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Triple negative breast cancer with bone only mets
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Sadie321
in
SHARE Metastatic Breast Cancer
3 years ago
Afib returned
I am newly diagnosed with a-fib on elequist and dronedadrone multaq been for 10 days i have been a-fib free till today, is this normal i am very anxious about this.
I am newly diagnosed with a-fib on elequist and dronedadrone multaq been for 10 days i have been a-fib free till today, is this normal i am very anxious about this.
Beemer11
in
AF Association
3 years ago
Feeling desperate
3 weeks ago I was taking 6 mg of pred.Didn't know to increase pred before my dental procedure and it caused a flare.Inched my way by.05 mg backup to 7mg but symptoms are getting worse,feet and ankles swelling,stiffness and ache in back,shoulders and arms.can I up the pred and how much then start my
3 weeks ago I was taking 6 mg of pred.Didn't know to increase pred before my dental procedure and it caused a flare.Inched my way by.05 mg backup to 7mg but symptoms are getting worse,feet and ankles swelling,stiffness and ache in back,shoulders and arms.can I up the pred and how much then start my
ancientprune
in
PMRGCAuk
3 years ago
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Lymphodoema in torso
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Savagebread
in
LSN
3 years ago
Short FET IVF cycle, no down-regulation only progynova
Hi everyone, advice needed please… I’ve had a failed fresh transfer and a failed frozen transfer ending in chemical pregnancy. My next option is to go into another frozen transfer on a short protocol with no down regulation. Has anyone had any experience of a shorter frozen protocol? It’s great to have
Hi everyone, advice needed please… I’ve had a failed fresh transfer and a failed frozen transfer ending in chemical pregnancy. My next option is to go into another frozen transfer on a short protocol with no down regulation. Has anyone had any experience of a shorter frozen protocol? It’s great to have
Char2383
in
Fertility Network UK
3 years ago
alcohol and hair colouring
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
scousehusband
in
SHARE Metastatic Breast Cancer
3 years ago
Sleep Apnea
Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or mouth gear for apnea? I am feeling out options and both seem to stink to me. CLL is enough. I decided tonsils are staying in throat for now!
Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or mouth gear for apnea? I am feeling out options and both seem to stink to me. CLL is enough. I decided tonsils are staying in throat for now!
Gardengirl44
in
CLL Support
3 years ago
Skipped beats in a row
I can go about my day to day fine with no symptoms, and out of nowhere and during my sleep I can have about 5 skipped beats in a row before I jump back into NSR - does anyone else have experience of this? It’s very jolting waiting to go back to NSR, I’m about to start bisopropol to see if this will help
I can go about my day to day fine with no symptoms, and out of nowhere and during my sleep I can have about 5 skipped beats in a row before I jump back into NSR - does anyone else have experience of this? It’s very jolting waiting to go back to NSR, I’m about to start bisopropol to see if this will help
Kellylou1712
in
Arrhythmia Alliance
3 years ago
Blood test results , platelet distribution width??
Hiya, I am low in b12 and SI EOD at the moment. Have been going through my blood results and have noticed my Platelet distribution width is always really high(35-55%) and my plateletcrit is always really low. I’m not sure what these are as I notice they aren’t usually in others results. Any input? I
Hiya, I am low in b12 and SI EOD at the moment. Have been going through my blood results and have noticed my Platelet distribution width is always really high(35-55%) and my plateletcrit is always really low. I’m not sure what these are as I notice they aren’t usually in others results. Any input? I
Purpleloulou27
in
Pernicious Anaemia Society
3 years ago
Iboga / Ibogaine Summary (For Dopamine Regeneration!!)
I recently discovered Ibogaine / Iboga in my general psychedelics interest. It is a shrub from the Congo basin of Africa that has been used for thousands of years in healing and ceremony, stemming from the Pygmy and Fang cultures, in traditional Bwiti practices. It is still used by those that practice
I recently discovered Ibogaine / Iboga in my general psychedelics interest. It is a shrub from the Congo basin of Africa that has been used for thousands of years in healing and ceremony, stemming from the Pygmy and Fang cultures, in traditional Bwiti practices. It is still used by those that practice
pdkid
in
Cure Parkinson's
3 years ago
Brain Fog ?
