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Isolated
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate side effects I'm taking loads of tablets every day. Every letter that comes through my door has NHS written on it. I'm physically disfigured.
Ellamaye
in
Vasculitis UK
11 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
7 months ago
Aching calf muscles
Hello again everyone. I have had Maderna jab, then the flu, cough etc, but not covid. All other ailments, except cough had subsided...but now aching calf muscles in both legs. Back from GP appt, but not very reassuring, as it was a student locum, in hospital scrubs, who almost took longer reading up
Hello again everyone. I have had Maderna jab, then the flu, cough etc, but not covid. All other ailments, except cough had subsided...but now aching calf muscles in both legs. Back from GP appt, but not very reassuring, as it was a student locum, in hospital scrubs, who almost took longer reading up
Temoral
in
PMRGCAuk
2 months ago
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Round Sperm
hi ladies, I had my second egg collection yesterday - getting 17! My husband had to give a second sample however as he had really high levels of ‘round sperm’ this can indicate an infection somewhere - but he’s not been ill for probably best part of a year + we didn’t have this issue on EC 1, in November
hi ladies, I had my second egg collection yesterday - getting 17! My husband had to give a second sample however as he had really high levels of ‘round sperm’ this can indicate an infection somewhere - but he’s not been ill for probably best part of a year + we didn’t have this issue on EC 1, in November
Thierry101
in
Fertility Network UK
1 month ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
11 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
8 months ago
Second Rituximab infusion.
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a
Jacksc06
in
CLL Support
11 months ago
Heart Medicine Increased inhaled steroid absorption.
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
Karenjaninaz
in
PMRGCAuk
11 months ago
Allergy to prednisolone?
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
Hi everyone I have severe asthma and was diagnosed with adrenal insufficiency in 2020 after taking lots of Pred when Covid triggered my asthma. I was just left on 5mg Pred for two years with no endocrinology involvement. I was eventually transferred to an endocrinologist who tried me on hydrocortisone
ccccc
in
Asthma Community Forum
9 months ago
Acute steroid myopathy
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to steroids. Words cannot express my frustration to be still having this same conversion nearly two years since starting symptoms, particularly
Body_bonkers
in
PMRGCAuk
11 months ago
Is this overkill?
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
Hello again, Last Monday I had ultrasound scans on my very painful hands and wrists, on the advice of my rheumatologist. I was amazed to receive a phone call the from the hospital the very next day, telling me that I urgently needed to up the steroids to 20mg, and also start taking 2 steroid sparing
humlies
in
PMRGCAuk
11 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
7 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
7 months ago
Hayfever medication ahead of stimulation round-worried!
Hi all, Hoping someone can help me calm a little ahead of our next IVF round. My husband and I will be starting ICSI round 2 in a couple of weeks. We've avoided all unnecessary medication in the lead up but on Thursday night last week we were both really suffering with hayfever and took half a piriton
Hi all, Hoping someone can help me calm a little ahead of our next IVF round. My husband and I will be starting ICSI round 2 in a couple of weeks. We've avoided all unnecessary medication in the lead up but on Thursday night last week we were both really suffering with hayfever and took half a piriton
Minniemouse88
in
Fertility Network UK
1 month ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
7 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
7 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
11 months ago
Sleep Study
I had a flare up at the end of Jan which I didn’t recognise as a typical flare up. Did NOT start as a typical cold/sore throat & turn to chest infection as normal (so I’m still not entirely sure what it was, although doc said bloods suggested viral/bacterial). Everything became very tight / dry in my
I had a flare up at the end of Jan which I didn’t recognise as a typical flare up. Did NOT start as a typical cold/sore throat & turn to chest infection as normal (so I’m still not entirely sure what it was, although doc said bloods suggested viral/bacterial). Everything became very tight / dry in my
PW_R
in
Lung Conditions Community Forum
2 months ago
hair loss - Adalimumab ?
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
hi, I’ve been taking Adalimumab for 2 months and feel OK and it seems to be managing my ulcerative colitis. However, recently I’ve noticed my hair falling out !! I’m not sure if it’s the meds or general life stress!! I hope it’s not the injections as they seem to be working (after several other
Bucket13
in
Crohn's and Colitis Support
11 months ago
help and support with ICSI
hi all due to start ivf/ICSI meds in the coming week. Been with my partner 8 years and been waiting to start IVF for over two years. I’m looking forward to starting a family hopefully but I am absolutely petrified of medical interventions so I’m looking for answers to what will the hormone injections
hi all due to start ivf/ICSI meds in the coming week. Been with my partner 8 years and been waiting to start IVF for over two years. I’m looking forward to starting a family hopefully but I am absolutely petrified of medical interventions so I’m looking for answers to what will the hormone injections
Marsiscoming6
in
Fertility Network UK
1 month ago
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