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I introduce myself to you
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
Hi all After reading the messages for a long time, I finally took the time to update my profile to describe my history of the disease. That's it Take care of yourself, I live in France, I was born in April 1963, I am married and I stopped my professional activity 10 months ago Diagnosed 09/2019,
graal05
in
Advanced Prostate Cancer
6 months ago
Platelets Dropping
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Hope49823
in
Advanced Prostate Cancer
6 months ago
I need urgent help for my uncle.
My uncle who resides in France and is a holder of a French citizenship, has been diagnosed with terminal prostatic cancer. He had treated this condition in the past but it ultimately came back, but this time around doctors (including a specialist in Marseille) made him know that his condition was incurable
My uncle who resides in France and is a holder of a French citizenship, has been diagnosed with terminal prostatic cancer. He had treated this condition in the past but it ultimately came back, but this time around doctors (including a specialist in Marseille) made him know that his condition was incurable
Admhdu
in
Advanced Prostate Cancer
6 months ago
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I need urgent help for my uncle
My uncle who resides in France and is a holder of a French citizenship, has been diagnosed with terminal prostatic cancer. He had treated this condition in the past but it ultimately came back, but this time around doctors (including a specialist in Marseille) made him know that his condition was incurable
My uncle who resides in France and is a holder of a French citizenship, has been diagnosed with terminal prostatic cancer. He had treated this condition in the past but it ultimately came back, but this time around doctors (including a specialist in Marseille) made him know that his condition was incurable
Admhdu
in
Advanced Prostate Cancer
6 months ago
chemo
has anyone who failed xtandi and zytiga have good outcome with chemo- does it completely eliminate the cancer or do you still have to take things after - how does it work when it stops - also can you take it in smaller doses?
has anyone who failed xtandi and zytiga have good outcome with chemo- does it completely eliminate the cancer or do you still have to take things after - how does it work when it stops - also can you take it in smaller doses?
Chris52981
in
Advanced Prostate Cancer
6 months ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
6 months ago
Is there an "oligometastatic state" for prostate cancer (but not in breast cancer or lung cancer)?
The concept of an "oligometastatic state" is that there exists an early stage where metastases are few in number and are in some way different from metastases that develop later. It also means that there are no micrometastases in systemic circulation (in bone and lymph) and in reservoirs like bone, nerve
The concept of an "oligometastatic state" is that there exists an early stage where metastases are few in number and are in some way different from metastases that develop later. It also means that there are no micrometastases in systemic circulation (in bone and lymph) and in reservoirs like bone, nerve
Tall_Allen
in
Advanced Prostate Cancer
4 months ago
Colonoscopy v Colonography
Has anyone else been told they have a loopy bowel and it is not advisable to have a colonoscopy anymore. They recommended ct colonography, but i am worried about the amount of radiation this needs. Apparently 2yrs normal exposure in one go. Anyone else had this predicament?
Has anyone else been told they have a loopy bowel and it is not advisable to have a colonoscopy anymore. They recommended ct colonography, but i am worried about the amount of radiation this needs. Apparently 2yrs normal exposure in one go. Anyone else had this predicament?
casares8
in
IBS Network
6 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
6 months ago
Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
nereabg
in
Advanced Prostate Cancer
6 months ago
MRI from 3-30-2024.
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
Odnad
in
Prostate Cancer Network
6 months ago
Does Gleason score still apply after RP
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
LockItUp
in
Prostate Cancer Network
6 months ago
Radiation for cancer other than thyroid.
Does radiation treatment for breast cancer affect thyroid medications? Does dose need to be adjusted during or after treatment?
Does radiation treatment for breast cancer affect thyroid medications? Does dose need to be adjusted during or after treatment?
raglansleeve
in
Thyroid UK
6 months ago
Satisfaction with AUS after Radiation
If you have had an AUS implanted after receiving radiation are you satisfied with your decision and has it improved your quality of life? Or do you regret having an AUS implanted and if so why? I have had both a prostatectomy and salvage radiation (see profile). I regained continence after the prostatectomy
If you have had an AUS implanted after receiving radiation are you satisfied with your decision and has it improved your quality of life? Or do you regret having an AUS implanted and if so why? I have had both a prostatectomy and salvage radiation (see profile). I regained continence after the prostatectomy
Alturia
in
Advanced Prostate Cancer
6 months ago
Interactive seminar on Garvan institute's work to improve the treatment of advanced cancers, including myeloma, breast and prostate cancer
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Seasid
in
Advanced Prostate Cancer
4 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
6 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
6 months ago
SBRT process just starting
Hello and THANK YOU to all you brave and extremely knowledgeable folks for posting your priceless experiences and expertise here and to the brave spouses and partners as well. This Network has helped keep me sane since I was diagnosed with PC in 2023 and I could not decide on which way to deal with
Hello and THANK YOU to all you brave and extremely knowledgeable folks for posting your priceless experiences and expertise here and to the brave spouses and partners as well. This Network has helped keep me sane since I was diagnosed with PC in 2023 and I could not decide on which way to deal with
Info_Search_JMA
in
Prostate Cancer Network
6 months ago
Second Line Hormonal
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Cabazitaxel Questions
I have switched from Docetaxel to Cabazitaxel. Should I still take the Grastofil injections?
I have switched from Docetaxel to Cabazitaxel. Should I still take the Grastofil injections?
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
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