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Iron Infusion Side Effects?
I inherited thalassemia anemia and have ET JAK2+ for nearly two years so odd red blood cells and higher than normal platelets among other things are my norm. A week ago hematologist recommended iron infusion of a different blend than I had once before quite a while back. That infusion was difficult
I inherited thalassemia anemia and have ET JAK2+ for nearly two years so odd red blood cells and higher than normal platelets among other things are my norm. A week ago hematologist recommended iron infusion of a different blend than I had once before quite a while back. That infusion was difficult
Mishie14
in
MPN Voice
5 months ago
Endoscopy/Colonoscopy
Hi it's been awhile hope everyone is well, I have been in and out of the hospital it just seems endless. Appointment after appointment still struggling with my amenia that it's being monitored a few weeks ago it was 6.8 than suddenly about a week or dropped to 6.5. I have no real symptoms yet on the
Hi it's been awhile hope everyone is well, I have been in and out of the hospital it just seems endless. Appointment after appointment still struggling with my amenia that it's being monitored a few weeks ago it was 6.8 than suddenly about a week or dropped to 6.5. I have no real symptoms yet on the
bbeba103
in
Kidney Disease
5 months ago
How do I defeat extreme tiredness?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Nucleusman
in
CLL Support
5 months ago
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iron test results
Hello. This is my first post, although I’ve been lurking here for a while and have been gradually increasing my Levo dose by following the advice on this forum. I’m not quite where I want to be yet, but definitely getting there. I’ve also been struggling with my vitamin and ferritin levels, so have started
Hello. This is my first post, although I’ve been lurking here for a while and have been gradually increasing my Levo dose by following the advice on this forum. I’m not quite where I want to be yet, but definitely getting there. I’ve also been struggling with my vitamin and ferritin levels, so have started
BethBeezle
in
Thyroid UK
5 months ago
Another update - salivary cortisol and more thoughts on what's going on
Hey everyone, My salivary cortisol came back few days ago, much improved. I wanted to check what impact additional 7.5 mcg t3 had on my saliva cortisol levels. My morning cortisol increased from 7 to 58% My afternoon cortisol went from 9 to 57%. My evening cortisol went from 59% to 115%. Concerned
Hey everyone, My salivary cortisol came back few days ago, much improved. I wanted to check what impact additional 7.5 mcg t3 had on my saliva cortisol levels. My morning cortisol increased from 7 to 58% My afternoon cortisol went from 9 to 57%. My evening cortisol went from 59% to 115%. Concerned
Incoguto
in
Thyroid UK
5 months ago
results
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
Kowbie
in
Thyroid UK
5 months ago
update
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
Kowbie
in
Thyroid UK
5 months ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
5 months ago
Please help me interpret these results!
I went to the GP complaining of vertigo, insomnia, exhaustion, joint pain and mood disturbances amongst other things. I was given a blood test. I have been discharged and essentially told that there’s no reason for me to be feeling like this, but that I “may become hypothyroid in future”. I just want
I went to the GP complaining of vertigo, insomnia, exhaustion, joint pain and mood disturbances amongst other things. I was given a blood test. I have been discharged and essentially told that there’s no reason for me to be feeling like this, but that I “may become hypothyroid in future”. I just want
Pink20s
in
Thyroid UK
6 months ago
myocarditis
At the beginning of January I was admitted very poorly to hospital. I ended up staying for two weeks and discharged with a diagnosis of active myocarditis. Advised to rest. I’m to have a follow up in three months with mri and cardiologist. I also had a massive drop in iron and had to have an infusion
At the beginning of January I was admitted very poorly to hospital. I ended up staying for two weeks and discharged with a diagnosis of active myocarditis. Advised to rest. I’m to have a follow up in three months with mri and cardiologist. I also had a massive drop in iron and had to have an infusion
Clarefinn
in
British Heart Foundation
6 months ago
Hubby and his heart
My husband had bad flu over Christmas and since then has had huge issues with breathlessness, bloating, fluid retention and fatigue. He's had ECG's, MRI , chest x-ray and bloods. This has shown up that he has fluid around his heart as it's just not pumping properly, is severely anaemic and his vitamin
My husband had bad flu over Christmas and since then has had huge issues with breathlessness, bloating, fluid retention and fatigue. He's had ECG's, MRI , chest x-ray and bloods. This has shown up that he has fluid around his heart as it's just not pumping properly, is severely anaemic and his vitamin
Muzzyduck
in
British Heart Foundation
6 months ago
Do I just learn to live with thinning hair?
