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How can I get back to regular sleep?
When my rheumy told me on our telephone appointment, that he wouldn't be able to examine my painful knees and legs until six months time (due to NHS rules), I decided to pay for a private appointment. It was then discovered that I have arthritis in both knees and would need to continue with Leflunomide
When my rheumy told me on our telephone appointment, that he wouldn't be able to examine my painful knees and legs until six months time (due to NHS rules), I decided to pay for a private appointment. It was then discovered that I have arthritis in both knees and would need to continue with Leflunomide
43tripandskip
in
PMRGCAuk
3 years ago
Elbows anyone?
Mine are particularly bad having overtaken my upper back and neck. Lying in bed in the early hours my right elbow ache turned into a searing pain so bad it almost made me cry. It went after a while but for about 2 weeks now all the joints in my arms are achy and weak and so stiff it is affecting my
Mine are particularly bad having overtaken my upper back and neck. Lying in bed in the early hours my right elbow ache turned into a searing pain so bad it almost made me cry. It went after a while but for about 2 weeks now all the joints in my arms are achy and weak and so stiff it is affecting my
Brychni
in
NRAS
3 years ago
Pregnant (26 weeks) and RA flare ups
I take sulfasalazine, hydroxychloroquine and folic acid. I have my care from the NHS. I've been seen in clinic (obstetric and rheumatology) but they only do clinic once a month and my next appointment is on 26th Feb. I'm suffering with flare ups this week- upper arm, shoulder and my hand. Gp is not
I take sulfasalazine, hydroxychloroquine and folic acid. I have my care from the NHS. I've been seen in clinic (obstetric and rheumatology) but they only do clinic once a month and my next appointment is on 26th Feb. I'm suffering with flare ups this week- upper arm, shoulder and my hand. Gp is not
simba91
in
NRAS
3 years ago
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Covid vaccination and rheumatoid arthritis
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Hi everyone, I'm not sure if this has been already discussed on here as I haven't been on here much. I suffer from rheumatoid arthritis and currently taking cimzja injection pen and will also be starting on methotrexate very soon, mean while I will also be getting a steroid injection. Just wanted to
Flowers2020
in
NRAS
3 years ago
Swollen ankles both sides
Not sure if this is part of lupus, but my ankles are getting a lot worse . I have a phone appointment with Rheumatology this Thursday , just think most things are falling on deaf ears . I’m size 10 , so I do look odd with these ankles . I’m also falling over evertime I look down , worse on a morning
Not sure if this is part of lupus, but my ankles are getting a lot worse . I have a phone appointment with Rheumatology this Thursday , just think most things are falling on deaf ears . I’m size 10 , so I do look odd with these ankles . I’m also falling over evertime I look down , worse on a morning
Willow1414
in
LUPUS UK
3 years ago
ANYONE HAD ADRENAL INSUFFICIENCY/CRISIS?
I had tapered Prednisolone slowly and successfully, and stopped steroids on 14/01. The same day I had 2 steroid injections in shoulders, and tol my GP I had stopped steroids that day. I became very ill about 10/12 days later and a Cortisol Test I had very fortunately pre-arranged at GP surgery came back
I had tapered Prednisolone slowly and successfully, and stopped steroids on 14/01. The same day I had 2 steroid injections in shoulders, and tol my GP I had stopped steroids that day. I became very ill about 10/12 days later and a Cortisol Test I had very fortunately pre-arranged at GP surgery came back
larsonsmum
in
PMRGCAuk
3 years ago
Steroid withdrawal or PMR (undiagnosed) ?
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
Phoenix51
in
PMRGCAuk
3 years ago
Is it safe to get three vaccinations before starting on methotrexate ?
Hi all, this is my first time ever to ask a question on this platform. I have been diagnosed with psoriatic arthritis back in November 2020. Prior to this , I have had 8 years very limited psoriasis mainly in my ears , elbows and groin area. Last year November I woke up with swollen knee with no trauma
Hi all, this is my first time ever to ask a question on this platform. I have been diagnosed with psoriatic arthritis back in November 2020. Prior to this , I have had 8 years very limited psoriasis mainly in my ears , elbows and groin area. Last year November I woke up with swollen knee with no trauma
FAISAL2020
in
NRAS
3 years ago
Hi Everyone, i'm new here.
I have RA, diagnosed in 2019 and have just managed to get it under degree of control. I can now walk without acute pain. My medication journey to date: Methotrexate. 2 weeks. Started on this as tablets. My body couldn't tolerate it, in fact it made the pain excruciating to the point of tears when i got
I have RA, diagnosed in 2019 and have just managed to get it under degree of control. I can now walk without acute pain. My medication journey to date: Methotrexate. 2 weeks. Started on this as tablets. My body couldn't tolerate it, in fact it made the pain excruciating to the point of tears when i got
CRich58
in
NRAS
3 years ago
Little bit of light at the end of the tunnel with mtx
Hi All, hope you’re all keeping well. I took my 12th week of mtx last night, I’ve been on 15mg for 8 weeks & 4 weeks on 20mg. Saw the rheumatologist on the 19th January & said there was still little difference in the pain, he gave me a steroid injection in my elbow & said to give it 4 more weeks, I was
Hi All, hope you’re all keeping well. I took my 12th week of mtx last night, I’ve been on 15mg for 8 weeks & 4 weeks on 20mg. Saw the rheumatologist on the 19th January & said there was still little difference in the pain, he gave me a steroid injection in my elbow & said to give it 4 more weeks, I was
Garnacha
in
NRAS
3 years ago
Do steroid injections interfere with PD meds?
