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Liver transplant anniversary
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Hbi1c
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Treeclimber62
in
Diabetes & Hypertension Help Society
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
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Liver Transplant Support and Representation in day to day life. Can you help?
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Reflux cholangitis
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
Passion123456
in
Children's Liver Disease Foundation
3 years ago
PRE-Habilitation Questions for Transplanted and Transplant Listed People
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
JennerLayne
in
British Liver Trust
3 years ago
Prednisone dosage
Hi everyone! Can anyone tell me the lowest dose of prednisone that they are on? My doctor said we could reduce it but she left to run a major kidney transplant program. My new nephrologist said nope without hearing me out or giving any info. (he is not an experienced nephrologist imo). Just curious
Hi everyone! Can anyone tell me the lowest dose of prednisone that they are on? My doctor said we could reduce it but she left to run a major kidney transplant program. My new nephrologist said nope without hearing me out or giving any info. (he is not an experienced nephrologist imo). Just curious
Damigi28
in
Kidney Transplant Patient Support
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
Long time no post lol
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
jojokarak
in
British Liver Trust
3 years ago
Transforming Lung Cells Critical for Pulmonary Fibrosis.
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
2greys
in
Lung Conditions Community Forum
3 years ago
Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Heart Transplant
Has anyone else with Cardiomyopathy been told that their only option left is a Heart Transplant? Just received this info from Hospital 4 days ago and it's left me feeling so numb. Is anyone else going through this.
Has anyone else with Cardiomyopathy been told that their only option left is a Heart Transplant? Just received this info from Hospital 4 days ago and it's left me feeling so numb. Is anyone else going through this.
2beats-or-not-2beats
in
British Heart Foundation
3 years ago
Effectiveness of two jabs for immune suppressed patients
From information I have about kidney transplant patients in France, and from the USA, it looks like there is evidence that the suppressed immune systems of organ transplants, IBD conditions, some cancer treatments, and any other conditions that require immune suppressants, might not responding to the
From information I have about kidney transplant patients in France, and from the USA, it looks like there is evidence that the suppressed immune systems of organ transplants, IBD conditions, some cancer treatments, and any other conditions that require immune suppressants, might not responding to the
Westbourne
in
Kidney Transplant
3 years ago
First Post about AIHA
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
PCBnPBC
in
CLL Support
3 years ago
Exercise post lung transplant
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hidden
in
Lung Conditions Community Forum
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
Liver transplant assessment query.
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
British Liver Trust
3 years ago
Liver transplant assessment query
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
Power2Save Transplant Community
3 years ago
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