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
Naomi8
in
Thyroid UK
6 months ago
Newly diagnosed and confused
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Opposite
in
Thyroid UK
6 months ago
Updated results
Morning all, I posted some results a while ago and followed the very wise advice I was given but as I still felt rubbish I got into my GP who was very helpful and ordered lots of tests for me. When I posted towards the end of last year I was struggling and my B12 was low, ferritin dire at 16 and some
Morning all, I posted some results a while ago and followed the very wise advice I was given but as I still felt rubbish I got into my GP who was very helpful and ordered lots of tests for me. When I posted towards the end of last year I was struggling and my B12 was low, ferritin dire at 16 and some
Peril1504
in
Thyroid UK
6 months ago
Adenomyosis help!
Hi, im new here so please bare with me. I feel like I don’t know where to turn. Background, I’m 30 years old and was diagnosed with PCOS when I was 24/25. I’ve since had two children. After my first was born, I started having some irregular bleeding, went to the GP and they sent me for a scan which
Hi, im new here so please bare with me. I feel like I don’t know where to turn. Background, I’m 30 years old and was diagnosed with PCOS when I was 24/25. I’ve since had two children. After my first was born, I started having some irregular bleeding, went to the GP and they sent me for a scan which
Healthpcos
in
Endometriosis UK
6 months ago
ferritin iron test
should iron and ferretin be fasting or non fasting ? Benefit?
should iron and ferretin be fasting or non fasting ? Benefit?
Hope61
in
Restless Legs Syndrome
6 months ago
Fatigue, anaemia and chest pain
Hi everyone ☺️ I got diagnosed with stage 2 endo after a lap last November. We're trying to conceive so haven't been prescribed any meds to manage the endo. Just waiting for an IVF appointment. I've stopped eating gluten, not having caffeine or alcohol. Taking supplements. Eating well, sleeping well,
Hi everyone ☺️ I got diagnosed with stage 2 endo after a lap last November. We're trying to conceive so haven't been prescribed any meds to manage the endo. Just waiting for an IVF appointment. I've stopped eating gluten, not having caffeine or alcohol. Taking supplements. Eating well, sleeping well,
Bluebells86
in
Endometriosis UK
6 months ago
Blood test results
Hi I had been on 50mcg of levothyroxine for about 6 weeks approx because I bought them online since my doctor wouldn't prescribe them at the time, as I have a pending hospital appointment with an endocrinologist at the end of this year and he wanted to wait until I'd see him/her first. I told the doctor
Hi I had been on 50mcg of levothyroxine for about 6 weeks approx because I bought them online since my doctor wouldn't prescribe them at the time, as I have a pending hospital appointment with an endocrinologist at the end of this year and he wanted to wait until I'd see him/her first. I told the doctor
Foxxyyh
in
Thyroid UK
6 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
6 months ago
help with bloods.
As you will see from my previous post my daughter had been to see an endocrinologist concerning symptoms that include physical fatigue, hair loss, low moods, big thirst, migraines,itchy skin, brain fog, heart palpitation etc. He told her to take multi vitamins, vitamin D and iron . He said he’d retest
As you will see from my previous post my daughter had been to see an endocrinologist concerning symptoms that include physical fatigue, hair loss, low moods, big thirst, migraines,itchy skin, brain fog, heart palpitation etc. He told her to take multi vitamins, vitamin D and iron . He said he’d retest
WendyW1964
in
Thyroid UK
6 months ago
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