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Stem cell and bone marrow transplants
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GCA and black outs?
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Hi I'm new to this forum. Dx with pmr April this year. CRP 106. 20mg prednisolone. Worked well so slowly down to 7mg by beginning of November when all symptoms came back within days. then fell over but thought nothing of it. Following week started to feel really unwell. Husband found me unconscious
Devonspinner
in
PMRGCAuk
6 years ago
Love Your Liver - Wrexham
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown
Hidden
in
British Liver Trust
6 years ago
Flu jab & getting ready for winter
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
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Is hair loss a given?
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
Hi all - I know that hair loss/thinning is listed as a possible side effect of taking hydroxyurea. I immediately latched on to the word “possible”, in the hope that it also means loads of us on the drug will not lose hair. My haemo has many young patients who have to take hydroxy forever for sickle cell
WileyFrench
in
MPN Voice
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Simon96
in
MPN Voice
6 years ago
GIFTED ORGANS "TOMORROW" SONG FOR CHRISTMAS - NOVEMBER 10th AND 11TH ROCKFIELD STUDIOS, MONMOUTH, WALES NP25 5ST
URGENT MESSAGE - I am looking for a Liver Transplant who can sing or mime on a song for Christmas called "Tomorrow" at Rockfield Studios, Monmouth, Wales NP25 5ST (Queen recorded Bohemian Rhapsody) - Tomorrow 10th November and Sunday November 11th We have 19 other transplant singers GIFTED ORGANS Manager
URGENT MESSAGE - I am looking for a Liver Transplant who can sing or mime on a song for Christmas called "Tomorrow" at Rockfield Studios, Monmouth, Wales NP25 5ST (Queen recorded Bohemian Rhapsody) - Tomorrow 10th November and Sunday November 11th We have 19 other transplant singers GIFTED ORGANS Manager
Gifted_Organs
in
British Liver Trust
6 years ago
Finally maybe some relief..Good news for me..
Hi everyone! Just a little update on my condition and new plans after my 6 month treatment.. I went to the nephrologist on November 7th. He said some of my labs improved slightly but i'm GFR is still only 16.. My creatine is 3.2 and my BUN is 75.. Large amount amounts of blood in my urine.. The protein
Hi everyone! Just a little update on my condition and new plans after my 6 month treatment.. I went to the nephrologist on November 7th. He said some of my labs improved slightly but i'm GFR is still only 16.. My creatine is 3.2 and my BUN is 75.. Large amount amounts of blood in my urine.. The protein
Smokey2014
in
Kidney Disease
6 years ago
Return to work
Hi all, this week has seen my return to work, nearly three years after being signed off due to Cirrhosis, and Liver transplant October 2017. Monday, Wednesday & Friday this week for two hours, seems manageable, was I wrong. I have slept more than ever this week, but at least I am working again, even
Hi all, this week has seen my return to work, nearly three years after being signed off due to Cirrhosis, and Liver transplant October 2017. Monday, Wednesday & Friday this week for two hours, seems manageable, was I wrong. I have slept more than ever this week, but at least I am working again, even
George_2017
in
British Liver Trust
6 years ago
SickleCellNewsWeek
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
I would gladly marry a man with sickle cell anaemia! – former Most Beautiful Girl in Nigeria (MBGN) http://bit.ly/2OColcx Swedish biotech company, Modus Therapeutics announces FDA Acceptance of Sevuparin for treatment of SCD http://bit.ly/2RLm8xl I long diagnosed myself with sickle cell anaemia,
sicklecellnews
in
Sickle Cell Society
6 years ago
RECEDING GUMS DUE TO MEDICATION FROM LUNG TRANSPLANT. HELP?
I am in recovery from a double lung transplant. I am so fortunate to be able to breathe properly again! However all the drugs I am using are ruining my gums, I am 65 so I know teeth and gums do get worse, but is there anything that will prevent this gum deterioration.
I am in recovery from a double lung transplant. I am so fortunate to be able to breathe properly again! However all the drugs I am using are ruining my gums, I am 65 so I know teeth and gums do get worse, but is there anything that will prevent this gum deterioration.
ross-35_
in
Lung Conditions Community Forum
6 years ago
Happy 2 year lungaversary to me!!!!
