Search
Search
About
Log in
Join
Experiences with
Spinal cord injuries
Posts
Communities
1,307 public posts
Filter results
First PSA rise in three years, watch for doubling time? Or look into scans?
My husband (age 71) was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enlarged lymph nodes in the iliac chain, obturator, and largest in the para-aortic measuring 3.3 cm. Bone scan was clear. Pelvic radiation in 2017. After 3 months of ADT (eligard) his psa dropped to .008. After 18 months
My husband (age 71) was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enlarged lymph nodes in the iliac chain, obturator, and largest in the para-aortic measuring 3.3 cm. Bone scan was clear. Pelvic radiation in 2017. After 3 months of ADT (eligard) his psa dropped to .008. After 18 months
cajeffrey
in
Advanced Prostate Cancer
5 years ago
Complex regional pain syndrome
Hi all! I’ve had CRPS for 12 years in my leg and managed to get it under control. However last April I had an operation for endometriosis and have now been told that I have CRPS inside. None of the medication the Drs have prescribed (I’ve tried all the normal ones) work for me, so I’ve asked for spinal
Hi all! I’ve had CRPS for 12 years in my leg and managed to get it under control. However last April I had an operation for endometriosis and have now been told that I have CRPS inside. None of the medication the Drs have prescribed (I’ve tried all the normal ones) work for me, so I’ve asked for spinal
MiniRowls
in
Pain Concern
5 years ago
Journey home
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Janzo54
in
Lung Conditions Community Forum
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
6 months post circumcision
Hello again everyone. I’ve been through alot with my circumcision and even though I dreaded my foreskin because it started to get balanitis, I wish I go back. Also a bit off topic but I read online thar Balanitis is not something you can catch or it’s due to poor hygiene but i only got after I i rubbed
Hello again everyone. I’ve been through alot with my circumcision and even though I dreaded my foreskin because it started to get balanitis, I wish I go back. Also a bit off topic but I read online thar Balanitis is not something you can catch or it’s due to poor hygiene but i only got after I i rubbed
StupidMo
in
Men's Health Forum (Penis Health)
4 years ago
Changing to Xeloda
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Duffles
in
SHARE Metastatic Breast Cancer
5 years ago
Living with Osteo
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Me20244
in
Bone Health and Osteoporosis UK
5 years ago
Early Retirement from Work.
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Ijo1
in
Fibromyalgia Action UK
5 years ago
Facet joint injection or not in North East Wales.
Good morning everyone, I hope you are all having a good day. I have a question, are there any people living in North East Wales who have fibromyalgia and have had facet joint radio ablation or spinal cord stimulator fitted for arthritis. I have been told by the pain team that I can't have either because
Good morning everyone, I hope you are all having a good day. I have a question, are there any people living in North East Wales who have fibromyalgia and have had facet joint radio ablation or spinal cord stimulator fitted for arthritis. I have been told by the pain team that I can't have either because
mimimouse
in
Fibromyalgia Action UK
5 years ago
Panasol 2 Light therapy?
ok, I have one of these 8 ft lights! It is for use by Doctors. I used it for a friends leg, for only 20 seconds at a time..with goggles and black cape over her body. Now it says these are good to destroy this virus! anyone know how I use it to be safe with my COPD, Heart Damage, Lung Damage, Diafram
ok, I have one of these 8 ft lights! It is for use by Doctors. I used it for a friends leg, for only 20 seconds at a time..with goggles and black cape over her body. Now it says these are good to destroy this virus! anyone know how I use it to be safe with my COPD, Heart Damage, Lung Damage, Diafram
JANET127
in
Lung Conditions Community Forum
4 years ago
Three-drug combination reduces COPD patient mortality.
