech Announce Positive Topline
Kwenda
in
CLL Support
11 months ago
anyone else had genetic testing?
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Hi well I’m back after a long break after previously having 2 BFN when we tried donor eggs with icsi. We’ve saved up again and decided to give it one last shot and this time the consultant recommended we try genetic screening before having any embryos implanted. Just wondered if there is anyone else
Miaow1975
in
Fertility Network UK
5 months ago
Back on the road
A while since my last post ... I did re-graduate C25K and then after two days I did a first post-grad run of just 20 minutes. Another couple of days and I did 25 minutes. Then I got ill. Probably just a cold as I tested negative for Covid. Took me a week to feel better. Gave it a few days and then tried
A while since my last post ... I did re-graduate C25K and then after two days I did a first post-grad run of just 20 minutes. Another couple of days and I did 25 minutes. Then I got ill. Probably just a cold as I tested negative for Covid. Took me a week to feel better. Gave it a few days and then tried
Gthants
in
Bridge to 10K
11 months ago
What changes did you make between Cycle 1 and 2?
BFN today following our one and only embryo transfer from Cycle 1, so beginning to think about our next (and last) cycle. It all started off quite well, 18 eggs collected but unfortunately only two fertilised via ICSI. I'm 39. But do have a 6 year old daughter from a previous relationship. We are having
BFN today following our one and only embryo transfer from Cycle 1, so beginning to think about our next (and last) cycle. It all started off quite well, 18 eggs collected but unfortunately only two fertilised via ICSI. I'm 39. But do have a 6 year old daughter from a previous relationship. We are having
Hidden
in
Fertility Network UK
5 months ago
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