Search
Search
About
Log in
Join
Experiences with
Stem cell and bone marrow transplants
Posts
Communities
3,780 public posts
Filter results
Post Kasai and Need for Liver Transplant
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
manhealth
in
Children's Liver Disease Foundation
3 years ago
Dr. Ondo have an appt with this dr in December. Can anyone tell me if they have seen him or had any experience with him and their thoughts
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
ESRDRLS
in
Restless Legs Syndrome
3 years ago
I need the rest
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
Agent54
in
Restless Legs Syndrome
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant Patient Support
3 years ago
Educating the public about the need for living kidney donors.
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Disease
3 years ago
31 year old facing AML fight.
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
NathaN89
in
Leukaemia Support
3 years ago
Where are all the husbands talking about their wives and partners alcohol-related liver disease?
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
Richard-Allen
in
British Liver Trust
3 years ago
AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
A decade on from heart failure diagnosis
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
laura_dropstitch
Heart Star
in
British Heart Foundation
3 years ago
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed
stem
cell
transplant
later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated.
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed
stem
cell
transplant
later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated.
67Red
in
MPN Voice
3 years ago
How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Hidden
in
Kidney Transplant
3 years ago
Post Liver transplant
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
Starting tocilizumab
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
Sharitone
in
PMRGCAuk
3 years ago
Liver transplantation for alcohol-related liver disease in the UK: revised UK Liver Advisory Group recommendations for referral
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
Richard-Allen
in
British Liver Trust
3 years ago
Join the Virus Watch project ( in the UK)
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Suzita76
in
PMRGCAuk
3 years ago
Re: Vaccine efficacy
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Jay986
in
British Liver Trust
3 years ago
Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have experienced steroid withdrawal on a prior occasion. I am debating whether to keep taking it over Christmas or to stop now… and I’m wondering whether:
Erikaknitssocks
in
PMRGCAuk
3 years ago
Kid ni Not
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
TuLiChang
in
Kidney Dialysis
3 years ago
1
...
41
42
43
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
708 results
Lung Conditions Community Forum
459 results
Kidney Transplant
440 results
View top 10 communities
Sort by
Most Relevant
Newest