Well it's been two years since my single lung transplant. It's not been easy I tell yer, 3 months after transplant I had to have my other lung removed due to aspergillus but that went completely wrong and I went into cardiac arrest four times and ended up in a coma on ecmo for three months with a trachy
Well it's been two years since my single lung transplant. It's not been easy I tell yer, 3 months after transplant I had to have my other lung removed due to aspergillus but that went completely wrong and I went into cardiac arrest four times and ended up in a coma on ecmo for three months with a trachy
Hidden
in
Lung Conditions Community Forum
6 years ago
Lung transplant - how do youmake that decision?
hi everyone,I have just been told that I forfill the criteria for a double lung transplant at Birmingham QE. It’s massive news and I am delighted to be accepted and have that chance, however I’m not sure I’m ready to make that decision. It all feels a bit surreal. I lost my partner 2 years ago to cancer
hi everyone,I have just been told that I forfill the criteria for a double lung transplant at Birmingham QE. It’s massive news and I am delighted to be accepted and have that chance, however I’m not sure I’m ready to make that decision. It all feels a bit surreal. I lost my partner 2 years ago to cancer
Kelda
in
Lung Conditions Community Forum
6 years ago
Infra red lamp treatment.
Hi there folks. As you will know from my previous posts (if you have read them) I am 10 weeks now post liver transplant and as far as my new liver is concerned all is going well. My problem is that I am being plagued by back pain and back ache at the moment that is making me almost immobile. My brother
Hi there folks. As you will know from my previous posts (if you have read them) I am 10 weeks now post liver transplant and as far as my new liver is concerned all is going well. My problem is that I am being plagued by back pain and back ache at the moment that is making me almost immobile. My brother
alfredthegreat
in
British Liver Trust
6 years ago
HEPC Studies and Kidney Transplants
I am wondering if anyone else has personal experience (family member, friend, etc.) that has participated in a study of transplanting kidney(s) from HEPC+ corpses? I attended a conference sponsored by the Georgia Transplant Foundation and one Nephrologist that spoke (she works for the hospital where
I am wondering if anyone else has personal experience (family member, friend, etc.) that has participated in a study of transplanting kidney(s) from HEPC+ corpses? I attended a conference sponsored by the Georgia Transplant Foundation and one Nephrologist that spoke (she works for the hospital where
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Can I work in my job?
I am a 19 year old girl who had a kidney transplant exactly 2 years ago. I have just recentlly got a job in a hospital being a hostess, giving out tea, coffee, water and evening meals to patients. With there being a lot of infections around the hospital I’m not sure whether this is the right job for
I am a 19 year old girl who had a kidney transplant exactly 2 years ago. I have just recentlly got a job in a hospital being a hostess, giving out tea, coffee, water and evening meals to patients. With there being a lot of infections around the hospital I’m not sure whether this is the right job for
Charli1205
in
Kidney Transplant Patient Support
6 years ago
Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
lankisterguy
Volunteer
in
CLL Support
6 years ago
HEALING FOR SICKLE CELL DISEASE
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
sepremesicklecell
in
Sickle Cell Society
6 years ago
For baby evo
Hi! I have a friend, her son is 1 yr old and suffering from biliary atresia.. I don't know how to help her. The hospital is asking for a big amount for his son to have a liver transplant. As her friend, i really to help her. Thats why i am looking for any organization or any support group to help her
Hi! I have a friend, her son is 1 yr old and suffering from biliary atresia.. I don't know how to help her. The hospital is asking for a big amount for his son to have a liver transplant. As her friend, i really to help her. Thats why i am looking for any organization or any support group to help her
Saviourforbaby
in
Children's Liver Disease Foundation
6 years ago
Post transplant weight
Hi I had a liver transplant 3 years ago. It was complex but during my long hospital stay I lost nearly 4 st. Since then I have gradually put on weight and I am almost at my pretransplant weight-16st. I am fairly immobile due to a post transplant stroke so I am only mobile via scooter or short walking
Hi I had a liver transplant 3 years ago. It was complex but during my long hospital stay I lost nearly 4 st. Since then I have gradually put on weight and I am almost at my pretransplant weight-16st. I am fairly immobile due to a post transplant stroke so I am only mobile via scooter or short walking
Denise15
in
British Liver Trust
6 years ago
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