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Stem cell and bone marrow transplants
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AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
A decade on from heart failure diagnosis
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
laura_dropstitch
Heart Star
in
British Heart Foundation
3 years ago
How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Hidden
in
Kidney Transplant
3 years ago
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31 year old facing AML fight.
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
NathaN89
in
Leukaemia Support
3 years ago
Starting tocilizumab
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
Sharitone
in
PMRGCAuk
3 years ago
Post Liver transplant
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
Join the Virus Watch project ( in the UK)
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Suzita76
in
PMRGCAuk
3 years ago
Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
Erikaknitssocks
in
PMRGCAuk
3 years ago
Liver transplantation for alcohol-related liver disease in the UK: revised UK Liver Advisory Group recommendations for referral
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
Richard-Allen
in
British Liver Trust
3 years ago
Re: Vaccine efficacy
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Jay986
in
British Liver Trust
3 years ago
Kid ni Not
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
TuLiChang
in
Kidney Dialysis
3 years ago
Kidney Transplant
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Porter20
in
Kidney Transplant
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
Vaccine hesitation
As some who has had a liver transplant and on immunosuppressants obviously and also having had a portal vein thrombosis I’m reluctant to have the covid19 vaccine As reported early on in this “pandemic” certain vaccines were and still are responsible for clotting, besides the clotting issue the fact
As some who has had a liver transplant and on immunosuppressants obviously and also having had a portal vein thrombosis I’m reluctant to have the covid19 vaccine As reported early on in this “pandemic” certain vaccines were and still are responsible for clotting, besides the clotting issue the fact
Rockefeller20
in
British Liver Trust
3 years ago
Feeling a bit Hopeless
I have been on the lung transplant list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics. This has
I have been on the lung transplant list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics. This has
mary1956
in
Lung Conditions Community Forum
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed
stem
cell
transplant
later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated.
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed
stem
cell
transplant
later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated.
67Red
in
MPN Voice
3 years ago
Joint Committee on Vaccination and Immunisation (JCVI) advice on third primary dose vaccination
cell
transplant
in the previous 24 months those who had received a
stem
cell
transplant
more than 24 months ago but had ongoing immunosuppression or graft versus host disease (GVHD) persistent agammaglobulinaemia (IgG < 3g/L) due to primary immunodeficiency (for example, common variable immunodeficiency
cell
transplant
in the previous 24 months those who had received a
stem
cell
transplant
more than 24 months ago but had ongoing immunosuppression or graft versus host disease (GVHD) persistent agammaglobulinaemia (IgG < 3g/L) due to primary immunodeficiency (for example, common variable immunodeficiency
crashdoll
in
Lung Conditions Community Forum
3 years ago
Open up to conversations: Hear from a transplant surgeon
In order to feel empowered and safe, whilst navigating our own heath journeys, it is also important we remember we are being looked after by humans - the consultants, nurses, surgeons, anaesthetist - we are all in this human experience together. You may find this conversation with kidney transplant
In order to feel empowered and safe, whilst navigating our own heath journeys, it is also important we remember we are being looked after by humans - the consultants, nurses, surgeons, anaesthetist - we are all in this human experience together. You may find this conversation with kidney transplant
WhollyAligned
in
Kidney Transplant Patient Support
3 years ago
Tocilizumab cessation.
I posted recently concerning the fear and dread the withdrawal of this excellent treatment causes myself and fellow sufferers of GCA/PMR. To further update I am a constituent of Sajid David and have therefore e-mailed him to express our shared distress at having this treatment given and then taken away
I posted recently concerning the fear and dread the withdrawal of this excellent treatment causes myself and fellow sufferers of GCA/PMR. To further update I am a constituent of Sajid David and have therefore e-mailed him to express our shared distress at having this treatment given and then taken away
AncientMariner
in
PMRGCAuk
3 years ago
The "Sally Painting Story"
For many people, the name Sally Painting may be unknown. But Sally was an inspiration for so many people. She was the first-ever liver transplant patient to later become a nurse. She even worked on the same liver ward at the QE Hospital, Birmingham where she was once a patient. At the age of 13, Sally
For many people, the name Sally Painting may be unknown. But Sally was an inspiration for so many people. She was the first-ever liver transplant patient to later become a nurse. She even worked on the same liver ward at the QE Hospital, Birmingham where she was once a patient. At the age of 13, Sally
Richard-Allen
in
British Liver Trust
3 years ago
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