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Sodium clodronate
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My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
1 year ago
Dramatic change to palliative from treatable after 6 and a half years
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
konichiwa12
in
Advanced Prostate Cancer
2 months ago
Next treatment?
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
Docker53
in
Advanced Prostate Cancer
2 months ago
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double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
7 months ago
Radiation Proctitis looking for advise please.
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
Bettys-rose
in
Pelvic Radiation Disease Association
7 months ago
CLL and Lupus labs
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
JerrysGirl3
in
CLL Support
1 year ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
3 months ago
TO EVERYONE: I have TONS of Nutritional Information From the USDA Website I Can Share
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
checkman
in
Kidney Dialysis
1 year ago
Raising Low Sodium Levels
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Juliet_22
in
Thyroid UK
1 year ago
Ferritin and Haemoglobin levels
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
Hi All, my husband had to abandon radium 223 when it was discovered that he had several lung nodules (around 8mm). His PSA has been increasing for the last 18 months (he was diagnosed August 2022) so his oncologist sent him for a scan after the 4th radium infusion which is how the lung nodules were discovered
NLondon43
in
Advanced Prostate Cancer
3 months ago
Low Estradiol and low Iron - is it Thyroid?
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Incoguto
in
Thyroid UK
1 year ago
Chronic diarrhea after chemo; any suggestions?
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Sybil71
in
My Ovacome
8 months ago
Burning intestines not GERD or heartburn
Hi, I wanted to ask if anyone experiences burning intestines when they have violent liquid bowels? It’s what I would call nerve pain as it prickles and burns in my upper abdomen not my stomach this is not GERD or heartburn it is my intestines that burn and the burning goes through to my back. It is
Hi, I wanted to ask if anyone experiences burning intestines when they have violent liquid bowels? It’s what I would call nerve pain as it prickles and burns in my upper abdomen not my stomach this is not GERD or heartburn it is my intestines that burn and the burning goes through to my back. It is
MyStar86
in
IBS Network
8 months ago
GP Issues Again With Levo Dose Reduction
I am writing once again with regard to my mothers Thyroid situation. This has been going on for many years 🙄 My mother GP/GPs have been slowly reducing her Levo dose for years, saying she is over medicated. They are as usual focusing on her TSH bloods thinking because her TSH is below zero she’s over
I am writing once again with regard to my mothers Thyroid situation. This has been going on for many years 🙄 My mother GP/GPs have been slowly reducing her Levo dose for years, saying she is over medicated. They are as usual focusing on her TSH bloods thinking because her TSH is below zero she’s over
Flatdanny
in
Thyroid UK
1 year ago
Liver Cirrhosis
I have symptoms of cirrhosis. Mainly difficulty sleeping, muscle weakness, internal tremors. it has been going on since December. I have had slightly elevated enzymes on two occasions since December. Sodium was low on once occasion and bilirubin in urine on one occasion. Most recent tests showed
I have symptoms of cirrhosis. Mainly difficulty sleeping, muscle weakness, internal tremors. it has been going on since December. I have had slightly elevated enzymes on two occasions since December. Sodium was low on once occasion and bilirubin in urine on one occasion. Most recent tests showed
pizza07110711
in
British Liver Trust
1 year ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
8 months ago
Popmusic1
Hi My daughter has been on Sodium Cromoglycate for MCAS but has been told it’s not available as there is a distribution problem with it.Nothing else has worked for her and the pharmacy does not know if and when it will be available again.Does anyone know if it’s available anywhere
Hi My daughter has been on Sodium Cromoglycate for MCAS but has been told it’s not available as there is a distribution problem with it.Nothing else has worked for her and the pharmacy does not know if and when it will be available again.Does anyone know if it’s available anywhere
Popmusic1
in
The UK Mastocytosis Support Group
1 year ago
Liothyronine sodium v Liothyronine hydrochloride?
Hello, My private endo has just prescribed Thybon Henning 20 which is the hydrochloride formulation of T3 as opposed to sodium. Is it ok to change formulations like this please?
Hello, My private endo has just prescribed Thybon Henning 20 which is the hydrochloride formulation of T3 as opposed to sodium. Is it ok to change formulations like this please?
Jtaylorhoo
in
Thyroid UK
1 year ago
Can Sodium or Calcium Channel Blockers Worsen SVT?
Okay, so I have a new med that I am trying, Propafenone. I have failed Norpace and also Flecainide. The problem I am having is that it seems that these medicines are making the SVT worse. I have Atrial Tachycardia. I cannot find any information about this. Where can I get more information? My doctor
Okay, so I have a new med that I am trying, Propafenone. I have failed Norpace and also Flecainide. The problem I am having is that it seems that these medicines are making the SVT worse. I have Atrial Tachycardia. I cannot find any information about this. Where can I get more information? My doctor
MeganMN
in
AF Association
1 year ago
Low sodium levels in bloodwork
My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant feature. His sodium levels have been trending downward since his dx. He experiences frequent periods of confusion throughout the day and I always attributed this to severe blood pressure swings but now wonder if it is low
My husband was dx with MSA-P in 2021 with automonic dysfunction as his dominant feature. His sodium levels have been trending downward since his dx. He experiences frequent periods of confusion throughout the day and I always attributed this to severe blood pressure swings but now wonder if it is low
Ruffner
in
Multiple System Atrophy Trust
1 year ago
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