Hello, Im new here, Ive been taking Levothyroxine since late 2014, then Dec 2015 had flu for 2 weeks, I then seized up, my joints so sore and achy, had a really bad rash hives, red sore raised round patches all over me, my GP said it wasnt the levothyroxine as Id taken it no problems for 15 months, no bloodtest!?
He referred me to a consultant rheumatologist and I had steroid injection that got me back on my feet, lasted a few months as I paid for another one. This all wore off and I switched off(thats what it felt like) lost lots of weight, night sweats, aching joints, hives, headaches. Ive had MRI and CT and Ultrasound scans, referred to Rheumatology, Hematology, Thorasic, Immunology and now to Endocrine services, after a 4 year journey like a lab rat being tested for all sorts of things, cancer and lymph node biopsies(Ebus), bone marrow biopsies.
Had pericarditis, carpal tunnel syndrome, weakness.
Oral steroids(pred) prescribed as well as colchicine, Accrete D3, omaprezol, general vitamin tablet.
Im on Warfarin as had 2 DVTs.
Ive been tapering the prednisolone trying to get off them repeatedly and always put my symptoms down to these until I read the paperwork for the Levothyroxine for side effects OMG it seems these are exactly what Im experiencing. Also my sister is allergic to Levothyroxine and did the same to her so was prescribed Liothironine?
Im currently on 5mg prednisolone and 1.5 mg Colchicine as I managed to get off steroids early Dec last year but had to go back on them on 31st Dec as my joints started to progressively get worse again.
Do you think its the Levothyroxine anyone?
Also reading here about blood tests not really being looked into properly only doing TSH levels yet lots more to look at. Im starting the 5th year of this now, I feel Im taking drugs to combat the drugs ☹