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Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
5 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
5 months ago
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Struggle after transplant
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Gemmax
in
British Liver Trust
5 months ago
chances of it being colon cancer
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
Glouise1234
in
Colon Cancer Connected
8 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
5 months ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
5 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
6 months ago
Zicam post kidney transplant
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
Rocknlily
in
Kidney Transplant
6 months ago
A Celebration of Life
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
8 months ago
Best friend has cancer
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
Skydreamer42
in
Colon Cancer Connected
8 months ago
Reintroduce myself for new members
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
6 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
6 months ago
No symptoms 5+4
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Sheldonmycat
in
Fertility Network UK
6 months ago
Brain metastasis on Ovarian Cancer
Hello everyone, I'm writing this post on behalf of my mother. My mother, aged 48, was diagnosed with OC back in Feb '21. Since then, she has undergone several surgeries and chemotherapy rounds. I know everyone here has either faced these challenges or witnessed a loved one going through them, so you
Hello everyone, I'm writing this post on behalf of my mother. My mother, aged 48, was diagnosed with OC back in Feb '21. Since then, she has undergone several surgeries and chemotherapy rounds. I know everyone here has either faced these challenges or witnessed a loved one going through them, so you
selosh16
in
My Ovacome
8 months ago
How to improve your blood pressure
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
6 months ago
Kidney Transplant
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
LisaGrehn
in
Kidney Transplant
6 months ago
Kidney transplant
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
Runquik123
in
Kidney Disease
6 months ago
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