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I really don't know where to start
My PMR is back and as bad as can be. I started out at 15mg and am taking methotrexate too. I've tapered to 14mg and I'm now unwilling to budge from this because I've been hit with a list of things that are making it hard. My husband has been diagnosed with stage 3b lung cancer and is not doing well at
My PMR is back and as bad as can be. I started out at 15mg and am taking methotrexate too. I've tapered to 14mg and I'm now unwilling to budge from this because I've been hit with a list of things that are making it hard. My husband has been diagnosed with stage 3b lung cancer and is not doing well at
Amkoffee
in
PMRGCAuk
6 months ago
Iron levels checked
Had an iron panel completed. 2 important numbers. Ferritin 102, saturation 29 percent. Now what. Dr says both normal. Every test I take, everything comes back normal so why have I had RLS since childhood and at 76 getting 2-3 hours sleep because I have to walk the floors all night and getting worse and
Had an iron panel completed. 2 important numbers. Ferritin 102, saturation 29 percent. Now what. Dr says both normal. Every test I take, everything comes back normal so why have I had RLS since childhood and at 76 getting 2-3 hours sleep because I have to walk the floors all night and getting worse and
lanie136
in
Restless Legs Syndrome
6 months ago
online access to health records
Greetings both seasonal and personal to one and all. When I lurk here, I often wish I could post a message of hope and encouragement, that would fire up positive vibes in each reader. Ha! instead I end up taking comfort from the posts celebrating a step forward and sharing empathy for those enduring
Greetings both seasonal and personal to one and all. When I lurk here, I often wish I could post a message of hope and encouragement, that would fire up positive vibes in each reader. Ha! instead I end up taking comfort from the posts celebrating a step forward and sharing empathy for those enduring
Bribin
in
CLL Support
6 months ago
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Confounded by two different results for MMA test. One negative, one positive
About six weeks ago husband took a Medichecks MMA test. It was over range (positive) In a way I was relieved by this because it meant that now we knew what we were dealing with and what to do about it. However, GP was clueless and referred us on to a specialist in Cambridge, who five weeks after the
About six weeks ago husband took a Medichecks MMA test. It was over range (positive) In a way I was relieved by this because it meant that now we knew what we were dealing with and what to do about it. However, GP was clueless and referred us on to a specialist in Cambridge, who five weeks after the
Noelnoel
in
Pernicious Anaemia Society
6 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
6 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
6 months ago
Low dose aspirin
Had anyone who is on low dose aspirin for life, found their iron levels have dropped. Went for pre assessment for total knee replacement a few weeks before Christmas and blood test showed my iron levels had dropped, so now going for iron infusion at local hospital this afternoon. Looking back on past
Had anyone who is on low dose aspirin for life, found their iron levels have dropped. Went for pre assessment for total knee replacement a few weeks before Christmas and blood test showed my iron levels had dropped, so now going for iron infusion at local hospital this afternoon. Looking back on past
annpavitt250448
in
British Heart Foundation
6 months ago
still feeling rubbish, any ideas please?
