Experiences with

Stem cell and bone marrow transplants

Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last

I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!

Kidney transplant caregiver

Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant

As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years

This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result

Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no

I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning

Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However

Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious

There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you

Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate

Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook

Unsure if I should get the vaccine as I have antibodies.

Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted

Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not

Britain's oldest heart transplant patient, Ted Warner, recently turned 90. Ted had his transplant 31 years ago but many have survived far longer. https://www.bbc.co.uk/news/uk-england-cambridgeshire-58361917

UK's oldest living heart transplant patient marks 90th birthday. What brilliant news, only expected a few more years to live after transplant (BBC news)Transplant op in August 1990. Never give in! Take care all

. :-) Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey... Best wishes all, stay safe & well... Steve [i]Re: WARWICK's ASCT Journey Begins Today...

Hi. I've had some results of my latest Dexa scan today. I'm due to speak to the consultant next week so I thought I'd jump the gun and ask some questions so I could prepare for the conversation. This is a summary: " Dexa scan shows an unreliable score at the lumbar spine due to the presence of vertebral