Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,731 public posts
Filter results
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
Administrator
in
Cancer Thrivers
6 years ago
Help Protect Medicare Drug Access
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
Cancer ABCs has Launch a National Petition to Protect Cancer, Antidepressant, Psych, Seizure, Organ Transplant Rejection, and HIV-AIDS Drugs The Trump administration is proposing new cost reduction changes to your Medicare coverage which will limit the drugs available to you. These changes will negatively
JoelT
in
American Cancer Survivors
6 years ago
Waiting for a kidney transplant in Washington, DC
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Hello! My name is Elinga Atembina. I'm from the Democratic Republic of the Congo, but leaving permanently in the US for more than 30 years. I've been diagnosed with kidney disease and currently on dialysis for 3 years. Also, I've been on the kidney transplant waiting list for 3 years at the GWU TRANSPLANT
Kidney4elinga
in
Kidney Transplant
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Just needed some time to process things
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test
Candyred
in
Lung Conditions Community Forum
6 years ago
1 year Post liver transplant seeking communication with other 1 year post transplant recipients.
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long
meme7
in
Power2Save Transplant Community
6 years ago
I have SVT and i have anxiety/ptsd
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch
Armyguy
in
Anxiety Support
6 years ago
Immune Suppressant Side Effects
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate
AndyEssex
in
British Liver Trust
6 years ago
Pets for people with kidney disease
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said
Mindy73
in
Kidney Disease
6 years ago
Curious
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards
Hidden
in
Kidney Disease
6 years ago
I'm new here! This is my Story...
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Actuallyclaire
in
MPN Voice
6 years ago
Hip pain
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
kellyOd
in
Melanoma Caregivers
6 years ago
SICKLE CELL NEWSWEEK
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
SICKLECELLNEWSWEEK MAYDAY: Nigerian teacher/author seeks support to undertake last ditch bone marrow transplant in India http://bit.ly/2RxxyEN Renowned Bone Marrow Transplant Rahul Bhargava launches series to answer all questions on BMT http://bit.ly/2DkMhQn Mother of twins, Mariam Kay recalls
sicklecellnews
in
Sickle Cell Society
6 years ago
Transplant Insurance Coverage
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating
TaffyTwoshoes27
in
Kidney Disease
6 years ago
Hello
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.
Ruder1
in
British Heart Foundation
6 years ago
T Cell treatment
He was in remission following chemo, then had
stem
cell
transplant
. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T Cell treatment.
He was in remission following chemo, then had
stem
cell
transplant
. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T Cell treatment.
Marilyn1959
in
Leukaemia Support
6 years ago
My back problems.
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of
alfredthegreat
in
British Liver Trust
6 years ago
Liver Transplantees - Say Hello
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience
Hidden
in
British Liver Trust
6 years ago
Hallucination after liver transplant
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?
Lilies1
in
British Liver Trust
6 years ago
Post op double lung
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most
Deanh
in
Lung Conditions Community Forum
6 years ago
Questions about high risk donors
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor
IAintNoMensaBut
in
British Liver Trust
6 years ago
1
...
94
95
96
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
700 results
Lung Conditions Community Forum
458 results
Kidney Transplant
428 results
View top 10 communities
Sort by
Most Relevant
Newest