Search
Search
About
Log in
Join
Experiences with
Small bowel transplant
Posts
Communities
4,267 public posts
Filter results
Coping with Pediatric Kidney Disease
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Candy girl
liver transplant the effects on family
liver transplant the effects on family
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Candy girl 👧
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
50% improvement
I understand we are all different, but for me Alverine Citrate has reduced my IBS symptoms by 50% e.g. diarrhoea, bloating and “eggy burps”.
I understand we are all different, but for me Alverine Citrate has reduced my IBS symptoms by 50% e.g. diarrhoea, bloating and “eggy burps”.
Parsnips1
in
IBS Network
2 years ago
Is that colon cancer
Constantly I feel I need a bowel movement, even I already have one, I have piles, never felt that I completely empty my bowel, on doctor diagnosis me with lavatory spasms, disfunction pelvic muscles, but I don't think so, lately I saw my stool with some blood, doctor says you have hemorrhoids and you
Constantly I feel I need a bowel movement, even I already have one, I have piles, never felt that I completely empty my bowel, on doctor diagnosis me with lavatory spasms, disfunction pelvic muscles, but I don't think so, lately I saw my stool with some blood, doctor says you have hemorrhoids and you
Ateffarag
in
Colon Cancer Connected
2 years ago
Gallbladder issues
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
Ziggydoodah
in
Kidney Disease
2 years ago
Follow up on my liver cancer HCC
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Colonic irrigation - has it helped you ?
Colonic irrigation - will this help remove trapped gas issues in bowels? I don't have c or d, just severe trapped gas.. and hugely sensitive gut and stomach atm. ( Waiting for SIBO test)? Im thinking .... My kinesiologist said i had lots of poop along my colon .. might be causing blockages, especially
Colonic irrigation - will this help remove trapped gas issues in bowels? I don't have c or d, just severe trapped gas.. and hugely sensitive gut and stomach atm. ( Waiting for SIBO test)? Im thinking .... My kinesiologist said i had lots of poop along my colon .. might be causing blockages, especially
Beetroot48
in
IBS Network
2 years ago
Alverine Citrate
Has anyone been prescribed Alverine Citrate and if so did it help My symptoms are getting worse instead of better,I'm going away next week and I feel so down , struggling with constipation and severe bloating Will it ever calm down ☹️
Has anyone been prescribed Alverine Citrate and if so did it help My symptoms are getting worse instead of better,I'm going away next week and I feel so down , struggling with constipation and severe bloating Will it ever calm down ☹️
Suean
in
IBS Network
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
Comparison can be good for the soul...
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
Timberman
in
COPD Friends
2 years ago
Colon cancer
I was hoping someone can tell me what this could be I been having this in my stools every time I go.. and to be honest I’m worry because I been having a pain in my lower left side that doesn’t want to go away…
I was hoping someone can tell me what this could be I been having this in my stools every time I go.. and to be honest I’m worry because I been having a pain in my lower left side that doesn’t want to go away…
Smiles199
in
Colon Cancer Connected
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Life insurance
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Kidney2014
in
Kidney Transplant
2 years ago
Fluid around liver post transplant
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Craftynan
in
British Liver Trust
2 years ago
First appointment at lung transplant centre.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
Karenanne61
in
Lung Conditions Community Forum
2 years ago
1
...
35
36
37
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
718 results
Lung Conditions Community Forum
456 results
Kidney Transplant
437 results
View top 10 communities
Sort by
Most Relevant
Newest