Liver Cirrhosis: I have symptoms of... - British Liver Trust

British Liver Trust

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Liver Cirrhosis

pizza07110711 profile image
10 Replies

I have symptoms of cirrhosis. Mainly difficulty sleeping, muscle weakness, internal tremors. it has been going on since December. I have had slightly elevated enzymes on two occasions since December. Sodium was low on once occasion and bilirubin in urine on one occasion. Most recent tests showed normal enzymes and urine. I am a former drinker.

I have had a abdominal CT scan which was unremarkable, liver ultrasound unremarkable, and a fibroscan. The fibroscan showed 5.4 kpa and 180 Cap. I have also had a colonoscopy and egd which did not show varices. I had a fecal fat test which was negative for malabsorption. The doctors tell me I do not have cirrhosis but I have symptoms which they tend to ignore.

Is it possible to have a false negative on a fibroscan? I am just convinced that I have cirrhosis. Anyone with a similar story or advice? Thanks.

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pizza07110711
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10 Replies
moonwalker12 profile image
moonwalker12

Have you had a blood glucose test?

pizza07110711 profile image
pizza07110711 in reply tomoonwalker12

yes it is normal

Tommy62 profile image
Tommy62

5.4 fibroscan is a great result speak to your consultant he should reassure you there could be other things causing these symptoms like stress is a big big factor in these things I have had myself dead and buried at least 10 times I even paid for my funeral I even went to hospital and they might aswell have said it's all in your head and sent me home every thing I get I think liver right away and I haven't been right yet

pizza07110711 profile image
pizza07110711 in reply toTommy62

I am worried about false negatives with the fibroscan.

Alibaba80 profile image
Alibaba80

Hi, yes i have many many symptoms and have been ill for awhile now.I have Nodular Regenerative Hyperplasia of the liver which can only bediagnosed through biopsy. It can not be seen in scans etc I had a battle to get the diagnosis unfortunately.

How ling have you had symptoms and do you have any problems eating or weightloss?

pizza07110711 profile image
pizza07110711 in reply toAlibaba80

I had initial weight loss after I stopped the alcohol. I have gained that back and no problems eating.

MarkC66 profile image
MarkC66

you are healthy - enjoy your life..

pizza07110711 profile image
pizza07110711 in reply toMarkC66

I don't feel fine. Maybe anxiety is causing all this but I am not so sure. My next step is to ask for a liver biopsy

BritishLiverTrust8 profile image
BritishLiverTrust8ModeratorBritish Liver Trust in reply topizza07110711

Dear pizza07110711

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

We have also included this link about health anxiety: nhs.uk/mental-health/condit...

(Please note: whilst the advice is suitable for all, the links to talking therapies are England-specific)

Best wishes

British Liver Trust

Roy1955 profile image
Roy1955

Hi Marco!You don't have liver disease!

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