At this point brain fog is my most annoying side effect of ADT. I am going to start carrying around a pad of paper and pen so I can write down what I am doing. If I go to the shed to get something by the time I get there I have forgotten. It is interesting that it is really just short term memory. I
At this point brain fog is my most annoying side effect of ADT. I am going to start carrying around a pad of paper and pen so I can write down what I am doing. If I go to the shed to get something by the time I get there I have forgotten. It is interesting that it is really just short term memory. I
spencoid2
in
Advanced Prostate Cancer
3 years ago
Medication for af and heart failure
I have been put on by Cardiology at Stoke Bisoprolol 5mg twice per day Plus Degoxin 0.187mg per day and Entresto 24/26 twice per day. I also take 10mg of Zolpidem around 2am in the night as I always wake up in middle of the night due to sleep disturbance of my heart medications. The Zolpidem works
I have been put on by Cardiology at Stoke Bisoprolol 5mg twice per day Plus Degoxin 0.187mg per day and Entresto 24/26 twice per day. I also take 10mg of Zolpidem around 2am in the night as I always wake up in middle of the night due to sleep disturbance of my heart medications. The Zolpidem works
Mike-tyson
in
British Heart Foundation
3 years ago
Miralax
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Shumbah
in
Restless Legs Syndrome
3 years ago
Mastectomy or not?
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
ayrtonhenry
in
My Ovacome
3 years ago
Resistance Training Specific for ADT Patients?
Is anyone aware of a resistance training program that has been specifically designed for the challenges and goals that ADT Patients would have? I am meeting with a personal trainer who is a veteran and has worked with VA rehab programs and we are looking to devise such a program for a local Cancer Ctr
Is anyone aware of a resistance training program that has been specifically designed for the challenges and goals that ADT Patients would have? I am meeting with a personal trainer who is a veteran and has worked with VA rehab programs and we are looking to devise such a program for a local Cancer Ctr
JPnSD
in
Advanced Prostate Cancer
3 years ago
What next after ibrance and faslodex?
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
ERPRposHER2-
in
SHARE Metastatic Breast Cancer
3 years ago
Just to introduce myself
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Winner123
in
SHARE Metastatic Breast Cancer
3 years ago
On buserelin again
Hi girlies, so we’re on round 2 day 5 of down reg. I feel absolutely fine 🥳. When we started back in May the buserelin killed me, the first 5 days were awful and I had every side effect! This time nothing, just a bit hungrier than normal. Has this happened to anyone else? I’m not complaining one bit
Hi girlies, so we’re on round 2 day 5 of down reg. I feel absolutely fine 🥳. When we started back in May the buserelin killed me, the first 5 days were awful and I had every side effect! This time nothing, just a bit hungrier than normal. Has this happened to anyone else? I’m not complaining one bit
JudithSS
in
Fertility Network UK
3 years ago
Magnesium Supplements
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
I'm taking 350mg soluble magnesium carbonate every other day, as suggested by my GP before I was diagnosed. However, I have read that Magnesium Glycinate is specifically recommended for absorption and also as a sleep aid of sorts. Would welcome any feedback - i.e. what dose should be taken daily
Pr0jection
in
PMRGCAuk
3 years ago
Gastrointestinal Dysfunction in Parkinson’s Disease 2021 Jan
There is an incredible amount of information about the PK effect on the gastrointestinal system in this paper. Pictures too! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7866791/ This part about the aggregated α-synuclein being all through the gut made me think of mannitol and if it is stopping α-synuclein
There is an incredible amount of information about the PK effect on the gastrointestinal system in this paper. Pictures too! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7866791/ This part about the aggregated α-synuclein being all through the gut made me think of mannitol and if it is stopping α-synuclein
Bolt_Upright
in
Cure Parkinson's
3 years ago
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