A few days ago I had steroid injections in both knees because of painful arthritis. The next few days I was unable to walk. It was if my Stalivo had no effect. Yesterday I took a double dose of Stalivo and my legs began to work again. I wonder if the steroid interfered with my PD meds or is that just
A few days ago I had steroid injections in both knees because of painful arthritis. The next few days I was unable to walk. It was if my Stalivo had no effect. Yesterday I took a double dose of Stalivo and my legs began to work again. I wonder if the steroid interfered with my PD meds or is that just
Joanne_Joyce
in
Cure Parkinson's
3 years ago
Friday Round-up
Hi All and wishing you a happy Friday. At the risk of sounding selfish, I thought I'd say something about our new way of doing all things medical at the moment. It's been prompted by several 'brushes' with my GP surgery recently and on one occasion, an unexpected visit to A&E. We are being persuaded
Hi All and wishing you a happy Friday. At the risk of sounding selfish, I thought I'd say something about our new way of doing all things medical at the moment. It's been prompted by several 'brushes' with my GP surgery recently and on one occasion, an unexpected visit to A&E. We are being persuaded
Hidden
in
Care Community
3 years ago
Spinal Stenosis treatment options
Hello! Does anyone have any tips on how to cope with spinal stenosis pain? The NHS waiting list for a steroid injection was 10 months pre Covid and now they've been suspended. Has anyone gone private?
Hello! Does anyone have any tips on how to cope with spinal stenosis pain? The NHS waiting list for a steroid injection was 10 months pre Covid and now they've been suspended. Has anyone gone private?
LolaAli
in
Neuro Support
3 years ago
NEWBIE TO RA
Hi I am 60 have enjoyed good health up to now but was diagnosed with RA November last year in my hands, never known pain like it and I've had 3 children! Had a steroid injection the same day and within 24 hours the swelling had gone down and pain diminished. Was then prescribed MTX 15 gms once a week
Hi I am 60 have enjoyed good health up to now but was diagnosed with RA November last year in my hands, never known pain like it and I've had 3 children! Had a steroid injection the same day and within 24 hours the swelling had gone down and pain diminished. Was then prescribed MTX 15 gms once a week
bettysbags
in
NRAS
3 years ago
Rheumy appointment outcome. Tocilizumab is it good? Any actual experiences I would love to hear?
I had a really good visit to the hospital, actually saw my consultant rather than one of her team. She is good, she listens. First though, I am amazed at the MRI scan I had on my left hand. That technology is awesome, the lady who did it was excited about the capability of it and chatted throughout explaining
I had a really good visit to the hospital, actually saw my consultant rather than one of her team. She is good, she listens. First though, I am amazed at the MRI scan I had on my left hand. That technology is awesome, the lady who did it was excited about the capability of it and chatted throughout explaining
Brushwork
in
NRAS
3 years ago
Levothyroxine intolerant?
Hello, Im new here, Ive been taking Levothyroxine since late 2014, then Dec 2015 had flu for 2 weeks, I then seized up, my joints so sore and achy, had a really bad rash hives, red sore raised round patches all over me, my GP said it wasnt the levothyroxine as Id taken it no problems for 15 months, no
Hello, Im new here, Ive been taking Levothyroxine since late 2014, then Dec 2015 had flu for 2 weeks, I then seized up, my joints so sore and achy, had a really bad rash hives, red sore raised round patches all over me, my GP said it wasnt the levothyroxine as Id taken it no problems for 15 months, no
Classiccarman
in
Thyroid UK
3 years ago
Very vivid but very strange dreams ( not in a good way )
Hi everyone Shy here. Since recieving my first and only steroid injection to date last Tuesday and being diagnosed with RA for the first time, I have noticed the above happening almost every time I manage to get some sleep. (i.e. Unsettling dreams ). To the point that although tired, I am reluctant
Hi everyone Shy here. Since recieving my first and only steroid injection to date last Tuesday and being diagnosed with RA for the first time, I have noticed the above happening almost every time I manage to get some sleep. (i.e. Unsettling dreams ). To the point that although tired, I am reluctant
Shyandretiring
in
NRAS
3 years ago
Dopomedrone steroid injection.
Hi everyone 3 days ago I received my first Sero-negative diagnosis and was given a Depomedrone 120Mg steroid shot. 72 hours on and I am still very much in pain, does this mean that the steroid injection has not worked and if that is the case is there any other "more reliable" pain killers that will
Hi everyone 3 days ago I received my first Sero-negative diagnosis and was given a Depomedrone 120Mg steroid shot. 72 hours on and I am still very much in pain, does this mean that the steroid injection has not worked and if that is the case is there any other "more reliable" pain killers that will
Shyandretiring
in
NRAS
3 years ago
Injections ?
Hi all Sorry i am being a bit lazy as there are probably some posts on this subject, but i would welcome a view or two. Currently on 10 mg pred, down from 15mg which started in July, following a PMR diagnosis. Seem to be ok most of the time. 'Foggy' head at intervals and occasional eyesight shimmer
Hi all Sorry i am being a bit lazy as there are probably some posts on this subject, but i would welcome a view or two. Currently on 10 mg pred, down from 15mg which started in July, following a PMR diagnosis. Seem to be ok most of the time. 'Foggy' head at intervals and occasional eyesight shimmer
NickWarwick
in
PMRGCAuk
3 years ago
Guided steroid injection in heal
Hi all, I've been suffering since last June with what we thought was achillies tendon damage. Throughout this pandemic we have tried lots of physio, stretches and a round of oral steroids which I never intend to take again after feeling somewhat, bonkers?! I've had a scan this week and been told I have
Hi all, I've been suffering since last June with what we thought was achillies tendon damage. Throughout this pandemic we have tried lots of physio, stretches and a round of oral steroids which I never intend to take again after feeling somewhat, bonkers?! I've had a scan this week and been told I have
D_aisy
in
NRAS
3 years ago
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