hi lovely forum friends. I’ve now been on NDT 4 months, all but a few days. My readings from 10 Dec are TSH. 0.092. (0.27-4.2) T3. 3.8. (3.1-6.8) T4. 13.7. (12-22) after this test I decided after posting here to raise my pm dose to 45mg and I take 60mg (Erfa) early morning. I’m now taking the
hi lovely forum friends. I’ve now been on NDT 4 months, all but a few days. My readings from 10 Dec are TSH. 0.092. (0.27-4.2) T3. 3.8. (3.1-6.8) T4. 13.7. (12-22) after this test I decided after posting here to raise my pm dose to 45mg and I take 60mg (Erfa) early morning. I’m now taking the
Starseed56
in
Thyroid UK
6 months ago
Pregablin
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Baz33
in
Restless Legs Syndrome
6 months ago
First DEXA shows osteopenia - hoping for some advice please
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Bertiepuss
in
Bone Health and Osteoporosis UK
6 months ago
Prednisolone and breathlessness
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Buchanan16
in
PMRGCAuk
6 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
6 months ago
You tube videos
Just an update from previous posts. I'm currently in the process of experimentation with my RLS. I have tried to avoid sugar / chocolate and MSG. The MSG comes from eating out ! My Thai girlfriend makes healthy meals for me each day with no added 'stuff' ! I can have nights which are bad for
Just an update from previous posts. I'm currently in the process of experimentation with my RLS. I have tried to avoid sugar / chocolate and MSG. The MSG comes from eating out ! My Thai girlfriend makes healthy meals for me each day with no added 'stuff' ! I can have nights which are bad for
Summer194
in
Restless Legs Syndrome
6 months ago
Yet more possible problems with AF which may include meds
Hello all. Please, looking for yet more possible info here on my newely diagnosed AF. When I was in the hospital in early past November they were taking the usual blood tests especially since prescribing xarelto for me, along with my furosemide and metoprolol. Now since I'm home I had 2 more ordered
Hello all. Please, looking for yet more possible info here on my newely diagnosed AF. When I was in the hospital in early past November they were taking the usual blood tests especially since prescribing xarelto for me, along with my furosemide and metoprolol. Now since I'm home I had 2 more ordered
gbn_
in
Atrial Fibrillation Support
6 months ago
Restless Leg - Interesting Article
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Article says iron is not getting across the BBB. Wonder if helps with PD.
They are trying to sell, but Interesting . I already take some of the things mentioned. Says I need Lactobacillus plantarum 299. My probiotic has Lactobacillus plantarum but does not state 299. The article has links, but
Gcf51
in
Cure Parkinson's
6 months ago
Need help please. 29 yr old male, feeling tired all the time.
Hello great people . I need some real help here. i am 29 yr old male. weighing 60kg skinny build. since 2017 i haven't been feeling whole. im tired all the time. after standing on my feet for 30 mins or walking a mile i feel exhausted . like there is no energy in me. i have sit for hour or 2 to feel
Hello great people . I need some real help here. i am 29 yr old male. weighing 60kg skinny build. since 2017 i haven't been feeling whole. im tired all the time. after standing on my feet for 30 mins or walking a mile i feel exhausted . like there is no energy in me. i have sit for hour or 2 to feel
Anomymous
in
Thyroid UK
6 months ago
Uncontrolled RLS
I’d like to report the observations of a friend with RLS whose disorder worsened to the point of not being able to ride in a car without extreme discomfort. The thought of a car ride produced anxiety. Standing or moving relieved the symptoms. In the evening and at night, the RLS worsened. When attempting
I’d like to report the observations of a friend with RLS whose disorder worsened to the point of not being able to ride in a car without extreme discomfort. The thought of a car ride produced anxiety. Standing or moving relieved the symptoms. In the evening and at night, the RLS worsened. When attempting
Busunsc713
in
Restless Legs Syndrome
6 months ago
CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
6 months ago
increase iron
this is my 3rd post and I really appreciate all the help! I am going to talk to my Neurologist about augmentation and opioids. But I was wondering if there is a way to increase my iron levels on my own?
this is my 3rd post and I really appreciate all the help! I am going to talk to my Neurologist about augmentation and opioids. But I was wondering if there is a way to increase my iron levels on my own?
6236
in
Restless Legs Syndrome
6 months ago
Don't want to go back on the pill/more surgeries! Deep infiltrating endo on bowel and uterine polyp removed recently for heavy bleeding.
Hello fellow endo warriors. I have a dilemma. I really don't want to go back on the bcp after being on it for 15 years as it has not been effective for my deep infiltrating endo on my bowel. My ultimate goal is to heal endo at the core using non-hormonal & surgery approach. Not just a bandaid solution
Hello fellow endo warriors. I have a dilemma. I really don't want to go back on the bcp after being on it for 15 years as it has not been effective for my deep infiltrating endo on my bowel. My ultimate goal is to heal endo at the core using non-hormonal & surgery approach. Not just a bandaid solution
jen2023
in
Endometriosis UK
6 months ago
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