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Lung Transplant Survey Request
Hi Everyone Its been a while since I posted on this site - my mum had a very scary few months in hospital after receiving a lung transplant. Since then things have been progressing slowly in the right direction. As I come from a med-tech background and not working I would like to do something positive
Hi Everyone Its been a while since I posted on this site - my mum had a very scary few months in hospital after receiving a lung transplant. Since then things have been progressing slowly in the right direction. As I come from a med-tech background and not working I would like to do something positive
Queenbean
in
Lung Conditions Community Forum
4 years ago
Pregnancy after kidney transplant
Hi! Its been 10 years since my last kidney transplant. I have been transplanted twice , and i have recently got married . Hope pregnancy wont be challenging and things will be smooth when i plan a baby
Hi! Its been 10 years since my last kidney transplant. I have been transplanted twice , and i have recently got married . Hope pregnancy wont be challenging and things will be smooth when i plan a baby
Kanika_2020
in
Kidney Transplant
4 years ago
Endosc OP
Having an ERCP for dilated bile duct valve after liver transplant. Anyone had one that can inform me about it?
Having an ERCP for dilated bile duct valve after liver transplant. Anyone had one that can inform me about it?
Newcastle1
in
British Liver Trust
4 years ago
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Hi Got diagnosed with FND need advice.
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Plasticpaddy
in
FND Action
4 years ago
Transplant preparation
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
After years of icu visits regularly and life support the transplant team have ramped up the testing to prepare for a full liver transplant. An emotional journey for sure. Trying to be hopeful but nervous too
Mdbish
in
British Liver Trust
4 years ago
MDS
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Doctors found out its MDS for my father, so they want to control it with medicines similar to cemo and then will decide after 4 months for bone marrow transplant. I am just wondering we had this problem of low hemoglobin since his radiation 2.5 years but still hemotologist never realised this is the
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Anemia related to bone marrow
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
It's bone marrow problem as per doctors and test result, its been since radiation 3 yrs back and testicals removal, my father kept saying about hemoglobin declining but doctors never suggested bone marrow tests since then, it was gradually rising, it could have been easily cured. Now doctor said we got
Kshiprakapoor
in
Advanced Prostate Cancer
4 years ago
Always Have Faith!!!
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
Hello guys, I haven’t posted in a minute last time i said that my dad was on bad road he was diagnosed with Covid in March and intubated he was hospitalized for 32 days he came home for a week then got hospitalized again for about 2 weeks with pneumonia and was intubated again and was in ICU and then
tegegne12
in
ICUsteps
4 years ago
Kidney transplants and meloxicam
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
My husband is 18 years post kidney transplant. Due to severe pain in “private” areas we went to the ER last night where they prescribed meloxicam. Does anyone have any knowledge on whether a kidney transplant patient can take meloxicam?
CSCleary
in
Kidney Transplant
4 years ago
Sharing my kidney story and much more! Tedx talk! Enjoy.
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
Hello Kidney transplant community. Filmed up in Glasgow in October - less than two weeks later I got the call for my second kidney transplant. 9 months on - here is my first Tedx talk to share into the world! I hope you enjoy. One day at a time. https://youtu.be/y0lmkEkNIuk
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
Just when it's now safe to go out, a note of caution.
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
All those who have received a liver transplant (like myself) or who have a suppressed immune system will know how important skin protection is at this time of year. It can feel like we are having to doubly protect ourselves. Having got through the self-isolation due to the pandemic. We can finally go
Richard-Allen
in
Liver4Life
4 years ago
Liver News - University of Birmingham
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
I like to share some news that I come across from time to time. Here is a recent news article from the University of Birmingham which talks about the enormous contribution that the Liver Profusion Machine has made in the use of unviable livers. This machine was trialled over six years ago at both
Richard-Allen
in
Liver4Life
4 years ago
Stem Cell Transplant
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
I heard this can cure PV. Why the he is this not legal in the USA?! Obviously I can't fly to Panama to get this done and can't afford it. I'm sick of being fatigued!
lebowski42
in
MPN Voice
4 years ago
Transplant. Illness. Feeling Ok.
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
Hi guys. You’ve probably seen my posts in the past. I had liver failure in April 2019 and this resulted in decompensated liver, encephalitis and extensive ascites/odema. They said first three days are life and death. Now is now. My mobility is limited and with the help of my God I came through eleven
cammeag
in
British Liver Trust
4 years ago
Living with PKD
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
I have been diagnosed with PKD since I was 24. I am now awaiting for a kidney transplant. I do have someone being tested for living donor.
Pkd_2020
in
Kidney Transplant
4 years ago
Ongoing symptoms for 2 years
Hi everyone, I have been dealing with constant symptoms for over 2 years now. I am 30, M, 215 lbs. I have had a sense of pressure in my chest, as well as feeling nauseous off and on. It seems to come in waves, where my symptoms are really awful for a week-10 days then I am good for a bit. Throughout
Hi everyone, I have been dealing with constant symptoms for over 2 years now. I am 30, M, 215 lbs. I have had a sense of pressure in my chest, as well as feeling nauseous off and on. It seems to come in waves, where my symptoms are really awful for a week-10 days then I am good for a bit. Throughout
Cdods1
in
Colon Cancer Connected
4 years ago
Lots of blood in stool - LOTS
I’ll try keep it short, lots of blood with bowl movements to the point it will drip for 40 mins and has sometimes required 2 towels to stop the bleeding. I went to hospital to A&E and they said they can’t do anything as bleeding has stopped and I have piles which I was shocked about. This has been on
I’ll try keep it short, lots of blood with bowl movements to the point it will drip for 40 mins and has sometimes required 2 towels to stop the bleeding. I went to hospital to A&E and they said they can’t do anything as bleeding has stopped and I have piles which I was shocked about. This has been on
Walt46
in
IBS Network
4 years ago
Updates Covid After Effect
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
Hey guys, So my dad got his tracheostomy today and they said it went well with no complications! However is creatinine is at 2.28 now it’s been in the 2’s later kinda a little worried for his kidney since he is a kidney transplant 🥴 but they said he is still urinating well so i’m a bit confused ?
tegegne12
in
ICUsteps
4 years ago
Covid ICU coming off sedation
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
My boyfriend has been in covid ICU for 50 days now..he is a kidney/ pancreas transplant patient.He had trach placed almost 3 weeks ago..He is not requiring the ventilator setting ..all of his stats are good kidney function is good , but he's still testing positive for the virus.they are weaning him
Terrilynn76
in
ICUsteps
4 years ago
Covid19 now the after effect
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
Hello guys, On march 19 my father was admitted to the hospital for what we believed was gastritis pain he was throwing up at home and very tired. The hospital diagnosed him with pneumonia but on march 21 he was diagnosed with Covid19 he was rushed into the ICU for intubation. The doctors said they never
tegegne12
in
ICUsteps
4 years ago
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