Once-daily treatment of patients with chronic obstructive pulmonary disease (COPD) with an inhaler combining fluticasone furoate (FF), umeclidinium (UMEC) and vilanterol (VI) reduced all-cause mortality by 42 percent, according to new research published online in the American Thoracic Society’s American
Once-daily treatment of patients with chronic obstructive pulmonary disease (COPD) with an inhaler combining fluticasone furoate (FF), umeclidinium (UMEC) and vilanterol (VI) reduced all-cause mortality by 42 percent, according to new research published online in the American Thoracic Society’s American
2greys
in
Lung Conditions Community Forum
5 years ago
Nerve pain post surgery
I had spinal surgery for a herniated disc about 5 months ago. I recovered well and my leg pain and back pain disappeared. My back still ocassionally ached etc due to damaged discs but nothing unbearable. I have nerve damage from the herniation which affected the sensation in my lower leg, it is numb
I had spinal surgery for a herniated disc about 5 months ago. I recovered well and my leg pain and back pain disappeared. My back still ocassionally ached etc due to damaged discs but nothing unbearable. I have nerve damage from the herniation which affected the sensation in my lower leg, it is numb
Devils_Advocate
in
Pain Concern
5 years ago
Fed up with always getting colds and bugs
I ended 2018 with a nasty chest infection which took months and a ton of medication to budge. After that I seemed to have a cold or a bug every few weeks, all through the year. 2019, I spent 2nd Christmas in a row, too poorly to get out of bed (with a cold, each time, rather than regular hypo symptoms
I ended 2018 with a nasty chest infection which took months and a ton of medication to budge. After that I seemed to have a cold or a bug every few weeks, all through the year. 2019, I spent 2nd Christmas in a row, too poorly to get out of bed (with a cold, each time, rather than regular hypo symptoms
Wetsuiter
in
Thyroid UK
5 years ago
Quitting smoking
Hi everyone.I have struggled to stop smoking as being diagnosed with copd year and half ago was a shock I never even heard of it. I had lung function test at the time which was I mild I not had one since due to my council cut backs so i cant even keep an eye on my lungs..I have now after year and half
Hi everyone.I have struggled to stop smoking as being diagnosed with copd year and half ago was a shock I never even heard of it. I had lung function test at the time which was I mild I not had one since due to my council cut backs so i cant even keep an eye on my lungs..I have now after year and half
Madonna1
in
Lung Conditions Community Forum
5 years ago
Thyroid & Weightloss
Hey all ... I’m sure many of you on here with hypo conditions will have something to contribute here. Précis of my story so far ... RAI treatment 12 years ago. Battle to lose weight gained. Lost a massive amount then gained it again. Feeling more like myself again now treatment plan corrected so
Hey all ... I’m sure many of you on here with hypo conditions will have something to contribute here. Précis of my story so far ... RAI treatment 12 years ago. Battle to lose weight gained. Lost a massive amount then gained it again. Feeling more like myself again now treatment plan corrected so
Aslangal
in
Thyroid UK
5 years ago
Surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Libertylane
in
PMRGCAuk
5 years ago
This might help
Hi everyone..I write on here from time to time..as I've had restless legs on and off for years. Recently it's been not soooo bad.. I've managed to take more iron and supplement that with rose hip and cod liver oil.. I also make sure I have enough magnesium.. These simple steps have made a difference.
Hi everyone..I write on here from time to time..as I've had restless legs on and off for years. Recently it's been not soooo bad.. I've managed to take more iron and supplement that with rose hip and cod liver oil.. I also make sure I have enough magnesium.. These simple steps have made a difference.
janland
in
Restless Legs Syndrome
5 years ago
Shingles vaccine
I'm in Johannesburg South Africa. Shingrix is not available in SA only Zovirax. As a CLL sufferer who has had one session of Shingles has anyone been able to obtain Shingrix in South Africa??
I'm in Johannesburg South Africa. Shingrix is not available in SA only Zovirax. As a CLL sufferer who has had one session of Shingles has anyone been able to obtain Shingrix in South Africa??
Alpha66
in
CLL Support
5 years ago
Share your quitting success stories: What helped you quit smoking?
I am noticing a few posts lately about people who are trying to quit smoking. Being a former smoker myself I understand how hard it can be to quit. Truthfully, creating a lasting change in life is tough enough (for me at least) without the added burden of nicotine addiction making it even harder. That
I am noticing a few posts lately about people who are trying to quit smoking. Being a former smoker myself I understand how hard it can be to quit. Truthfully, creating a lasting change in life is tough enough (for me at least) without the added burden of nicotine addiction making it even harder. That
R2B_Joe
Partner
in
COPD Friends
5 years ago
Migraine ,spinal cord injuries, anxiety, depressed
I suffer from the past few week again.I cannot continue to study my lessons.Ohh GOD I need you to heal me.
I suffer from the past few week again.I cannot continue to study my lessons.Ohh GOD I need you to heal me.
Teteihmar
in
Anxiety and Depression Support
5 years ago
Fostair - So far so good!
Well Peeps, day 3 of the previously dreaded Fostair on the advice of my GP practice Pharmacist/Respiratory Nurse, & no side effects whatsoever. What I was dreading was similar to the previous 'maintenance' inhalers, Tiotropium & Aclidinium, both of which delivered a paradoxic reaction & had to be stopped
Well Peeps, day 3 of the previously dreaded Fostair on the advice of my GP practice Pharmacist/Respiratory Nurse, & no side effects whatsoever. What I was dreading was similar to the previous 'maintenance' inhalers, Tiotropium & Aclidinium, both of which delivered a paradoxic reaction & had to be stopped
JagNut
in
Lung Conditions Community Forum
5 years ago
1
...
17
18
19
...
66
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
253 results
Thyroid UK
172 results
Pain Concern
162 results
View top 10 communities
Sort by
Most Relevant
Newest