Popmusic1

[Popmusic1]

Hi

My daughter has been on Sodium Cromoglycate for MCAS but has been told it’s not available as there is a distribution problem with it.Nothing else has worked for her and the pharmacy does not know if and when it will be available again.Does anyone know if it’s available anywhere

[DalesDweller]

It's definitely available, I picked up a new prescription just last week. I've been getting it fine in Derbyshire Dales from Manor Pharmacy. They don't have it as a stock item, but just order it automatically when I put in my repeat. Usually takes 2 working days for the order to arrive.

If they say it's not available, make sure they are not just talking about it not being in stock. I don't see any reason they can't order it for you. The brand I've received recently is Somex Pharma 100 x 100 mg capsules. somexpharma.co.uk/_files/ug...

You can order online from Manor if there isn't one near you: manorpharmacyonline.co.uk

[Popmusic1 in reply to DalesDweller]

Hi Dales Dweller

Thanks for that.I’m trying for it in the R O Ireland so maybe that’s the problem

[DalesDweller in reply to Popmusic1]

Ahh, that could be it. Different system.

[MadRed13]

Another thing to check is that they are not trying to obtain Nalcrom as this version is no longer available. It needs to be ordered as Sodium Cromoglycate.

[Popmusic1 in reply to MadRed13]

Hi MadRed 13

Thanks for that advice.I will try for Sodium Cromoglycate instead,maybe I will have better luck

[DalesDweller in reply to Popmusic1]

There is an update from August 2023 on the UK Masto site about Nalcrom. It has product codes for generic alternatives to share with your pharmacist: ukmasto.org/medication/nalc...

This NHS page may also be useful if you like more detal: services.nhsbsa.nhs.uk/dmd-... - make sure you scroll to the bottom for links to suppliers

Guessing the above could be useful for Ireland too.

[DalesDweller in reply to DalesDweller]

Update: I just wanted to let you know that I received Nalcrom brand from my local Manor Pharmacy when I picked up my sodium cromoglicate 100mg oral capsules prescription on Friday 06 October.

[Popmusic1 in reply to DalesDweller]

Thanks for that.My daughter just got some from her local pharmacy this week,so happy to have got it

[DalesDweller in reply to Popmusic1]

Great news, so happy for you both